Posted , 8 users are following.
2-1/2 years with PMR...tapering from 8-1/2 to 8m.....just out of curiosity, I know most people are hungrier on high doses of prednisone and gain weight. I seem to be the opposite...the lower the dose, the hungrier I am. Weird?
0 likes, 19 replies
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JanSP kathy67492
Posted
In my 7 year journey with GCA and PMR I am very hungry when I go on pred and the hunger lessens as the dose comes down. In my last flare I've gone from 80 mg pred to 5 mg. I was up 60 lbs - 50 lbs from this flare and 10 lbs left over from the flare before that. I just started losing - 13 lbs. My problem now is I'm losing very slowly because I sleep all the time. I'm having tremendous pain from my back (scoliosis and stenosis) problems and have to take pain killers. Walking and sometimes sitting hurt. I have an appointment with my pain doc in two weeks and hopefully he can inject me with something to help. We've done this before and sometimes it helps and other times it doesn't.
I also have depression and my meds for that were just doubled. I've been extra depressed and stressed due to hurricane Matthew. My husband, dog and I had to evacuate for three days. We came home to find a huge tree had fallen on the roof and no electricity for two more days. A neighbor helped my husband put temporary patches on the roof to keep the rain out. It's very hard to get things repaired or even get estimates because there are so many damaged houses. We did get a company to cut up the tree. One very big limb went right down to the floor of our sun porch which needs a whole new roof. Our house is only five years old. It doesn't look like everything can be fixed until 2017 and insurance won't take care of everything. I keep trying to tell myself that fortunately we are alive and not hurt but it's hard when you have depression. Jan
kathy67492 JanSP
Posted
I am sorry to hear of the mess you are in! The stress of the pain and fatigue, on top of the home disaster would make any depression worse.
You may want to talk to your doctor about upping your prednisone during this difficult time...plus the pain meds, combined with the anti-depressants could be making it worse. Often the side effects are worse than the illness! I hope you can get help from your doctor...wish you the best in getting out of the depression so that you can deal with the rest💕
elizabeth20640 JanSP
Posted
Hi Jan so sorry for your misfortune it's bad enough dealing with Gca and PMR and depression thinking of you hope ot all gets better , take care