Please help is it CKD for sure or not??
Posted , 7 users are following.
Hi all,
Im 30 years old female.
So,my story is long but to make it short, I had 2 autoimmune diseases since childhood which resuls in severe chronic dehydration in my body. I was embracing it and adapting to it all these years, until a month ago where I was given a shocking news that I have risk of developping Kidney Failure!!
So I've done blood tests which shows: anemia, high cholesterol,thalesemia,
hyperhomocysteinemia,and severe deficiencies in the following vitamins: D, B6,B12,iron,potassium.
My GFR 61 and creatinine 105 umol/l
Now my albumin is negative in blood and urine.
Im in healthy weight plus I usually have healthy diet.
I don't have diabetes or high blood pressure.
I experienced recently mild swollen shoulders and arm and had middle back pain and sometimes kidney cramps in the morning due to dehydration.
I havent seen renal specialiast yet but my 1rst appointment is next week.
I read somewhere that gfr above 60 is normal unless having blood abnormalities but dont understand what does that mean?! Like is high levels of homocysteine and other test results mentioned above are considered blood abnormalities??!
Im really panicking in here! I feel asif my life went upside down all of a sudden and still cannot wake up from this shock! I wish to wake up one day to realise it was all a bad dream and not true!
My life was going sooo good full of achievements and success but my happiness was wipped away by this bad news!
Im struggling to know what to eat even at the beginning I stopped eating i felt like eating would kill me and i started starving myself thinking im conserving my kidneys for longer! Still havent seen dietitian yet and no clue of what to do with my diet .. I found Davita website online but I feel recipes are not enough and daily portions for each meal is very confusing i cant find enough resources on how much i eat protein daily or do i have to reduce salt ? Im totally torturing myself in here i stopped enjoying everything i eat food just to stay alive but I dont enjoy it ..
Please if anyone can reassure me based on my results and tell me if these results indicate CKD for sure or not!
0 likes, 54 replies
KenR abee30
Posted
Hi abee,
thank you for your thoughts for CKD sufferers! Unfortunately it is a condition that you have to learn to live with, and few people go down the 'get better' route. I can see that you have plenty of advisors on the forum, but you are your own best advisor. Go to the Consultants with a clear set of symptoms, ask the questions that you need some answer about, and take it from there.
I would guess that your random pains, light headedness and fainting, headaches and so on is your body telling you that your general metabolism is out of kilter. Finding out why may be less simple. Eat sensibly, make sure you exercise properly, take rest to suit your age. Becoming physically fit is always a good thing to do. You sound as if you have tackled problems in the past and made a good life- being positive gives you your own support.
Possibly the only action I would take is to take my own blood pressure a couple of times per day to see how that is behaving. If it is very variable for some reason you can get headaches when it is high, and feel faint if it is low. You can take a record of the behaviour to your medical appointment. Again getting fit will often stabilise the levels, just dont go overboard in the gym.
Oh, and take internet advice with a pinch of salt!!
KenR
abee30 KenR
Posted
Thank you KenR for the advice I will 👍
Yeah unfortunately we have to live with all kind of autoimune diseases and all other diseases that is a result of.
Yeah at the moment I'm following healthy diet based on veggies and fruits and less salt. Apparently it is working since gfr has risen from 61 to 65 within a month knowing that it dropped from 61 to 58 in 2 weeks time then now in another 2 weeks it has increased to 65 which is quite impressive .
I'm physically fit and within healthy weight never been overweight.
I do walk daily at least an hour brisk walk and trying to keep it up.
We all need to stay positive and think of the best 😊
KenR abee30
Posted
I think that with that attitude you will be fine! If the docs say something needs fixing, do it and get on with life!
My very best wishes!
KenR
abee30 KenR
Posted
Thank you KenR my best wishes for you and all sufferers in the world! 😊
fran32391 abee30
Posted
So the sjogrens is your self diagnosis by using the internet? If I was you I would be more concerned about getting an answer as to whether you have Sjogrens or not. It can cause organ damage. True, there is no cure but it is absolutely not too late to treat. Too late is if you have organ failure and die. Your Dentist and eye Dr can help with the diagnosis. It just doesn't make sense to me that you are so concerned that you MAY get CKD someday when you have stated that you HAVE Sjogrens. I'm not saying you should worry about it, I'm saying you should do something about it. Why even worry about CKD at this point if you have Sjogrens like you say you do? You don't have ckd NOW. Why do you say you have Sjogrens when you haven't been diagnosed with it? Find out what you have, then, if that's how you deal with things I guess you can worry. You really need to find out WHAT is wrong with you. You need answers from your Drs.
abee30 fran32391
Posted
Hi fran,
Well you're absolutely right in this point. Sjogren wasn't just self diagnosis.. first it was suggested by my GP but then I visited immunologist who didnt give me an absolute diagnosis and never came back to me.. my optemetrist and dentist both told me ur dryness is a cause of sjogren nearly most of doctors are mentioning sjogren to me but on my all my medical reports it says history of Sjogren undiagnosed. Specialists since i was baby until now never gave me an answer for even a name for my disease like even they did not even mention to me autoimmune disease until recently by GP.
My specialists I feel are trying to get around it and ignoring it all what they keep saying we still don't know. However other specialists like dentist and optometrist tell me it is Sjogren then at that point i decided to search it on myself and compare ny symptoms with all other autoimmune diseases and my self estimation is sjogren unless there is a rare disease that is similar that I haven't found .
Yesterday I had an appt ny gfr increased from 58 to 65 in 2 weeks time no albumin in my urine. So it is good news still seeing nephrologist next week
Keeping my hopes up
fran32391 abee30
Posted
Abee,
Ideas the comment Dialysis57 made to you, EXCELLENT!! I have nothing else to add and I'm so glad you plan to heed her warning to be verycarefull. Since I have delt with these autoimmune diseases all my life, add to it I had ovarian cancer, got CKD and an aneurysm, I was desperate to get you to take this serious. I was trying to explain the importance of treatment. I failed but am so greatful to Dialysis57 for explaining it so well. You just have to stay on top of it. You sound like a strong person, I'm sure you can do it. Wishing you the best.
Dialysis57 abee30
Posted
Coming from a specifically trained Dialysis nurse, trust me, your creative levels are fine - at this stage. Without knowing exactly what auto immune diseases you have, it's a little difficult to give a lot of useful advice. But acute, chronic renal failure creating levels are over 1000 ummol/l!!!!! So trust me I need saying, if you've been told, was it by your GP? Autoimmune specialists? Also due to not knowing this, again, difficult to give advice.
Basically, as simply as I can explain it, your pathology is probably full of "outside of the normal parameters", which then alerts whoever ordered the pathology that in your case, your albumin and creatine levels were slightly elevated, and due to having another medical condition, the Dr is airing on the side of caution.
I would definately [u]NOT PANIC[/u] at this stage, as I previously stated, hitting over 500->1000 is either the "normal" ranges for chronic or end stage kidney failure, and by that time, you would [u]definitely be on some form of dialysis- whether it be peritoneal or hemodialysis!
In regards to renal failure, I'm sure if you google "renal diet", you will have plenty of advice of what is allowed, and foods to avoid![/u] Basically, start fluid restrictions. No more than 1500mls per 24 hours. Monitor how much you urinate out, and measure it over the 24 hour period at the same time. They should be fairly close - as the body will naturally retain a certain amount, and you will excrete any excess toxins etc via urine. The main aim for fluid restrictions is to help your kidneys and heart not to have to work any harder than they already do, and if your not excreting or voiding much urine output, this explains why your creatine and albumin levels are elevated (as the body hasn't been able to cope with all the fluids you've drank within the day etc, so if kidneys and heart cannot cope, the body will retain the fluid, despite it being toxic and that's where kidney failure starts. So keep in mind [u]two things. The heart and kidneys are the most important vital organs you need to be thinking about IF you are diagnosed with kidney disease. [/u]A lot of CKD patients die of heart failure, despite dialysis, IF THEY DO NOT COMPLY WITH FLUID RESTRICTIONS. So picture your hearts a stretchy elastic band ok? Now say you drank 2.5L in a day? The heart (or rubber band) stretches, and then when you urinate or have dialysis, it removes the fluid, and the elastic rubber band then shrinks back to its normal size. This is why every CKD patient is so compliant with fluids, because say if your stretching your heart muscle every day, the process of stretching, then having it return to its normal size (after urinating or dialysis), then it makes the walls of the heart muscle weaken n thin - and then it's too late, because you cannot "undo" the damage and then go into heart failure, resulting in death. It's quite common, especially in the elderly, for people to get to the point that they've just had enough. They are sick if the vomiting, the restless legs, the multitude of problems that can occur from dialysis, like when they get sick of being poked, prodded, or in our case, we either had to travel 200km each way to a dialysis unit every second day. You get to a stage where your veins end up collapsing after years of having venipuncture (pathology or drawing of blood), and the only control they have is their diet and fluids! So if they've had enough, they'll become non compliant, drink way past their prescribed fluid intake, eat high potassium foods, such as greens, bananas etc, and ensure that they live life how they want to, especially after sticking to a very strict regimented diet for >10 years etc. The
heart has been stretched n unstretched to the point that even with hemodialysis, you can only remove 4L/24 hours (recommended daily limit), because if you try to remove too much fluid too quickly, via hemodialysis, the body cannot cope with the strict and sudden fluid shifts, and basically, both organs shut down, and they knowing full well, to expect their life expectancy to be only a matter of a week to two, stretching it to three weeks at the most. [u]So get in first, and restrict your fluids now, and remember.... solid foods can count as fluids ie: soups, grapes, watermelon etc. So if you do become diagnosed withCKD, you will automatically be referred to, and put on a "renal diet"[/u]
Getting back to dietary intake, really, the only rule is as above - remember some solids can turn into fluids once ingested, and secondly [u]POTASSIUM POTASSIUM POTASSIUM.[/u] You need to keep a very strict, low sodium (helps reduce getting thirsty as well), and stay away from as much potassium as possible. Google "foods that have potassium) otherwise known on your pathology results as K+. The rich K+ foods are broccoli, spinach, anything GREEN contains potassium, certain nuts and bananas!!!!!!!! You do not have to never eat them again - nothing that dramatic, but say limit yourself to say 1 banana a week and according to your dietician and specialists recommendations, probably 1-2 serves of small greens.
Now, in addressing albumin levels, they may or may not start you on aluminium tablets. You can buy them over the counter now, but are cheaper on script. And nowadays, they have much better medications for this. When my mother was first prescribed them, she'd have to take like 3 large tablets, three times a day! Now, they have tablets designed to take once daily......I've forgotten specifically what the medicine was called now, I do apologise for that. But your nephrologist will prescribe whatever you need. But IF you are prescribed the over the counter aluminium tablets, it is normal to expect some memory loss. We jokingly called my mum "Dory"! After the forgetful memory of the fish in the children's movie "Nemo"! But again, with the introduction of newer medications, those side effects have been minimalists, if not removed altogether.
You are, like my mother was, going to be a very complex patient, due to having multiple health problems. So it's very very important to find a nephrologist you trust implicabely! Your nephrologist and your Autoimmune specialist will have to Co-treat you. Unfortunately for us, our nearest dialysis unit hospital was a six hour ONE WAY drive! Being an RN (Registered Nurse), came in to be a vital skill for us being so isolated and remote! No local hospitals or even larger based hospitals would accept my mother as a patient, unless [u]I remained with her at the hospital AT ALL TIMES 24/7 and I had to attend to her dialysis. NEVER EVER LET ANYONE, and I mean ANYONE, touch or access your fistula (if on hemodialysis, or pirtacath ( if you're on peritoneal dialysis). ALWAYS REMEMBER THEY ARE YOUR LIFELINE!!!!!! IF SOMEONE NOT SPECIFICALLY TRAINED IN CKD UTILISES THOSE DEVICES THEY CAN EASILY INTRODUCE AN INFECTION AND YOU WILL BECOME SEPTIC AND IF NOT PICKED UP AND TREATED IMMEDIATELY - RESULT IN DEATH!!!!! I CANNOT STRESS THIS ENOUGH!!!! ALWAYS LISTEN TO YOUR NEPHROLOGIST FIRST. For eg: one occasion my mother had surgery, once she came out, into the recovery unit, I'd be there, ready to dialyse her. Because they were untrained, and mum was unconscious, they'd try n hang IV fluids and push those bags in at like in 4-6 hours!!!!!!! As you would, as a surgeon, prescribe this, as part of protocol for a normal person. Our nephrologist told me to do as HE SAID ONLY! And yes, I fought with staff and had to confront Drs, and on occasions when they refused to listen, being an RN, I WOULD MANUALLY REMOVE THE IV, UNLESS THEY WOULD RUN IT SLOWLY OVER 8 HOURS.[/u]
I highly suggest you get a partner to train, attend all appointments etc, in case you get yourself into a similar predicament! Be aware, as although your immunologist, surgeon and nephrologist may all have created a plan for you post op, sometimes, the surgeon in ICU who happens to be on duty, has no idea of your history, come along and think, that IV, shouldn't be over 8 hours, and will cancel that previous medications and instruct nurses to push fluids. So it is essential to have your partner with you at all times! And they need to be of a very strong, independently minded and probably authoritative manner - in order to challenge the ICU nurses, override and even fight with your surgeon or the designated, untrained surgeon or resident on call for that unit!!!!!!!
?You, having already being immunocompromised, know the importance of strict hygiene. IF YOU ARE diagnosed with early onset of kidney failure, DO NOT PANIC! It is a very long road until you hit the above road bumps. But I would DEFINITELY ensure you relocate to an area, that has a hospital, where your immunologist, nephrologist and GP are affiliated or work at the same hospital. This will eliminate your partner having to attend and stand up and intervene against untrained hospital staff. If say, "everyone" is I need the same hospital, they will work together as a team. Ensure your located close enough so as not to require costly stays in motels etc. Financially, it almost broke us, being six hour drive away from our specialists! We had to stay for up to 6 months at a time in motels, and having to buy meals etc was a major expense. Especially being a single mum of 3 year old twins and a 2 year old. As in between dialysing, I'd home school them in mums hospital room. Ensure THE HOSPITAL YOU PICK HAS A DIALYSIS UNIT, so your partner gets a bit of a break. The hospital will attend to your dialysis, and you'll be co-treated by your specialists by your own specialised "team". Remember, your a very complex patient, not a normal CKD patient.
LASTLY (you must be sick of reading by now), [u]ensure you have PRIVATE HEALTH INSURANCE![/u]
I really hope I haven't scared the living day,ights out of you. Almost all iCKD live great, uncomplicated lives, with minor adjustments in diet and fluids. You can even, if confident enough, between you and your partner have peritoneal dialysis machines specifically designed to dialyse you at night, slowly over eight hours whilst your sleeping, and you disconnect when u wake, and go off to work with no major life changing measures having to be implemented! People here in Australia travel around doing seasonal work, and have dialysis set up in the boot of their vans etc, so DO NOT think of the worst! It's only that I feel you are quite a complex patient, that I have gone into such great detail - as you don't just have ONE specialists to "work with", but, like my mother, numerous!
But it knowledge is POWER! Educate yourself and ensure your partner is also educated - in the event your ill, or unable to be in a position to handle a situation yourself (ie: due to a trauma, accident, fall etc". Also, IF, and that's a big IF, ensure you have a medical bracelet stating your conditions, so paramedics know, in the event your partner isn't available at the time. Keep an updated daily diary. Have a full, very very detailed comprehensive medical folder so say if you have too many illnesses to have engraved on your medical bracelet, have "in capital letters "VERY COMPLEXX PT. SEE GREEN FOLDER BESIDE BED IN TOP DRAWER" or something similar. So that even the most uneducated person, can pick up that folder, can read all of your illnessses, your specialists, their contact numbers, NOK (next of kin/partners number), and a detailed history. They should Ben able to read that folder and take you to the appropriate hospital where your specialists are, advise them you have a portacath or fistula. Often, if going via ambulanvpce, you'll go through to the Emergency Dept first. This folder will be your lifeline in the event your partner isn't there. The residents of Drs working that shift will immediately contact your specialists and you'll find, they will often come in to specifically treat you, rather than give orders to Drs who (and don't get me wrong, brilliantly trained and capable of dealing with ANY trauma, but don't know YOU!) This is why you need private health cover.
i hope I've helped you out somewhat. I know I've sounded serious, and have mostly focused on the worst possible scenarios, but it isn better to be prepared and know now, rather than like us, learn things the hard way. If you have any further questions, please don't hesitate to contact me.
Good luck! Live, laugh and love. And trust that God will never give you anything you cannot cope with. Pray for the best, prepare for the worst, and take what comes!
Dialysis57
Posted
And sorry for the typo mistakes, auto correct on my phone has made my spelling look horrid!👍👍
abee30 Dialysis57
Posted
Hi,
I greatly appreciate the effort and time you dedicated to write me these advice. I am very grateful to you and can't thank you enough.
They were quite useful as I didn't know most of the info you mentioned although I'm trying educating myself about CKD.
And no I haven't freaked out actually but the things you've just told me I really want to know more and try to be positive at all time as being in denial isn't much of help instead it is harmful to my health.
I will take every word into consideration and keep it in my mind at all times.
Thanksfully I live in Sydney CBD so It isn't a problem regarding being close to hospital.
Im very sorry for the hassle you were put into and the hardships your mum and you went through I hope she gets better soon my best wishes to her.
Again thank you very much and will update you if anything comes up 😊
And oh, don't worry about typing mistakes it happens with everyone
rick39522 Dialysis57
Posted
Was a nice detailed note, but you totally confused me about something. You stress, more than once, the importance of fluid restrictions so that the kidney is not "overworked", etc. Perhaps you mean this for a person in a late state of renal failure? I ask this because every member of my medical team (my kidney doctor, my primary care, my urologist, my oncologist) stress very strongly that I should "drink, drink, drink". A minimum of 70 ounces per day.
fran32391 Dialysis57
Posted
marj01201 rick39522
Posted
Good point, Rick.
I was surprised to see such explicit advice given in a post here as each case of CKD needs to be handled so individually. In addition, I would expect a medical professional would be extremely careful not to give that sort of advice without knowing detail about the soecific situation.
It is helpful to have a better understanding of the reason why those restrictions are placed in some treatment plans as well as the clear, strong connection between renal and cardiac health. In addition, it was helpful to hear suggestions about how to handle hospital stays; the green file folder with additional information was a great idea. Also the importance of our nephrologists being the lead doctor is likely excellent advice for most, but certainly not all, of us. Nevertheless, that portion of the post underscored for me the importance of my decision to sell my house and move to Kansas City where my nephrologist is located. He is affiliated with the University of Kansas Medical Center. So that would be the hospital I would go to should I need to be hospitalized. They have been recognized nationally for their nephrology program and so can provide dialysis while I'm hospitalized should it come to that. And, I had already planned to find an internist for primary care who is also affiliated with KU Med so they would all be in the same system. Thus, that portion of Dialysis's post was extremely helpful for me, personally.
However, I prefer to gather Medical information specific to my case explicitly from my own medical team. As I arrive for my appointments with questions, I always include a few that focus very specifically on that sort of patient education. The better I understand all of this, the better job I can do taking care of myself at home.
Anyway, I would definitely keep doing exactly what your doctor tells you; I will do the same. I sincerely hope we will all do the same.
Marj
Guest marj01201
Posted
Agree Marj!
Personally I certainly wouldnt tell anyone I was medical, 😉
We can offer support, some advice but indivual treatments and recommendations have to be from the persons own Doctor/ healthcare team.
fran32391 marj01201
Posted
Marj,
From what I gathered, Dialysis57 was talking about being an autoimmune disease patient ALSO having to deal with CKD. Having autoimmune disease on top of CKD changes the game big time. I have been prepared for the challenges I will be facing so I must say I agree with her. I have been told my case is complicated. I am a diabetic with an aneurysm, high blood pressure and several autoimmune diseases that also has ckd. A CKD patient with with what they call comorbidities, I'm told I'm not the typical CKD patient. I've come to terms with it and also realize my treatment will be different from many CKD patients. Dialysis57 can correct me if I'm wrong but I understood her to be giving abee a sneak peak, kind of prepare her for what is to come. If I was abee I would be SO great full for the heads up. Knowing I believe will prepare her and take out most of the fear. Dialysis57 's Mom had an autoimmune disease and CKD so being a nurse for her Mom allowed her to experience this first hand.
We have these "soldiers" that should fight to keep our bodies healthy, in our case these "soldiers" attack us at every opportunity they get. We have to be handled differently is all. She was talking to abee, not to all CKD patients. From what I understood.
God bless her for guiding abee. Hope abee makes a hard copy of her post to use as a reference.
rick39522 marj01201
Posted
As usual, I totally agree. No matter how great the advice and experience of others that write on this website and others, I never change a thing without telling my "team" first. As you say we are all different.
?I was just surprised to hear to avoid fluids when after each of my visits, to all of my doctors, that last thing they say to me as I walk out the door is "drink, drink, drink", lol. It is to the point that now I even joke with them as I am leaving "do not say it...I know...drink, drink, drink".
marj01201 fran32391
Posted
That may well be true, Fran. Regardless, a private message may have been the more appropriate way to share that sort of information. And, I'm still surprised to see any post in a forum like this that includes such explicit medical recommendations. Those recommendations were made without the benefit of medical labs and do gorth.
Marj
abee30 rick39522
Posted
abee30 fran32391
Posted
Exactly being a patient with 2 types of autoimnune diseases and now possibly having CKD is going to make things very complicated for me but I am not going to freak out at this point if I'm not yet diagnosed... I really appreciate her advice and it was quite helpful to me in many ways.
I will keep my hopes up and try to be positive about it and deal with it momentarily
fran32391 abee30
Posted
So as not to get anyone's panties in a bunch I am including the following disclaimer:
DISCLAIMER:
This comment is not intended for all CKD patients, only ffor abee and those who also have an autoimmune disease that COULD and will likely complicate their CKD. It is also not for anyone who finds it difficult understanding that not all CKD patients receive the same treatment. I am not a doctor or therapist.
Having both diseases will complicate your condition so I would suggest learning as much as you can about both but also learning what the results of having both will be. Knowing what to expect will cut down on your chances of experiencing some bad anxiety or depression. You will have time to digest the information as opposed to searching in a state of shock over the latest findings.
I must say that the comment made by dialysis57 was fantastic! I believe anyone with both of these conditions would find it very helpful so I highly recommend reading the comment she made to abee. Especially coming from a Registered Nurse with training and boo-coos of experience with both CKD and autoimmune diseases. I am the 4th person in my family to have Connective Tissue Disease, the second to have both diseases. Don't loose hope, it will take work, patience, and endurance but you can still have a full active life. Like I've said, I am familiar with both disease so her comment made perfect sense to me. If any of you struggling with both of these diseases have any doubt I suggest you gain a little more knowledge as to how the combination of both of your diseases affect each other. I'm quite confident that after doing so you will agree with me.
Abee, you are so right, there is no sense in getting out of sorts until you find out what is going on in that body of yours. God knows you have enough to deal with by having the 2 diseases you already have and the high possibility of getting more. Enough is enough, right. Continue to stay positive! May God be with you.
fran32391 marj01201
Posted
What information was inappropriate about that post. We're all adults and used to reading medical information, about labs, diets, dialysis, death, etc., etc., etc. I just don't understand. What are you talking about?
Yes, the recommendations were made just like all the ones we all make. We all make recommendations according to our opinion. Like how I've recommended someone should focus on treating anxiety. And I'm no Dr or therapist, it's just my opinion. That's what all of us do, state our opinion.
I have another recommendation: For those in stage 4&5. I think it would be to your advantage to decide who will look after your children if you have heart failure.
Guest fran32391
Posted
Fran! What a comment!
"I have another recommendation: For those in stage 4&5. I think it would be to your advantage to decide who will look after your children if you have heart failure."
I'll just go let my kids know im trying to decide who will look after them for when i might have heart failure!
Seriously??
Yet another post to unfollow!
Guest Dialysis57
Posted
The first mistake!
"it's a little difficult to give a lot of useful advice. But acute, chronic renal failure creating levels are over 1000 ummol/l!!!!!"
NO THEY ARE NOT. Maybe in AKI or failure! Cettainly not CKD..
Second:
"previously stated, hitting over 500->1000 is either the "normal" ranges for chronic or end stage kidney failure, and by that time, "
NO ONLY IN AKI OR FAILURE! Not CKD
Third:
"A lot of CKD patients die of heart failure, despite dialysis, IF THEY DO NOT COMPLY WITH FLUID RESTRICTIONS"
So wrong yet again!!! Only End stage renal failure or AKI ... not all CKD ... I think you should really be more clear on what you mean.. this could potentially panic a person in CKD stage 2 3 4 as it is wrong.
Im not going to point out all the other mistakes there are lots!! I believe the intention was good but it is also potentially scaring those who have a diagnosis of CKD without end stage kidney disease.
You started off by telling Abee her kidney function was normal then went down the road of telling her about diets ,restrictions buying albumin suppliments and dialysis options???
I dont know if you really are a registered nurse or whether you just helped your mum with her dialysis, it seems a bit strange you would advertise it and then go on to promote health plans and treatments. It would go against the professional code of conduct here in UK. Maybe its different in OZ?
marj01201 Guest
Posted
Thanks for taking time to respond with such detail. You captured what was on my mind as I read Dialysis s initial post.
Marj
Guest marj01201
Posted
How do we send a private message? Could you please pm me so I can contact you.
Many thanks
Dialysis57 rick39522
Posted
Depends what level of CKD your in, and how healthy you are. You sound quite healthy and not as complex as the lady above, plus, you may still have a residual output (able to pass urine normally). In this case, there's no need for you to require constricted fluids. I hope that makes sense
Dialysis57 fran32391
Posted
Exactly Fran, a lot of the advice is directed to specifically complex patients, and I always ensured she understood to always seek medical advice, but having three complex problems, means three different Drs! And each must work together for the best outcome for her. Fran? I totally understand how hard it can be having so many co-morbidities - and my post, for those who are critical, is aimed and targeted for that small percentage of highly complex problems. A normal CKD patient is easy easy easy, and if she hadn't have had two immune disorders, my advice would have been more simplistic and not so detailed. But knowledge is power, and it's like telling a smoker if they quit now, they won't get lung cancer - just advice and letting her know what is can be like. It's hard enough having CKD, without other medical conditions on top of this, and unless your in that small percentage, you wouldn't understand. But for that small percentage that are very complex people, if anything can have that 0.01% side effect? They will get it! So advice is different for everyone. Each patient is unique and requires different advice!
Hang in there Fran, my mother has passed, but I know how sometimes when like my mother, she never drank or smoked, was also a RN, so always cared for others, and was then dealt with a huge pulmonary embolism which sent her into acute renal failure overnight! Sometimes it's very taxing, and you feel you can't possibly take any more things going wrong, but hang in there! Good luck, and happy to chat anytime
Dialysis57 rick39522
Posted
its fine to drink if you still have a residual output of 500mls and over a day....but for kidney patients who no longer pass urine, it's EXTREMELY important to adhere to your Nephrologists recommended intake.
fran32391 Dialysis57
Posted