please assist really feel alone and confused
Posted , 3 users are following.
tasana 55177
Greetings all. I was diagnosed with sinus thrombosis 3 months ago. It started with server headache going into my neck. Was firstly mis diagnosed by my GP as migraine causing spasms in my neck. By the 5rh day I got my first seizure in the evening at around 8om and another 2 thereafter. That's when further test were done and I was diagnosed. I have alot of fear regarding seizures am in Phnyton 100mg x 3 tablets a day and Keppra 250mg at night and 250mg Morning. Please advise anyone with this condition did the seizures stop once the clot dissolved. I take Warfrin as well. Please help
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Tiger12 tasana_55177
Posted
Hi tasana,
I never had the seizures so I can't help you on that end. I do know there are people in this forum that have had seizures associated with their thrombosis though. My thrombosis was discovered after a severe headache lasting 3 days followed by nausea. My doctor sent me for an MRI where the clot was discovered. I spent the next week in the hospital on the stroke ward where they kept a VERY strong eye on me. Thankfully the clot was caught in time and the only thing I suffer from now are chronic headaches (small enough but controlled by medication). My clot was a full blockage of the juggular and took 18 months to dissolve. I also still have tenderness behind my right ear (where the clot was). I currently take gabapentin and topiramate for the headaches. Again, I wish I could help regarding the seizures, but if you have any other questions, I can try to help with those. It's been 4 years since mine.
tasana_55177 Tiger12
Posted
tasana_55177 Tiger12
Posted
sorry it's called residual evidence...
Tiger12 tasana_55177
Posted
Hi Tasana, yes I am well. Thank you for asking. To answer your question, yes, there is residual evidence of scar tissue in the area where the clot was. I have asked my neurologist about this and she has said that the scar tissue is likely there to stay. Since my condition is so rare (she only has a handful of patients with the same thing) she really doesn't know what to expect from each of us or how medications will affect us.
tasana_55177 Tiger12
Posted
Thanks Tiger. I'm just worried that with the scar tissue been there it won't give me a problem as I had seizures in the Intensive Care Unit at the hospital when I was diagnosed and have had any more seizures Praise God as I really fear them . I'm really hoping the scar tissue doesn't affect that so I can come off the seizure meds
Tiger12 tasana_55177
Posted
Your welcome. I wish I could help regarding the seizures but since I haven't experienced them, I can't. I can tell you that we have tried to reduce my gabapetin several times without any luck. My head just doesn't seem to like the lower dose. However, I am on a lower dose than I was a year ago. I have upped my weight training and workout level and I have a feeling that may have something to do with it so I'm really not worried (and neither is my doctor). I see her again in January so we will probably discuss another game plan.