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PMR, Prednisone, hunger

Posted , 8 users are following.

kathy67492
kathy67492

2-1/2 years with PMR...tapering from 8-1/2 to 8m.....just out of curiosity, I know most people are hungrier on high doses of prednisone and gain weight. I seem to be the opposite...the lower the dose, the hungrier I am. Weird?

0 likes, 19 replies

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  • sophiesu20099
    sophiesu20099 kathy67492

    Posted

    LUCKY I've gained 40 lbs in two  years from size 6. - to a 16

    • dee53012
      dee53012 sophiesu20099

      Posted

      do you feel better?

       have not gone on any meds yet. worried about the side effects. i hadn't thought of weight gain. i wouldnt mind putting on a few pounds.  is the weight gain from the pill making you hungry so you eat more, or does it slow the metabloism for the ones who gain? my husband was on it and his personality changed and his energy was very high, he had trouble sleeping. not to mention bone loss and more . . .have you had any side effects? i pose that question to anyone who reads this.

      i am sorry you have put on weight. but hope the benifits outweigh it lol

    • kathy67492
      kathy67492 dee53012

      Posted

      At the onset of PMR I lost 18 pounds, involuntarily...18 pounds that I did not need to lose! After 2-1/2 years I am almost back to my original weight...not quite...but I am hungrier as I lower the dose. Have only achieved a dose of 7-1/2m though.
  • FlipDover_Aust
    FlipDover_Aust kathy67492

    Posted

    I want to say something mean lol

    I've put on 40kg (88lbs?) in two years!! Unbelievable.

    And I'm not eating any more, even though I'd like to!

    • sophiesu20099
      sophiesu20099 FlipDover_Aust

      Posted

      Try to eat lots fiber read labels, but I think we retain fluids. If I weigh the

      benefits to weight gain vs pain, asthma, I take the gain..I find myself telling everyone "I'm on a medication that swells me up" nice to know the wrinkles are minimal, oh btw bruises not healing well

    • dee53012
      dee53012 FlipDover_Aust

      Posted

      me too!  meat and LOTS of veggies! on occasion I have a spot of ice cream, but i do suffer after with inability to sleep, stuffy head, gunky throat, later a headache . . .sometimes it feel worth it.all in moderation. 
  • nick67069
    nick67069 kathy67492

    Posted

    I am 10 months since prednisone treatment. Started at 15mg, currently on 5mg. It does seem to increase appetite, more so at the higher dose.  My guess is that it has to do with pred blocking muscle carbo uptake, which causes muscles to "scream - I need more food".  I do eat more, but I make sure that I burn it all off via activities.  I exercise every day on the average 1.5-2 hours. My weight has not changed much and is actually gone down a bit.

    • kathy67492
      kathy67492 nick67069

      Posted

      Good news that you have successfully tapered to 5mg in such a short time!  I eat pretty well but my exercise level is probably half of what it used to be because of the PMR. The prednisone is definitely effecting my appetite.
  • julian.
    julian. kathy67492

    Posted

    if I get the balance between pred and symptoms wrong I end up less active and eat more. It was harder in the early days. And of course in general I'm less active than I used to be.

    Only way I could stop eating chocolate biscuits was to not buy them.

    • kathy67492
      kathy67492 julian.

      Posted

      I am with you! If I buy a sweet I eat it right away and that'S the end of it!

      Can't keep it in the house😊

  • dboza
    dboza kathy67492

    Posted

    I was on 40 mgs. and food didn't taste right. So, I didn't have much of an appetite.My cholesterol shot up and that freaked me out a little. But, my doctor said it was the prednisone. When I tapered down I began to retain water weight. I am done with the meds after a slow taper. Funny, I run a restaurant for a living and food did not appeal to me. Wine and beer did not taste right either. I slept okay w/ the drug but once I woke in the morning, I was up. I have Raynaud's syndrome and it didn't bother me all winter. I lost all my prednisone weight.

    • kathy67492
      kathy67492 dboza

      Posted

      Wow!...that is a good outcome. Very encouraging to hear from the people who have seen the light at the end of the tunnel! Thank you!
  • elizabeth20640
    elizabeth20640 kathy67492

    Posted

    Hi Kathy I'm same as you I find as coming down the dose I'm putting weight back on, just when I was looking forward to loosing weight I'm down from 80mg to 6mg

    • kathy67492
      kathy67492 elizabeth20640

      Posted

      Well, the post above...dboza...is off the prednisone and then lost the weight! Maybe you have to get totally off the prednisone before the weight comes off😊

    • danielle62164
      danielle62164 kathy67492

      Posted

       I was  of prednisone for a month I had to go back on it

      and now I'm 2ml milligramme and my weight it's not going down

      I have gain 20 pounds in 2 years cannot get  rid of it

      I am very depressed it's not a good thing to have polymalgia 

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