POSSIBLE LYME
Posted , 4 users are following.
Hi guys,
I am looking from feedback with others diagnosed with lyme disease. At the moment I have been unwell for 6 months and diagnosed with post viral fatigue syndrome. The onset of symptoms for me was in November with penetrating stiffness in both legs, chest tightness, fatigue. Extreme fatigue remains, unable to work or have social life, can JUST look after myself, cooking etc
I participated in a triathlon in August in the Scottish highlands, so was very fit before all this and I also was outdoors a lot on holiday in Bulgaria in July. I am considering I have lyme disease. A huge symptoms for me is the alternating circulation in my hands, where right hand can often look much redder than the left which is always very pale, anyone else know anything about this ? And generally feeling really bad, like a zombie, you just feel so wrong. I am awaiting my lyme results so have been tested but I just wanted to know the experiences of others. I notice I can eat a lot and not feel full. Anyone else ? I am undertaking comprehensive stool analysis to test for parasites aswell.
0 likes, 18 replies
david59662
Posted
Would a haemotologist be able to identify infectious agents in the blood as i have an appointment next week. I just feel prior to this i was so healthy, alive and vital and now a fatigued wreck, emotionally void. Like i said zombiefied. My heart feels like it is not beating in my chest.
princematt david59662
Posted
When you say you've been diagnosed with post-viral fatigue, do you mean a GP has diagnosed that? I can't believe they've done that without giving you a blood test. My advice would be to DEMAND what you want, ie a blood test for lyme, even if you've never seen the classic 'bull's eye' which usually happens after a tick bite. It took me four visits to the GP before they finally gave me a test and lo and behold it came back as acute lyme, even though I had a massive rash and swollen tie. I virtually had to beg them in the end because unfortunately they are pretty ignorant about the disease. Good luck and let me know how it goes.
david59662 princematt
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I think i should know tomorrow. BUT i am concerned that a negative result might not mean much as i have heard this happens with lyme. I am having real problems sleeping, often i feel really tired, doze off for an hour or two then awake for another hour or two then back to sleep for 5 or 6. I've never seen the bullseye rash but who knows it may have been on my back. Thanks alot mate. did the anti-biotics make you feel much better and how long did it take for you to feel well ?
david59662 princematt
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margaret52697 david59662
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I just had one back from Igenx but it was Indeterminate, sometimes not easy to get an accurate diagnosis. Hope you have better luck.
I know we don't want to have Lyme, we just really want to know what it is we do have.
david59662 margaret52697
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princematt david59662
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Good luck tomorrow. Even if the results are negative you'll hopefully get a better steer on how to proceed.
david59662 princematt
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david59662 princematt
Posted
I've ordered a formula from _____ called SPIRO, you might want to check that out ? Were your neutrophils low throughout this ? What levels, platelets low ? High iron ? Surely you would be on anti-biotics for longer ?
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david59662 princematt
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princematt david59662
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david59662 princematt
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david59662 princematt
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Was/is one of your main lyme symptoms the feeling that your heart is in a vice, that it is trapped ? Alongside the fatigue of course.
Thanks, hope to speak soon, this is how i feel. Awaiting lyme test results next week.
princematt david59662
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princematt david59662
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