possible cancer
Posted , 8 users are following.
Long story short....Last week I was diagnosed with SCC1 on my vulva. its at 6 o'clock (perineum) and was spotted by a nurse who did my smear test. Anyway, I've prepared myself for a partial vulvectomy though I've refused treatment until I get back from my long planned holiday. I arrive back on the 14th May.
In the mean time they've been doing a load of other tests. Yesterday I had an ultrasound and the technician told me I had a small cyst on my left ovary but it was a (I think she said) "simple cyst" and nothing to worry about. There was something in her voice that concerned me though...perhaps my intuition is just at an all time high.
I got a phone call from my GP at 9pm last night. She'd recieved the scan report which says I have an 8mm thick lining to part of the womb and to the base of my right falopian tube. She reassured me that this is not neccessarily cancer but to be sure she is making me an urgent appointment but it could take up to 2 weeks
It dawned on me this morning that they will have to go in to take biopsies or I'm thinking they may just want to do a hysterectomy I'm in my 50s and so having a hysterectomy isn't a problem. Then I started wondering, if they think it could be cancer they will probably want to do an abdominal one and the thought of that is getting me stressed out.
Is there anyone here who had a womb investigation for ominous reasons? and if so, what was the procedure?
0 likes, 16 replies
Michellestar87 JanSpencer
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phoebewhite JanSpencer
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virginias phoebewhite
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sandy60584 JanSpencer
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Due to fibroids and the start of peri menopause a year I started to take HRT with a coil to be fitted. However, the GP was unable to fit the coil. I had such a horrid experience that I did not return. However, about 4 weeks ago I needed to get more HRT and it was the same GP who tried to fit the coil. She referred me to the hospital. I received a letter re an appointment for 21st April. I then received a call 3 wks ago asking me to attend for a scan. I had fibroids and cysts. 5 days after the scan on a Friday evening I had a call from the hospital asking me to attend to see gynea on the Monday. I thought the absolute worst that the scan had revealed cancer. My fibroids had grown etc and a hysterectomy was recommend. I was told that it would be 6-8 wait. Last Tuesday the hospital asked me to attend Weds for pre op tests. Again I panicked as I had the surgery yesterday. A full hysterectomy. All has gone well although I'm in pain. Please try not to worry. I was told that they probably had a cancellation. Regards Sandy
lesley14654 JanSpencer
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caroline_19506 JanSpencer
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virginias JanSpencer
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susan39623 JanSpencer
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aution thankfully when they looked at what they
had taken away there were no cancerous cells lef
t. I was really lucky had my op with no complicati
ons (although I have heart failure x diabetis) x wa
s home in 5 days best thing I ever had done
Hope you have a good outcome.
JanSpencer
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Michelle, my doctor said it could be endometrial but because I already have a stage 1 squamous cell carcinoma, and because SCC is often a secondary, they will be overly cautious. I hope your hysterectomy goes well.
Phoebe, its good to know you had a 'V' hysterectomy. I've only had a very small amount of bleeding and suspected it had come from my SCC and not my womb. Sorry you had to go through the big C but I must say, you sound very positive
Glad your operation went well Sandy. Are they or have they done biopsies on what was removed?
Thanks Lesley, I'm determined to enjoy my holiday! Yes, late night phone calls aren't good for the nerves but like my husband says, at least they have you on the right conveyor belt.
I hope your op comes around soon and that you bounce back quickly.
Hi Caroline, now I'm reading all about a 'hystcopey'. In and out the same day means I could have that before I go on holiday. On second thoughts, maybe I should have it when I come back!.
virginias, you've been through so much. Like you, I'm having my lymph nodes removed when I have my PV. Do you suffer edema in the legs? I'm glad you have said about staging surgery. I may not need a hysterectomy but if I do, I'll ask them to do the PV and hysterectomy at the same time. I've been told I will need at least six weeks off work for the PV.
Thanks Susan, you sound really positive. Its a good job you had surgery as quickly as you did. Do they think you had rapid cell change or do you think they just biopsied 1a's but missed the 1b's? I've been told that stage 1a can take a long time to become stage b.
Once again, thank you all. Apart from my husband, I haven't told my family or friends about what's going on. I know I have to but until I do, its good to talk to other women who've been through or are waiting to go through a similar procedure.
virginias JanSpencer
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JanSpencer virginias
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My gynochologist has said they will test my nearest glands (Bartholin glands) whilst I'm in surgery and make a decision from there. I've redied myself to have the lot removed because anything other than that will be a bonus.
If you don't mind me asking, how long is it since you had this done ? and were you warned of the side affects prior to surgery?
virginias JanSpencer
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virginias
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caroline_19506 virginias
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JanSpencer
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I really should proof read before posting