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PMR & Myofascial pain syndrome

Posted , 15 users are following.

Dave-California
Dave-California

Many (4) years ago, Eileen put together a lot of valuable information regarding Myofascial pain syndrome (MPS) and many seemed to consider the fact that if the pains they were suffering through were not uniformly across the body, i.e. down one side or in a leg, etc. - then it may not be PMR.

Well Eileen, after over 4 years of PMR and slow reduction to 5 mg Pred, I have started with this "one leg" excruciating pain. I'm making an appointment with my rheumatologist  but before I go I want Eileen's current thoughts on the connection between PMR & MPS.

Any new information Eileen or anyone else ??

Appreciate your assistance.

Dave

0 likes, 21 replies

21 Replies

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  • amkoffee
    amkoffee Dave-California

    Posted

    I think rather than seeing your rheumatologist you need to see a back specialist. That would be a neurosurgeon that specializes in the back. The reason I'm suggesting this is if you have pain radiating down your leg it sounds like a back issue. It may be totally unrelated to your PMR. I have lower back pain as well as PMR and most recently I've started having days where my sciatic nerve is being pinched in my lower back and causing pain down my leg. Fortunately for me it's sporadic and definitely not frequent. Sciatic nerve pain or any nerve pain can be very painful.

  • track
    track Dave-California

    Posted

    Hello Dave,  I  had excruciating pain down my right leg running from buttock, it turned out to be sciatic nerve problem coming from my lower lumbar spine.  After 5 weeks of having physio (which did nothing to help) and being unable to walk, I had an injection into that area, a Cortisone injection, this has fixed the pain and I am back to normal, though my back Specialist said this can re occur in a few months, if not,I may be one of the lucky ones who never experiences the problem again.

    I have suffered from PMR for over 3 years now.

    good luck,   Track

     

    • Dave-California
      Dave-California track

      Posted

      Thanks for your input Track - I think I might be following your process after I meet with my rheumatologist and orthopedic doctors today..

      I want to try to avoid cortisone shots but if nothing else works - that'll happen !!

      ?Dave

    • Dave-California
      Dave-California track

      Posted

      Thanks for your input Track - I think I might be following your process after I meet with my rheumatologist and orthopedic doctors today..

      I want to try to avoid cortisone shots but if nothing else works - that'll happen !!

      Dave

    • Michdonn
      Michdonn Dave-California

      Posted

      Dave-Cslifornia, are you able to tell whether the pain is anything like the PMR pain or a different pain? Not that you or any of us needs an additional problem on top of PMR!

      Good luck on the rest of your journey.

    • Dave-California
      Dave-California Michdonn

      Posted

      I saw my doctor yesterday and she thinks that the single side pain issue at the locations I showed to her is not PMR and probably not myofacial pain syndrome - more likely a joint compression problem somewhere in my lower spine or hip area - so I am going to "run" over today and have few X-ray/MRI's as necessary to clarify this potential.Then if it is this - she has set me up for a specialist physical therapist who deals with age related joint compression. How come there are so many things that get us felling 'crappy' when at our age we should be happy and smiling ! I hope they figure it out - it's 'bothersome' !!

      Dave

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