PMR or something else
Posted , 13 users are following.
Hi
After 3 years on pred, reducing slowly I got down to 1mg but was still experiencing pain, I wasn't sure if this was PMR related or not.
.Around 6 months ago I stopped taking pred altogether, the pain hasn't got any worse and it isn't the same pain as I had when I first started with PMR, it was so intense then I had bursitis in my neck at the back of my head, in my and elbows and could hardly move.
The pain I have now is achey, neck, elbows wrists, knees and most painful my feet. I have headaches and migraines, which are new to me. I have restless legs, carpel tunnel, and diverticulitis, I don't sleep well sometimes because of pain, but then there are times when I do get a good nights sleep and the following day the pain is less. I'm wondering if I have fibromyalgia.
Anyone familiar with this ?
1 like, 37 replies
Elijo angelcake61
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angelcake61
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Thanks everyone for your input and kind thoughts.
I've had my ESR bloods done today, apparently the doc didn't do them last time as I had just been in hospital and diagnosed with diverticulitis (something else to add to my list) therefore my levels would have been high anyway.
She said if my tests come back acceptable, she will look at fibromyalgia, no Eileen I do don't mention the F word, I took your advice 😀
Appently the restless legs and sciatica can go along side fibro.
Thanks again, I'll post when get the results
EileenH angelcake61
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angelcake61 EileenH
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Thanks Eilleen
I'll remember that when I go back
linda82701_USA EileenH
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Would upping the dose of prednisone help the sciatica pain that can accompany PMR? Thank you, Linda
Anhaga linda82701_USA
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EileenH linda82701_USA
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linda82701_USA EileenH
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linda82701_USA Anhaga
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What type of physiotherapy do you receive? Thank you for your response.
Linda
EileenH linda82701_USA
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20mg/day is the borderline between a moderate and a high dose. If a few days of that sort of dose helped a lot then maybe it would be worth it but not if you needed it consistently to maintain the pain relief. If there is a mechanical cause - discs perhaps or spasmed muscles, the cause of the pain remains and as soon as you stop the dose of pred the pain is likely to return. Hence, physiotherapy using manual mobilisation techniques for spasmed muscles would probably be a better approach for spasmed muscles. But it should start with an x-ray at the least to rule out other problems which would have their own solutions. Pred isn't something to play about with to see what it will do.
Anhaga linda82701_USA
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My physiotherapist happens to have a good knowledge of PMR, especially as one of her good friends is a rheumatologist. She actually discouraged me from attempting some high intensity exercise, saying it wouldn't be a good idea because of the PMR. She is very good at assessing various problems and has used a number of techniques to help me deal with the pain which was not specifically PMR, among other things "dry needling". She also does low level light therapy which has been found effective in reducing production of pain-causing cytokines (studied for RA not PMR) but this particular treatment is not widely available outside North America, although there are practitioners all around the world.
linda82701_USA EileenH
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linda82701_USA Anhaga
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Anhaga linda82701_USA
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As you're in the USA it's worth your googling light therapy toronto kahn, especially if you have insurance coverage fro physiotherapist or chiropractor, the usual providers of the treatment.
linda82701_USA Anhaga
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Anhaga linda82701_USA
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EileenH linda82701_USA
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