Please help me I'm so desperate :(
Posted , 5 users are following.
please can someone help me! I've been losing hair for 2 years and am so scared now.
i had m tsh tested 2 years ago which was 2.14 then one year ago it was 1.1 6 weeks ago 2.1 and today 1.75
my free t3 is 4.3 and my t4 is 13.3
is this something to be concerned about? Please help x
1 like, 63 replies
gill43753 abby57911
Posted
I'll send you a private message.
Gill
jean34329 abby57911
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It seems to me that you have a thyroid disorder possibly underactive but it is treatable. What does your dr say about your blood results?
Do you have any other signs and symptoms?
Others on this Forum are more knowledgeable than myself so if you hang on in there I am certain that you will get more information from others. I the meantime please try not to worry. JeanJean
abby57911 jean34329
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jean34329 abby57911
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Please do not despair. There are other doctors who DO know about the thyroid. Are you in the UK?
Have you got or can you get copies of your blood results?
With respect drinking alcohol is not a great idea for anyone.You can PM me if you wish.
Jean.
barbara98940 abby57911
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Serum free T4 range 9-19)
Serum free triiodothyronine (T3) range 2.6-5.7. So you can see that your results are all within the normal range for my lab in the UK. US ranges are roughly similar but do differ a bit. Thus I would agree with your doctor that it isn't a thyroid problem.
So we're left with the question 'what else could it be?' Are you anaemic? Need to test Ferritin (stored iron) level as well as iron levels.
Also have you been tested for Lupus (SLE)? Reynard's syndrome can be associated with it.
Also stress can lead to hair loss.
abby57911 barbara98940
Posted
Tsh - 1.75 reference 0.27- 4.2
Free thyroxine t4 13.3 reference 12- 22 ( does this seen low?)
Free t3 4.3 reference 3.1- 6.8 ( again is this low)
My ferritin is 47 ive been taking iron but my hairloss has doubled!!!
Please help
jean34329 abby57911
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abby57911 jean34329
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jean34329 abby57911
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I think that you need to correlate your thyroid hormone levels with the medication you were taking at the time.
Jean
abby57911 jean34329
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barbara98940 abby57911
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I believe anaemia can cause hair loss and given your low Ferritin level that might be worth investigating.
As you TSH is towards the lower end of its range, your pituitary gland (which produces TSH) thinks your body doesn't need more thyroxine and your free T4 and T3 results are within range and bear this out, although as you say, both T4 and T3 results are towards the lower end of the range. At these levels I would not have expected you to be experiencing severe hair loss. Are you missing the outer section of your eyebrows? (It is another symptom of hypothyroidism). Apart from hair loss do you have any other symptoms?
jean34329 barbara98940
Posted
In the US I understand that the values for the ferratin level are much higher.
As are the Vit D levels.
I will try to get confirmation of the above.
A low ferratin can cause nerve damage and peripheral neuropathy f untreated so obviously it is of paramount importance to get the condition treated asap.
abby57911 barbara98940
Posted
My tsh has fluctuated from 2.4 / 2.1/1.1/now 1.75.
I have been on iron supplements for 7 weeks and my hairloss has doubled! so im scared to carry on taking them.
I have other symptoms such as raynauds - numb finger tips, i put o weight very easily, and i get a very puffy face say for example i have been drinking on a friday and sat night. Also my head is very itchy.
I have had a scalp biopsy which shows no sign of androgenic.
I have read that TSH can be within normal range - but T4 being low can cause problems?
abby57911 jean34329
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jean34329 abby57911
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gill43753 abby57911
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You're obviously getting very distressed over this,so my earlier pm wouldn't have helped.Apologies.
First of all,how old are you? Do you have any other really noticeable symptoms? Is your skin a problem anywhere else on your body,or only on your scalp? Do you have spots on your scalp? What is your heat/ cold tolerance like?Do you sweat a lot,either during the day or at night? Do you have stretch marks on your tummy? How much do you need the loo?
Don't panic because I'm asking these things.I'm just trying to get a full picture. Gill
abby57911 gill43753
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I need a wee alot! And go to the toilet quite a bit. I have had a scalp biopsy which shows my hair is growing at the normal rate but it's getting thinner by the day and falling out around me. I started take high doses of inositol 2 and a half months ago and now onto 7 weeks of ferritin. My hairloss has doubled. It's very distressing!!
gill43753 abby57911
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abby57911 gill43753
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gill43753 abby57911
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The reason I asked those specific questions is that excessive sweating,hair loss,stretch marks ,overheating can be attributed to a pituitary gland problem,which I have had.I had Cushing's disease,with very noticeable symptoms of the ones I mentioned.You don't seem to have those.
I did exactly as I've suggested you do,with a list,photo etc. Hopefully your doctor will do a load of blood tests.You do need to see your doctor,as we can't diagnose this on here.
Hope you're tested soon,to ease your mind.All the best,Gill.
jean34329 gill43753
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I agree. I have just sent a PM advising Gill to go back to her dr and enquire about Adrenal stress and also pituitary glnd screening.
I strongly advise others to in the same situation to do the same because we cannot diagnose. Just thought that I would add my coments.
Taking supplements is all right provided ones medical practitioner(s) are made aware of the fact.
jean34329 abby57911
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I would encourage you to see your dr. You need to be assessed by a healthcare professional.
You say you take high doses of a supplement.
Does your dr know/
Jean
abby57911 jean34329
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Going to stop inositol just in case. I think I am just doomed and subject to depression forever
jean34329 abby57911
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Stop being so defeatist. You need to see another dr. Ask for a gynaecology referral. Are you in the UK?
abby57911 jean34329
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Biospy have shown no signs of androgenic so it doesn't look like high amdrogens. In going to a naturpath next week perhaps I need to do my thyroid anti bodies. I just think my t4 is on my Low side. But maybe that's nothing to do with it. It's hard not being defeatist now I dont know where else to turn
jean34329 abby57911
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I strongly advise that you tell your dr about this.
I note that you have not yet had your thyroid antibodies tested or any antibody testing. This may reveal something. Cortisol levels can vary throughout the day.
I assume that you have been checked for diabetes.
What about Sjogrens sydrome?
Don't give up.
Take care.
Jean
jean34329 abby57911
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How tall are you? What is your weight?
Are you under or overweight? Need to be careful with the supplement you take as it can cause diarrhoea especially at the very high dose you take. Does your dr know of this supplement in relation to the verynhigh dose you are tking? Diarrhoea can weaken you and obviously essential nutrients are lost during the elimination from the bowel. The nutrients are not being absorbed putting you at a risk of an electrolyte inbalance. Anorexia is a serious condition if that is what you have. As another member has stated we do not diagnose.We will support you though.
please see your dr.
Hope that helps. Jean.
gill43753 abby57911
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abby57911 gill43753
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About my nutrients. Recently I have had diarrhea perhaps its the inositol. Admittedly that's so silly of me. It's been 3 months since I started and just about the time a telogen effluvium happens again.
abby57911 jean34329
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Just unsure as to carry on with the iron even though my ferritin is 47
jean34329 abby57911
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Sorry Abby what does the above mean?
Please check with your dr about the iron, the supplements and the diarrhoea. Have you been tested for coeliac disease or any food intoerancea . Gluten perhaps, wheat, yeast, soy, cows milk ec, etc. Plls see your dr.
perhaps your jon is stressful?
Jean
jean34329 abby57911
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Perhaps your job is stressful. Jean .
abby57911 jean34329
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You updated on my journey. My job is new and my hair has been falling for two years so I can't put it down to that x
jean34329 abby57911
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Have you been exposed to any chemicals in your past or present working environments ?
jean34329 abby57911
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Diarrhoea reduces the ability of the bowel to absorb vital nutrients, without which your body may suffer hgenerally.
Iron is not to be messed around with!
abby57911 jean34329
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Chemicals no ::
jean34329 abby57911
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What do you mean. Please write everything down in bullet form, leave a space then when you see the dr giv him a copy. On your copy wirite down his or her comments.
It is important that you tell your dr about the extra Vit B8 aka Inostitol.
Supplements are not to be messed around with neither are OTC or prescriibd drugs. Have ou taken any antibiotics at all?
Have you heard about antibioic toxicity and/or the dangers of fluroquinolones?
Are you eating the right foodstugffs?
Have you got IBS?
I would advise a food intolerance test.This should be easy to arrange in London.Shop around for prices and also check out the qualifications and experience of the people advertising the same.
Jean.
jean34329 gill43753
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Kind regards
Jean
abby57911 jean34329
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jean34329 abby57911
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Please ask your dr.
I just know that pruging oneself is very dangerous.That is one of the main reasons why I keep on and n to see your doctor.
Your iron levels need checking anyway whilst taking prescribed iron.
Why are you anaemic?
Others on this Forum may know.
Sorry.
Jean.
abby57911 jean34329
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Not so silly. My heads all over the place
jean34329 abby57911
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You are not silly.
If you were you would not be writing to this Forum.
Now then. I would advise stopping Inostil and the prescribed iron
for now. Stopping these until say Monday when you can see your dr is not going to harm you. You could ring the OUT OF HOURS OR 111 for advice. ASK 111 to let you speak to a NURSE or doctor.
This is in relation to the diarrhoea.
Jean
gill43753 abby57911
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LAHs abby57911
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abby57911 jean34329
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The inositol but what happens if I stol
The iron and my iron levels drop again? Should I stop
The iron for a week or maybe try a lower dose?
barbara98940 jean34329
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abby57911 barbara98940
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Confused as to whether its inostil or iron causing more hairloss. I know my thyroid is in range but they are at the lower level and I've heard lower levels can cause problems. Could this be the case? What further testing so I need that may be causing hair loss? Should I rule out thyroid with a t4 at 13 lower end of the scale? My tsh fluctuates from 2.4 down to 1.1 is this not pituatory?
barbara98940
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barbara98940
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abby57911 jean34329
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abby57911 LAHs
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jean34329 abby57911
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jean34329 abby57911
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barbara98940 abby57911
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As to is it inostil or iron causing the hairloss - it could be neither! It could just be a co-incidence. There is a saying with regard to things like this: 'correspondance does not mean causality', which means, 'just because something happens at the same time doesn't mean it is caused by it'. Hence the reason I am asking you to get other vitamins and minerals checked. There is something called iron deficiency anaemia, which could be the cause of your hair loss as you have a low ferritin level and is why you have been prescribed iron tablets.
jean34329 barbara98940
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I agree with you. Abby has disclosed the fact that she is taking way above the recommmended dose of Inostil, I am of the opinion that that is the problem.
I think Abby is on the right track when she says she think she will stop both. This can do no harm until she seeks medical advice. There is no reason why living in London she cannot get immediate advice.
Abb really does need to seek urgent medical advice.