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Please someone has to have this feeling too? :(

Posted , 13 users are following.

Hayhue
Hayhue

Sorry to post again but I'm freaking out and have no where else to turn. No one I know has vertigo/dizziness or any CNS problems so I'm so alone with this.

Does anyone ever feel like they're walking on uneven ground? Almost like one leg is longer than the other? Or does it ever feel like the floor is shifting beneath you?

It happens when I walk a semi-far distance (sometimes even short ones) and it makes me not even want to walk and it is scaring the crap out of me. My VNG is Thursday but that feels like a lifetime away.

Please tell me I'm not the only one.

1 like, 29 replies

29 Replies

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  • debbie82116
    debbie82116 Hayhue

    Posted

    Yes...when i had VN, i felt like that!!! You are not alone!
    • Hayhue
      Hayhue debbie82116

      Posted

      Thank you!! I'm hoping mine is inner ear related. I've never had this type of off balance before. It can be so scary!
  • andrea_48458
    andrea_48458 Hayhue

    Posted

    Hayhue, this does make you feel very alone and anxious. I feel a constant sense of unsteadiness and imbalance when I walk and sometimes motion when I am sitting. Have come to realise most doctors don't understand this condition and others either as you can't see it on the outside. It is hard to stay positive and not feel wooried about how long you will feel this way. 
    • Hayhue
      Hayhue andrea_48458

      Posted

      Yes! I'm used to having usual vertigo but this feeling like I'm constantly walking on a boat dock or uneven pavement is for the birds. It's so different than anything I've ever experienced.

  • Laurie34
    Laurie34 Hayhue

    Posted

    You're not alone. I feel like that at times as well. I have to say the vestibular therapy is helping. I'm feeling much better. Takes time and it got worse before it started to get Better. 
    • andrea_48458
      andrea_48458 Laurie34

      Posted

      How long have you felt this way Laurie? Are you still able to work and do most things? I feel a huge amount of fatigue. 
    • Laurie34
      Laurie34 andrea_48458

      Posted

      Yes I'm still  working and making progess.  Some days are worse than others but I'm pushing through.  I struggle some days and need time off.  It's been very difficult to deal with but I'm soldiering on.  I started the vestibular rehab therapy and that seems to be helping a lot.  It started with a sudden vertigo attack September 2015.  I've been dealing with the after effects ever sine.  I saw an Otolgist at MA Eye and Ear in Boston,MA who diagnosed me with vestibular neuritis.  It can be a debilitating diagnosis.  I'm definitely becoming well educated on the topic and I'm my own health advocate.  I'm reducing my salt intake, taking various vitamins and supplements and trying to change things for myself.  
  • melody08508
    melody08508 Hayhue

    Posted

    Yes some days I still get this, today being one! I'm on week 7 now. I do vestibular exercises I found off YouTube at home which has helped. A huge issue with VN is the anxiety, if u can go on something to help with that u will feel a lot better
    • Hayhue
      Hayhue melody08508

      Posted

      Yes it's giving me horrible anxiety and I swear that makes it worse!
  • andrea_48458
    andrea_48458 Hayhue

    Posted

    I am wondering if anyone experiences a feeling of being really dizzy when you close your eyes at night. I feel like there is a constant whirling in my ear and sometimes I wake up nauseous. 
    • Hayhue
      Hayhue andrea_48458

      Posted

      I think this stuff causes all of dizziness and sickness - it's horrible! I don't necessarily have your exact symptoms but I do feel like I'm on a boat when I close my eyes.
  • Greysheep38
    Greysheep38 Hayhue

    Posted

    Hi Hayhue,

    Yes, I have had similar symptoms. It took me ages to realsie that my problem was linked to what I was eating and happened 2-4 hours after certain foods. I was scared the first time it happened out of the blue. I suffered a sudden bout of dizziness, nausea, my body felt like I was on a boat and my feet like marshmallows walking on uneven ground. It is worth researching the effects of B12 defficiency, pre-diabetes, GORD (GERD in USA), the benefits of gowing on a low carb diet and boosting your digestive system with probiotics from a creditable supplier. Talk to your GP about your findings and ask for a B12 blood test. I was fine eating anything for 50 years but suddenly stopped producing the right enzymes to digest certain foods which caused bizzare symptoms that seemed unrelated to my digestive system. I am so much better taking probiotics, enzyme supplements, B12, iron and folic acid. It may not be the source of your problem but it is worth checking out. Good luck. 

    • Hayhue
      Hayhue Greysheep38

      Posted

      I have b12 blood work tomorrow actually because I'm also having other neurological symptoms such as leg spasticity.

      I'll let y'all know!

  • johnnynotdizzy
    johnnynotdizzy Hayhue

    Posted

    Hi Hayhue

    Have you been tested for BPPV. When I had it (for 7 years) it felt like the ground was made of marshmallow and made me feel like I had to concentrate just to walk.

    Have you been tested for BPPV?

    • Hayhue
      Hayhue johnnynotdizzy

      Posted

      Yes that's how I feel as if the ground is bouncy or uneven. And even when I'm sitting still I can still feel it, it's so weird.

      I have a VNG this Thursday (2 days) so I'll let you know what they say.

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