PMR - newly diagnosed and struggling with my young family

Posted , 17 users are following.

Hi, i was diagnosed a few weeks ago and have been on 15 mg of pred for 21 days now. The pain was excrutiating and got better to begin with but I now have started getting worse pain gradually coming back. My joints are burning hot and im very sore. I have 3 kids, 3,9,11 that keep me very busy and to be honest I struggle to do the basics at times. Mornings are the hardest as Im in pain and have restricted movement but the meds seem to kick in after lunch but I am then struggling to stay awake, often laying on the floor snoozing while my toddler watches tv, before having to pickup the older kids from school and do the ferrying to the sport activities. Are there things I could be doing to help me get through the day a little easier. Im not sleeping well at all and rarely sleep longer then 2 hrs which doesnt help my mood. I dont want to be a grumpy mum but its tough and I dont want my family to suffer as well. I am considering cutting out sugar all together and maybe even trying the paleo diet, anything that may help get me through. Im a the waiting list to see a rhuemy but that will take a while. Any suggestions on issues such as managing sleep, pain and how to better function would be greatly appreciated. 

1 like, 52 replies

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  • Posted

    thanks again Ally, all this help gives me a whole new outlook and approach to this thing.
    • Posted

      Hi Leonard, a few weeks ago I woke up with extremely sore elbows and within 2days I could not move...i was extremely active and my family n friends dont understand or believe I could have so rapidly cease to function as usual...this forum has been great just to get feedback from people who experience the same challenges.... Sharing helps!

      ill keep you posted on how im going, just upped dose to 20 due to pain...when pain subsides i will drop back as per plan...

      hope you are feeling better soon and we all get off these pesky drugs...

      chin up all

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