Please help me, my life's a misery

Have you done an elimination diet?  I have a very severe maltodextrin intolerance.  I'm not the only one - I started a page on Facebook and about 500 others have joined.  It's not a real common problem but it is occurring.  Medical professionals do not want to acknowledge it and we occasionally have some chemists join the group who are insistant that maltodextrin never causes any kind of problem for anyone at all.  We figure they are involved in the industry.  My intolerance crops up several hours after eating something containing maltodextrin and causes explosive diarrhea for about a day or two.  Most diets are laden with maltodextrin these days however.  We have to read every ingredient of every label.  Maltodextrin is considered organic.  Gluten intolerance and dairy allergy, sometimes lactose intolerance, can cause similar issues.  Also colitis and Crohn's Disease.  There are a whole slew of things that could cause it.  You're going to have to keep a food diary and do an elimination diet on your own.  Good luck!    

Dan81454

Sorry to hear about your situation, being an older gent I know how these things can snowball. I've had IBS for 30 years now and it's always started by either too much stress, coffee, alcohol or fatty foods.

In your case I'm ruling out coffee and alcohol. I know it sounds daft but there are good reaxation CD's out there that will help you relax but the best is excercise. The bowel works best when we move and not just sit on our backside.

Can I also suggest that you take some bio yogurt in the morning, I also take a product called Bio-cult when things get bad. I know people say these things are a croc but when you have very loose movements you need to replace the good bacteria in your bowels.

If you don't have blood in your poo and you have been checked for celiac just chill and eat well, no crap mate. We all worry these days just eat well excercise every day and take some time to relax and think of good things.

If you are still unsure just talk to your GP.

Hello dan my deepest condolences for your illness I too have had my life turned up side down because of this horrible syndrome.i have gotten clinical  depression and anxiety,the real kind not the kind that people joke about.my self esteem is almost all gone.seeing my peers be prosperous and I at a stand still because every thing is much more difficult to achieve with our handicap.as you know every situation now goes right to my guts.weather a good or bad situation I feel it.its to the point where just emotion will give me aches.as I write this I feel a pinch on my right groin because I feel bloated,which in turn will make my right leg feel weak.dont know what else to eat that won't give me those pains.tried and tried.all I can do is wait until it decides to lessen.leaving me with more anxiety and depresseion about having this illness.its a viscous circle.i don't know if you live in the u.s but the one thing that has helped me get by is medical cannabis.it seems to slow my gut down a bit.which allows me to catch my breath from the anxiety.it has allowed me to have some time where I can manage a bit and keep my job.if it is in your means you can look into it.i was never a cannabis guy but I had no choice.i have felt shame over it,because of the stigma of the negativity however it was/is my last resort.i do feel you're pain and frustration in life.i just hope that one day soon dr's can find somthing that works as good.i wish you all the best in you're battle with this illness. please hang I thier friend.                            

                                     Josh

 Hi Dan- I can see why your life has become so miserable.  I have been there too...  The one thing that I found that helped me so much is taking probiotics and also drinking Kefir -- which is in the yogurt section of most grocery stores. Also, eating yogurt (ones with less sugar content) can help improve the ratio of good/bad gut bacteria which will help lessen the trips to the bathroom.  Doctors did not help me much.  I just took it upon myself to do some research and try options that I knew were safe, etc.  I am doing so much better!!  I have not had a chance to reply the other replies to your post, but just wanted to thrown this info out to you.  Also, in looking back at my situation, stress was a part of it.  So anything you can do lessen your stress, will definitely help things.   Good luck!  Hang in there -- and don't give up.

Hey

I have ibs too as well as coeliac disease and occasional anxiety (which never helps the ibs and one can easily feed the other).

My ibs has been debilitating at times and I've never found anything that prevents it. I appear to have different triggers.

I have found that it can be controlled but the control methods vary for each flare up.

The main thing I wanted to help you with is that I found this difficult at uni too. However, it helps to disclose this information to your course lead or welfare worker and take along some evidence (like a doctor's note). I was allowed to sit exams in smaller rooms close to toilets and had support when I needed to miss lectures (provided I informed them and didn't just do a no show).

I have now graduated and guess I am fortunate to work for a large company but again I disclosed this information to their occupational health team who try to accommodate my needs. I have a key to one of the disabled toilets if I feel I need privacy and they can alter my working hours or swap my shifts so I don't miss any work (and pay for that matter).

It is embarrassing but once I got over disclosing the information to the relevant people I have been given support and felt better for it. And it's surprising how many other students / employees suffer from similar issues.

Keep your chin up. And good luck

dan sad to hear that,me to have a hudge problem of anxiety and also having ibs on and off-----but i don,t have gall bladder----8 months ago i found my stool  green colour and totaly white water on the stool and smell like indigestion i ws to afraid and rush to the hospitl where i discuss with doctor but doctor will sy nothing to be afraid he give me medicine but i pass 3 days green stool then suddenly my stool changes in to jelly type i was more afraid and visit to another medical specialist where he give me antibiotic but i was to scared i use it for 5 days though the stool colour of me is little bit fine but i visit again to  gastroenterologist where i discuss with him in detail i say to him i am scared of cancer is it be the cancer he laugh at me he say me that did u notice any loose weight i say no you are feeling pain in your stomach i say he run for me cbc test and typhoid test which comes back normal ad i already test my stool thats clear to doc give me lansoprazole with charcoal tablets which helps me little bit i use it for 3 months but i am passing stool 3 to 4 time daily----i feel very scared i have a terrible anxiety problem as i mention before----when my visa is released i visit to the another gastroenterologist i discuss with him to but he take it to easy---he didnot run for me any test as he see my complete medicl results ultrasounds etc stool tests cbc test tyrod tests etc he give me colofac for 6 months and he mention it to me you are fine may be you ibs caused bcoz of gall bladder----well now i use it already for six months though i feel fine but not to much i pass stool now 1 time a day some time hard some time not to hard some time thing some time normal with out any pain-----beside that i feel heavy in my chest-----some time hot sensations don,t know what to do?i think i have some bad illergy with foods i cann ot eat chillis if ieat i hve loose motions then-----yesterdy in morning time i pass hard stool then go to mrket as i was hungry and eat cheese bread can you believe it hard for me to rech to the toilet hahahahahaha but thank God i reach to the toilet and i have a very loose stool like yellow water------after that i didnot pass stool until now-----well i must say don,t think to much i used colofac ,charcoal tablets but i really find imodium tablets helps me alot when ever i use it i habe a good bowel movement but when i quit it after few days in my country i pass 3 4 times stool s i mmention now i m passing one time stool rare 2 times now as i am in japan now i eat rice mostly---my be thats why and here i have friends and wife when i pass thin stool i google it and it show me dangerous disease but according to my wife and other friends in japan thin tool is normal here in japan bcoz of food so i am not to much worried now------i hve on and off ibs and stomach sounds some times bcoz of gas and also i burp alot i visit to the doctor here he say me its acid reflux----well its expensive to do treatment in japan thats why i go for insurance and may be next week i visit to the doctor here again for my burps problem nd a well as i discuss with doctor with my ibs symptoms--------------- the medicine which i use till now Librax is the most good one for me   i wil ladvise you to please take Librax tablets twice a day morning time and night time and use it for a week hopefully you will feel better with that-------- Librax tablets will help you in your bowel movements and also it will calm your mind from million of thinkings but its the combination of 2 formulas if you use Librax please keep me update how you will feel 

hi dan

i know its probably been a while since you posted this, but i hope this will help . i suffered 30 years of severe IBS , until i finally started a gluten and dairy free diet . also ( this may sound silly ) but if you dont already have one at home, get a foldable footstool for your bathroom . we are supossed to crouch to poop, our bodys arent meant for toilet poops. so by using the foot stool, it emptys your bowels better, and eleviates the cramping etc . for the anxiety, has the dr prescribed amitryptaline ( think i spelt that wrong lol but sounds as its spelt . and yes ive been told over and over its all in my head, but i will say that the more we think about it the worse the symptoms . take in a deep breath, hold for 5 seconds and slowly let the air out, do this 5 times any time you start to feel anxious . its nothing to be ashamed or embarrassed about, thousands of people suffer with this dibilitating syndrome . i named it irritable bitc! syndrome lol so try to eliminate gluten and dairy to see if that helps . sourdough bread is fantastic for ibs . good luck, my prayers are with you .