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After struggling with fibroids for over 10 years, I finally decided 3 months ago to get the UFE done. Before, I delve into my experience with the procedure, I want to talk a little bit about my journey. I had an absolutely useless OB/GYN who didn't offer the UFE as an option, but almost exclusively pushed having a hysterectomy. She prolonged my condition by using watchful waiting which is nuts. She put me on Lysteda and that is after I got really mad because I was bleeding so much. She would have me do an ultrasound every year, but that was it. When I said I wanted to get rid of them, she would say my only option was to have a hysterectomy. I was firm and said I wasn't going to have that done.
So, in August 2017, I did some research on my own and found a lot of literature on UFE and set out to get it done. This stupid OB/GYN kept stalling and sent me to another stupid OB/GYN who only wanted to convince me to have the hysterectomy. I told both I wasn't going to even consider it until I had tried the UFE.
I then contacted the IR department, went for my MRI and got an appointment for the procedure. MRI revealed that I had very large fibroids that had overtaken my enter uterus. I gasp when I saw my film. I was almost in tears, when my IR said it was okay and that he would get them all taken care of.
Procedure went very well. But once I was off the epidural, that's when all things hit the fan. I was in great pain. So much pain. I was constipated and very uncomfortable. They gave me more pain pills, but they weren't helping and that was because the pain was gas pain from being so constipated. I couldn't eat that whole day after the procedure. I was in agonizing pain that I had never felt before. I cried until I couldn't cry anymore. The nurses weren't helpful. They seemed irritated that I couldn't manage my own pain. My IR and his team came by but they too seemed perplexed as to the degree of my pain. I felt so alone, but God was with me as one of the night nurses came on and got me some laxative and enema. I still couldn't go but I was letting out gas, so my pain started to subside. For the first time I was able to sleep after the procedure.
By the next morning, I was relatively pain free. I was discharged with instructions and medications. I went home and went on a long walk very slowly, and then I had my first bowl movement by the third day I felt so much better. Luckily I took two weeks off, so that enabled me to rest and recover some more. For the next week or so I experience no pain. I went back to work after my two weeks and felt good.
Hardly had a period and there was no pain just occasional discharge as expected as the firbroids started to dislodge. I felt energized....no more anemia and I could sleep very well at night.
Had my first real period and that's when things changed. I started having more cramps ...really painful cramps and got back on my ibuprofen (600mg). My period was not as heavy as I have experienced before UFE, but it was more than the previous month. I didn't panic as I was advised this would happen. I got to know when to expect the pain and take my meds before it became too much. Even with the pain, I still felt better off because I didn't need to take the Lysteda cause I wasn't bleeding like before and I could control the pain. But discharging the fibroids was another thing. I would have severe cramps then pieces of one would discharge. It has been going on all month into my third month.
Little or no bleeding, just discharging of fibroids and more cramping. At times the cramping gets very painful, but this usually happens at night. I control it by taking an ibuprofen. Other than this, I am doing very well. My stomach is shrinking and my clothes are fitting so much better unlike before UFE.
I just wonder how long will the discharging of the fibroids continue. I see my IR for a post-op follow-up in February.
It has been a journey and I am very happy that I chose the UFE as I see my life getting back to normal. I recommend it for anyone who wants an alternative to the other recommended procedures. In hindsight, I should have had it done years ago, but I trusted my OB/GYN and I regret that I did. Many of these OBs don't present UFE as a viable option because they want to perform hysterectomies. I never went back to my OB.......
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