Please help is it CKD for sure or not??
Posted , 7 users are following.
Hi all,
Im 30 years old female.
So,my story is long but to make it short, I had 2 autoimmune diseases since childhood which resuls in severe chronic dehydration in my body. I was embracing it and adapting to it all these years, until a month ago where I was given a shocking news that I have risk of developping Kidney Failure!!
So I've done blood tests which shows: anemia, high cholesterol,thalesemia,
hyperhomocysteinemia,and severe deficiencies in the following vitamins: D, B6,B12,iron,potassium.
My GFR 61 and creatinine 105 umol/l
Now my albumin is negative in blood and urine.
Im in healthy weight plus I usually have healthy diet.
I don't have diabetes or high blood pressure.
I experienced recently mild swollen shoulders and arm and had middle back pain and sometimes kidney cramps in the morning due to dehydration.
I havent seen renal specialiast yet but my 1rst appointment is next week.
I read somewhere that gfr above 60 is normal unless having blood abnormalities but dont understand what does that mean?! Like is high levels of homocysteine and other test results mentioned above are considered blood abnormalities??!
Im really panicking in here! I feel asif my life went upside down all of a sudden and still cannot wake up from this shock! I wish to wake up one day to realise it was all a bad dream and not true!
My life was going sooo good full of achievements and success but my happiness was wipped away by this bad news!
Im struggling to know what to eat even at the beginning I stopped eating i felt like eating would kill me and i started starving myself thinking im conserving my kidneys for longer! Still havent seen dietitian yet and no clue of what to do with my diet .. I found Davita website online but I feel recipes are not enough and daily portions for each meal is very confusing i cant find enough resources on how much i eat protein daily or do i have to reduce salt ? Im totally torturing myself in here i stopped enjoying everything i eat food just to stay alive but I dont enjoy it ..
Please if anyone can reassure me based on my results and tell me if these results indicate CKD for sure or not!
0 likes, 54 replies
Dialysis57 abee30
Posted
abee30
Posted
Now I guess my post turned into a back and forth argument about Dialysis comment.. Dialysis may had good intention and I appreciate the long advice she has given me. Regardless It is just up to me to decide if I would go with Dialysis advice or not.
We are here to assist each other subjectlively without critisizing anyone. Everyone got a point on what you guys saying regarding Dialysis comment and I also appreciate that too, but let's end it there we all got the idea.
I have an appointment right now with my nephrologist for the first time and my last data for blood test done a week ago shows gfr of 65 creatinine of 100 and negative albumin in my urine my GP was happy with the result and im not yet diagnosed with CKD so I'm not going to jump straight forward to implement what Dialysis was saying about information regarding end stage kidney failure because I already searched deeply about all stages and well educated of what to do and what not to do... plus Dialysis mum experience may be different than mine plus her mum is older plus I am stricting to what my team of specialists say to me according to my situation plus plus plus....
Dialysis commented from what she thinks is right to do based on her experience with her mum but it does not necessarily apply to me.
I know she was very rushing the events like she was giving me an advice asif im dying now but it is her opinion and i respect it .
It did not affect me at any way.
Dialysis57 abee30
Posted
i don't expect much to come from your pathology results love, as your levels are only slightly elevated. I'd say they may just ensure your Dr makes you have regular pathology every 3-6 months and just monitor you for a few years. But it concerns me about your autoimmune disorders. But always trust your specialists. But education is power, and power is knowledge, and if you ever encounter a problem which I mentioned, you will be prepared and know what to do. Good luck ??
marj01201 abee30
Posted
I'm glad to hear this good news, Abee🐶
Marj
Guest abee30
Posted
Good job you are sensible! There are others who would have imagined the worse and acted on it.
Take care x
abee30 Guest
Posted
Hi Jane,
I was not yet diagnosed but I had just gone out from my first appointment with the nephrologist and told me I defo have CKD but I'm lots of crazy rare stuff going on in my body but what i understood is my type of CKD is different because I have to make my diet on the contrary of typical ckd patients.
She said drink plenty of water, you need to eat lots of potassium and do not cut red meat. But she confirmed im having renal impairement . She upped my potassium dose and asked me to do some specific blood and urine tests to find out the underlying issue. I may need to do kidney biopsy at the end.
Im keeping my hopes up now and trying to stay healthy as much as I can.
KenR abee30
Posted
Hi abee,
The good thing about what you are doing is that you are now'in the system' and having expert advice rather than a load of opinion which inevitably is from personal experience, and quite possibly not relevant to you. You might require some advice on diet, you know about keeping fit and keeping weight under control, it is easy enough to drink plenty, and take any necessary supplements. So go with the advice and you should be fine with your sensible attitude. Be a bit suspicious of any meds and antibiotics as many are not at all kidney friendly. It is quite easy to check this on the net.
Best wishes,
KenR
Dialysis57 KenR
Posted
So right there Kent, a lot of medications are very toxic - especially antibiotics! Also, try and limit or avoid any blood transfusions, and opt for iron infusions instead - as this will impact your placement on a transplant list. But that's years away yet!