PMR - newly diagnosed and struggling with my young family
Posted , 17 users are following.
Hi, i was diagnosed a few weeks ago and have been on 15 mg of pred for 21 days now. The pain was excrutiating and got better to begin with but I now have started getting worse pain gradually coming back. My joints are burning hot and im very sore. I have 3 kids, 3,9,11 that keep me very busy and to be honest I struggle to do the basics at times. Mornings are the hardest as Im in pain and have restricted movement but the meds seem to kick in after lunch but I am then struggling to stay awake, often laying on the floor snoozing while my toddler watches tv, before having to pickup the older kids from school and do the ferrying to the sport activities. Are there things I could be doing to help me get through the day a little easier. Im not sleeping well at all and rarely sleep longer then 2 hrs which doesnt help my mood. I dont want to be a grumpy mum but its tough and I dont want my family to suffer as well. I am considering cutting out sugar all together and maybe even trying the paleo diet, anything that may help get me through. Im a the waiting list to see a rhuemy but that will take a while. Any suggestions on issues such as managing sleep, pain and how to better function would be greatly appreciated.
1 like, 52 replies
leonard12916 Ally71
Posted
Ally71 leonard12916
Posted
ill keep you posted on how im going, just upped dose to 20 due to pain...when pain subsides i will drop back as per plan...
hope you are feeling better soon and we all get off these pesky drugs...
chin up all