PMR and Excersize - Experiment in Progress

Posted , 31 users are following.

Hi Everyone!

In search for information about PMR I have come acress this site with lots of information and links.  I have learne a lot and in return I would like to contribute about the topic of PMR and excersize....

Background: I am 66 years old and have suffered first attack in mid November 2015... I have been fairly active person and have done some triathlon in the past, so not being able to get out of the bed on my own was pretty shocking to me... It took about one month to diagnose PMR and I started medication (prednisone) at 15mg/day mid December. 

If there is an interest, I would like to post about the progress in recovery, with special attention to excersize. I am seeng specialist every 2 weeks and complete blood work is done to monitor inflamation caused by PMR.

I would like to post what I have done thus far and future progress in (hopefully) sucessful recovery.  Please let me know if there is enough interest in the subject.

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  • Posted

    Nick,

    I, for one, would certainly be happy if you are willing to share your program and progress in recovery, utilizing excercise.

    I'm quite sure many of us would also be very interested in your sharing the links, to the new information you have found

    sharing info., and concern, at least to me, are what makes this forum so successful.

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  • Posted

    Hi Nick yes I would love to learn any thing that will help with the Dreaded PMR .......wish I could exercise haha from a 54 yr old female x
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    • Posted

      HIi Karen,

      I wish I am as young as you are. Off course you can excercise, just start slowly and listen to you body.  I believe that being active helps recovery, and will make you feel better.

      Nick

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  • Posted

    Just one question Nick, are you a qualified physiotherapist?

    You are just at the beginning of a long journey.  Most of us at this stage would have been happy to comb our hair/get off the toilet seat, etc. etc.  Exercise?   Getting out of bed was the first one.  Getting dressed the second, followed by complete exhaustion.

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    • Posted

      I am not  and i don't intend to advise anyone what to do, just share my own experience. We all had similar starting point with PMR... The question is what is the optimal recovery path? From that prospective we can learn from each others experience IMO.
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  • Posted

    Hello Nick, ditto, giving your fellow pmr'ers updates on your recovery journey is a great idea. I'd love to hear about things that worked or didn't work. We all need as much info as possible.

    I'll look forward to your next update.

    regards, tina

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  • Posted

    I am very interested. I tried to do TaiChi while"inflamed". Did not know I had PMR and had to take Naprosyn  to get moving. The next day hurt terribly. Now on the pred I am able to participate to hopefully regain and maintain fitness.
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  • Posted

    Good ideal Nick.  We are all at different stages and the effects are different but it would be interesting to learn how you progress.  I to was very active until PMR started and although I wanted to exercise I soon found that it was not always possible to complete at the same level and if I did I usualy paid for it!  It's far better to drop the level and not suffer any 'problems' a day or so later.  I know it's difficuilt when you have been so active to find yourself 'disabled'.  Male 75 started preds 19 months ago at 30 mg and am now at 4.5 mg.
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    • Posted

      John, my goal is to be healthy and not "disabled". Swimming, or biking helps me with energy level and also reduces stress. "Competition at the same level" is not important to me any more...
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  • Posted

    Yes, please tell us how you are getting on.  BUT please remember not to overdo things - you are still ill with PMR and you need to balance your exercise, whatever it is, with rest and excellent nutrition.  (This from 68-yr-old female, non-athlete, who spends at least 2 1/2 hours in various forms of physical activity these days. Diagnosed June '15).
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  • Posted

    Yes I'm interested . I'm 47 and have it. I use to be very active too. It's hard to adjust so feel for you . I went total weak suddenly! After taking the dog for a walk. After 2 and half years of suffering they gave me steroids which quickly got me back on my feet . So then said it was PMR 
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    • Posted

      Hi Veronica, sorry to hear that it took so long for diagosis. I was lucky ( and persistant) as well. I visited 3 doctors to get to god one. First  2 just gave me pain killers and told me to rest.  Only the third one, after second visit to him, sent me to a hospital because he suspected PMR...
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