Pip assesment today... puzzled

Posted , 16 users are following.

Hi everyone.... I've suffered with rhuematoid arthritis for 9 years now - I'm 29, diagnosed at 20. It's never been under control, I have been through loads of biologic drugs, humiera, cimzia, enbrel, tocilizumab to name a few (sorry about spelling) all no improvement or reactions to them. Been on high dose mtx could not tolerate it even tried injecting it. Tried hydro whatever it's called and sulfasalazine no good. Currently on infliximab an trying just 2 tablets of mtx to see how I go. I've had no improvement yet but just infections after infusion like all other treatments I did. Also have patchy colitis, underactive thyroid and bad depression.

My wrists are fused I can not move them at all. A couple of toes also. My fingers are really deformed already, and my left knee has been swollen for 2 years. Fluid turned to gel so draining no good and steriod injections don't work. Struggle in every day to day thing, and my mobility is awful.

My joints effected are, toes, feet, ankles, knees, ribs/breastfeeding bone, shoulders sometimes, wrists, all fingers, neck and jaw when I'm bad.

As well as my infusion, I'm on :

Mst 60mg morning and night

Oramorph 10mg 4 x a day

30mg amitriptyline

Lansorapzle

prednisolone 6 a day

Diclofenac 50mg 3x a day

Sertraline 50mg a day

Mtx 10mg a week

Folic acid

Senna 2 a day

Ducosate 4 a day not sure of mg on last 2

Think that's all

Anyhow the reason I'm posting... Sorry for all the info wanted to give yous a quick background.

Today I had a pip assessment... the lady was lovely and it was not scary at all. I had been petrified, I had read on here they make you feel comfortable so you drop your guard if you have one. I was completely honest an just told her how I was didn't exaggerate as some people told me to.

She didn't really ask many questions or the questions I was expecting... like how many bad an good days do you have.

She was also putting words in my mouth kinda.. finishing my sentences.

When she had finished the questions an talk she said I would normally now ask you to do some things an would assess you on that - but I can clearly see how much pain your in an I can see from your joints how you are... and also the amount of pain relief your on tells how bad you are. So I am refusing to do that an I will state that in my report.

Has anyone else had a similar experience? Or have any thoughts on what the outcome could be. I've read a lot about them saying one thing to you an then receiving different things in your report.

I have suffered for years with this... an never applied for this after people telling me too.

I'm at a point now where I'm house bound an literally can not do much at all. I feel ashamed being out in pupil the way I walk because I'm a young woman. I just can't cope any more an hope I do get this now so I can get extra help.

Any advise or previous experiences shared would kindly appreciated

Regards

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  • Posted

    what awards are you hoping for?  Both care and mobility?
  • Posted

    when you say she didn't ask you the questions you were expecting what do you mean and what did she ask?  The nurse who assessed me basically went through the questions on the pip claim form, I ass umed to check that what I stated on my pip application was correct.

  • Posted

    Putting words into people's mouths is the norm now had it with ESA

    Not so much with pip as she knew I would stop and say " no I don't make

    Hot drinks ie using a 2 litre bottle of milk.

    They will watch you and try to catch everyone out

    Be carful on the phone too DWP will put you on hold then type so you

    Can't hear it had it many times now

    The government is hitting sick and disabled folk as its a very easy

    Target too hit

    Pip and Esa have too hit targets set by the government too fail people

    • Posted

      Yes, I have heard that too - so many genuinely disabled people getting less or nothing!  It is terrible!  I felt my medical went ok but I am still not getting my hopes up as I have heard that so many assessors lie in their reports and don't write down what you actually said.  I just hate the waiting!  Three weeks since my assessment and I think my postie thinks I am stalking him as I am watching from the window every morning!

    • Posted

      I went from DLA - HRM & MRC indefinitely to ZERO in PIP!!!!!

      Didn't bother to appeal as I knew that I just wouldn't be able to cope. I was 67 when they tried to transfer me last year after being on DLA since 1995.

    • Posted

      So shocking!  Just goes to show how hard they have become and I only think it is going to get harder.  I hope you stay well and strong Les x
    • Posted

      It was words which supported my case thou.... "do you read?" My reply "no"

      "Well you couldn't hold a book anyway"

      "How do you feel going out alone?"

      I don't like to go out alone... my pain levels make me faint and sweaty.

      "That's anxiety"

      Things like that.

      I know I've heard so many bad things about sick disabled people losing their benefits. It's bad.

      I'm on ESA in the support group, I've never ever had an assessment for that so can not compare from PIP

    • Posted

      I know Les, I've been reading your posts.

      I think it's terrible what's happened to you. I know you say it's not worth the hassle.... I wouldn't of let them win.

      It's harsh how people are losing their awards, like they have been cured or healed.

      I know pip descriptors are in place for a reason I get that. People from dla should of just been transferred straight over.

      Saying that though... I do believe dla was more easily give.

    • Posted

      Hopefully you will get some award - fingers crossed.  I too am in the ESA support group and never had a medical.  I had my esa re-assessed in march and had to fill in another big claim form then heard a few weeks ago that a decision had been made without the need for a medical - and they have decided to keep me in the support group.    

      Pip has nothing to do with esa though - you can get pip and be turned down for esa and vice versa.

    • Posted

      I too had a claim form recently... I thought maybe it had something to do with me applying for pip . They wanted me to update them on esa. I didn't even realise you had to have medicals an score points for esa untill reading on this.

      My letter said the same. Still support group, didn't mention points or length of time awarded as some people talk about on here.

    • Posted

      My claim for pip as been going on since September 2015. I made the call received my forms. Was filling them out bit by bit myself. I couldn't face doing it all in one sitting. Unfortunately I was admitted to hospital for 3 weeks an missed the deadline on my form. When I got out of hospital I wasn't thinking about the form I had forgotten about it tbh. Come December I remember an ring them an tell them what had happened so lady says that's fine. Just send forms in now. During this period I was really bad an depression at its worst I still never sent the forms in. Couple of months later I feel like I can face things. I sent the forms off... revieved a letter saying i had been declined PIP. So rang an spoke to someone they said without an assessment I should not of been declined, so told them the forms was late an they said I could appeal. Got another letter saying my RM decision was turned down. So took my letters to the CAB who filled out a SSCS1 to take my appeal to tribunal. Was not looking forward to going to a tribunal.... but i Waited a while an got a letter saying it was a more favorable decision. Didn't understand so rang an they told me it was good news. Rang dwp... they didn't know anything about it for weeks there was loads of messing about. The dwp have said on numerous occasions now they don't have things but yes later turn in "a file".

      After speaking to dwp last an sorting it all out I received my assessment within a week. An it was for a weeks times.

      I hope the wait isn't so long now... as this has been going for ages now.

      Here's hoping ??

    • Posted

      well,would you believe it.just been shop get loaf.guess who's been! postman. not one but 2 brown envelopes on the floor for me. 1 big 1small.

      so I've put them on table. unopened. staring at them right now. what's to do. suggestions

      anybody?

    • Posted

      How mad..... oh my gosh... glad you've got them. Good luck.

      Open ... open... open... open...

      I wouldn't be able to leave them.

    • Posted

      I think it's what they make us do. normally I'd have opened by now but I've come to conclusion it's my last bit of power I'd left over them. must admit, bit puzzled as to why small one I can see is yellow. always bad news. address handwritten. going get a sandwich first.

    • Posted

      My stomach actually turned for you when I read the post they had arrived. I will probably be the same when mine comes. I'll be scared to open it . I really hope it's in your favorite Ivan. Enjoy your sandwich an do it when your ready. Yellow an hand written does sound strange. Maybe it's something completely different - not dwp!

      Good luck, good luck, good luck x

    • Posted

      Good luck - please let us know!  
    • Posted

      When health intervenes and makes the simplest of problems seem massive and with a failing memory, the thought of fighting the DWP through to a Tribunal hearing fills me with dread. Additionally then to think that this scenario will be repeated every few years until I die was a step too far.
    • Posted

      That was my thought for the past couple of years also. When professionals have been telling me I should be on it. I know the whole process is hard work. I wasn't in the right mind to deal with it - I am now. I've had enough of not living. Just existing!!!

      It won't give me my life back but will make things easier.

      Do they not hand lengthy awards on pip? You could fight an find yourself with one. You never know. An you won't have to deal with it. It's such a shame!!! A person of your age an your condition shouldn't have to deal with that x

    • Posted

      I've just read your posts and I must admit, unless the assessor tells a load of lies about you, then surely to goodness you should qualify for the highest rate of PIP.  

      I'm in a similar position to Les, was on DLA MRC HRM for almost 20 years and at 68 I was 'invited' to apply for PIP.  A friend did the forms for me as it was too painful for me to write for very long.  I have my assessment in 2 days time Tuesday and I'm really dreading it.  

      I hope you hear soon and that it's a positive result. 

    • Posted

      Good luck with your assessment Sukes x
    • Posted

      Oh bless you TCake, I'm having a real flare up at the moment and I'm sure it's the stress of all this which is causing it.  I don't think think there is any part of my body which doesn't hurt.  Will let you all know how the assessment goes. x

    • Posted

      Hello Ivan,

      I'm curious, have you opened your letters yet  cool

    • Posted

      Mine was 3 weeks ago and after days of worrying and not sleeping I looked pale and haggard with blood shot eyes and black bags hangng under them!  My look probably went in my favour though smile

      Mine wasn't too bad at all so thry to think positive.  When it was all over and I arrived back home, I just sank into my chair with a nice cuppa feeling like a weight had been lifted off my shoulder.  It is just the waiting game now.....mine was on the day we voted Brexit!  I am not sure whether that is a good or bad sign!  Just hope I get my results soon x  

    • Posted

      I can just picture what you looked like cheesygrin 

      My hubby will be there with me thank goodness, I wouldn't be able to face it alone.

      I hope you hear very soon and that it is a positive result x

       

    • Posted

      Yes I can too.

      I had quite a few assessments that mentioned how I looked. Two for ESA and three for DLA.

      They said to go dressed as you would if you were going out to places and will be meeting people.

      My wife always has to choose and lay out what I have to wear, and she makes sure that my hair etc is clean and tidy - in other words just a normal day.

      I was slated because I looked decent and clean and obviously well able to look after myself!

      What do they want me to look like? I wouldn't be allowed out of the front door unless my wife approved as to her how I look is a reflection on her.

       

    • Posted

      I absolutely agree with you Les,  just because a person has a problem with bathing, dressing etc, we still have pride and I would never go out looking scruffy.
    • Posted

      Thanks, if it has come down to how you look on the day, then it is no wonder nearly every guest on the Jeremy Kyle show is getting PIP/DLA!!!

       

    • Posted

      Oh Les you made me giggle too!  I must admit when the JK Show comes on I switch over though as I cannot stand all the bleeping and screaming that goes on.  It is those sorts of scroungers that give people on benefits such a bad name! cry

    • Posted

      This is so true... I have heard of many people being penalised because they care about their appearance.

      Even a CAB advisor told me to go to my assessment in my pajamas an not to brush my hair. Also no make up. He said if you dolled up as you are now you'll lose points.

      I was not dolled up at all. I have easy leggings an lose top on - an a pair of sunglasses on my head because that's the easiest thing to do with hair. Just put glasses on ha.

      No chance did I go into town for an assessment in my scruff. Even though it took 2 people to get me out of the bed that morning they still got me dressed an I put a little make up on. If that goes against me, well so be it.. I wasnt pretending to someone I'm not.

    • Posted

      If you where on DLA AT AGE 67 you should have stayed on it ....you really should have alpealed as DLA is non tranferable after age 65 then it woukd be attendance allowance!!!
    • Posted

      I think the oppisite i had to fight for 4 years to get basic DLA .as hospital lost my blind certificate and refused to retest me incase oroginal "showed up" ...Then fight again to get it reassesed ....PIP WAS A DODDLE .by comparision... And i ended up being put onto enhanced care!

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