Platelet Rich Plasma procedure (PRP)

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Has anyone tried or considered having a platelet rich plasma procedure done? I’ve read some very promising results from it but not sure if it sounds too good to be true or not.

I’d love to hear your thoughts on it.

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  • Posted

    Hi Tweetmepete,

    Yes, I'm definitely considering getting PRP treatment in the coming months. I have a follow-up at my local vulva clinic where I will quiz my doctor about her knowledge of PRP to get a more impartial opinion. I feel if I write to the doctor who I'd choose to perform the procedure, she may be more inclined to give a rosy picture of the expected outcomes. I have a very long list of questions to ask before I would cough up £1200 for a private medical procedure not available on the NHS (I'd love to know why). I'm also going to consult my GP just to get her opinion as well. She diagnosed me within weeks of my LS starting and she said she has a few LS patients besides me, so I'm hoping she can give me her insight too.

    I personally think it's worth trying. It is a lot of money, but my LS has advanced rapidly since diagnosis and the Clob isn't really doing anything besides controlling the itch. I'm most concerned to tackle my atrophy. I'm hoping PRP can help with that.

    PRP has also been around for a while and it's my understanding that it is useful for sports injuries. I've read numerous promising research papers and studies about it with regards to LS, so I'm hopeful. I think LS is one of those diseases where we have to stay positive and optimistic! PRP helps me stay positive.

    What would encourage you to go for it?

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  • Posted

    I considered the O-shot because it claims to help LS.

    Upon further research and discussion with my Vulva/LS specialist Dr, I decided no on the O-shot.  Only 7 or 9 women with LS tested and not a controlled or true scientific test.  My Dr thinks the O-shot's claims are all misleading.  I read an article in the Guardian - a google search should bring it up, The journalist revealed enough info for me to NOT do it.  

    Though I am hopeful that some other sort of plasma/stem cell procedure could help - researching in process. 

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    • Posted

      Hi Flower,

      I'm not sure what you have read, but from my research, there are many more people than 7-9 who have been through PRP treatment and seen some success. How long this lasts remains to be seen.

      I've found probably 3-4 research papers online that report good results with PRP. Yes, there needs to be better studies done, this is true.

      I tried to find your article from the Guardian, but couldn't locate it. If you posted it here, would it be removed?

      Did your doctor give specific reasons for their scepticism at all? I'd be interested to know why he or she though the claims were misleading.

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    • Posted

      Hi Kalila

      I’m in agreement with you on all points.  It’s just the O-shot in particular that I’m not sold on.  Something about the ‘inventor’ himself and his way.  I’ll be researching other PLP options for sure.  Thank you for your info!

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