PMR REMISSION
Posted , 6 users are following.
A curiosity. If your PMR is gone, you are in remission, then you no longer look at this forum, or comment...correct? Wondering if Eileen might have an idea about this. Wouldn't it be uplifting to hear from some people who are in remission...hear about their journey?
1 like, 6 replies
james_ensor kathy67492
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EileenH james_ensor
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bob73443 kathy67492
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EileenH kathy67492
Posted
At the bottom of the first post in the link with resources that I often post
https://patient.info/forums/discuss/pmr-gca-website-addresses-and-resources-35316
you will find this link:
Discussion for users achieving zero predisone:
https://patient.info/forums/discuss/zero-predisone-discussion-450915
It isn't surprising that there are relatively few people who have recovered on the forums - for many people it is a part of their life they would rather forget quite often. They go back to a more normal lifestyle and no longer require the support to have "is this normal" questions answered or the sounding board which the forums supply.
Following the forums does take a lot of time these days, it didn't at one time but the traffic at present is very high - which is compounded of course as each site becomes even better known.
kathy67492 EileenH
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pauline36422 kathy67492
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