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Post viral symptoms / syndrome

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Elle1234
Elle1234

Hello eveyone,

I have been diagnosed with "post viral symptons". I have not got a clue what it is.Has anyone heard of this. For over two months I have been suffering from the following:

Heavy head feeling,

unbalanced.

constant pressure in the head

flu like symptons but no fever.

Pins and needles in left and right leg. Sometimes hot and cold flushes in the leg.

Prickly feeling in the arms

Muscle fatigue or cramping in the hands. I feel like my hands are so stiff sometimes.

Fatigue all the time ( despite having a good sleep).

Apparently I had a viral infection and then one by one these symptons appeared. it is dragging me down. I have MRI, blood test which came back okay except for slight raised "infection".

Does anyone else have these symptons? It is dragging me down. Is there a solution. The Dr says there is no treatment but it will disspear or subside on its own... when? when? when? Some days I can handle it other days I want to just curl up.

No offence but this syndrome just sounds so wishy washy. Could I be misdiagnosed?

Sad Elle.

4 likes, 464 replies

464 Replies

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  • alec60127
    alec60127 Elle1234

    Posted

    I'm 17, and for the past 6 months I've been experiencing tingling in my hands and feet, extreme dizziness, forgetfulness, weakness in arms and legs, sore muscles, headaches, some fatigue, change in vision, tremors throughout my body, stiff muscles, and much more. I had all of this after a sinus infection in January. I've had 2 mri's(Brain and Spine), they were clean. They were looking for MS. My neurologist thinks it's all post viral. Anyone have these problems?
    • Elle1234
      Elle1234 alec60127

      Posted

      Gosh alex,

      Sorry you have these problems. I wrote a post about this: "post viral syndrome. It sounds like you have what I have. After 6 months are your symptons same, better or worse?

      I am sorry you have this because you are 17. I am much older. It can be overcomed 😄👍😄

    • alec60127
      alec60127 Elle1234

      Posted

      Thank you for responding so quickly, I'm just hoping it's nothing serious. After 6 months I would say The dizziness has Improved, it kind of comes and goes now. The tingling I would probably say got to a certain point and than kind of leveled off from there. My tremors didn't actually start until about 2 months ago, and they can be pretty bad sometimes, but other times not as terrible. My vision hasn't really improved at all. I'm hoping on a daily basis that it will go away🙏😊. How are you feeling and when did your symptoms begin?
    • Elle1234
      Elle1234 alec60127

      Posted

      Hello alec,

      My symptons started in sept 2014 after a viral infection. I too had all the scans etc head to toe and nothing wrong.

      I had the same symptons as you particular joint pain in my knees and legs. Tingling in buttocks thighs and legs. Dizziness and the rest of it.

      I still have symptons now but what I am hapy about is that your symptons are subsiding and that is the main thing.

      Some days I want to scream and shout and say "why me" but with more patience I hope out symptons start to fade 😄.

      I have taken copious amounts of vitimins and could give you a list if you like. I am not sure if they are helping. I suppose it makes me "think" better because I am taking them.

      Crazy to think that a virus can cause so much bother ...

    • alec60127
      alec60127 Elle1234

      Posted

      I'm glad that your tests came back normal, that's a good sign!! I've been having some pain as well, but in my legs and feet. Some days I feel miserable, like today wasn't too great. Do you have neck or jaw stiffness at all? Also has you had any weakness? Thank You for caring about me! I have faith that one day we will feel like our former selves! What vitamins do you take? I currently take vitamin D, as a blood test showed I had a low amount. That's what cloudy winters will do, lol. I remember in January when it all started, my doctor told me it was all a virus, and I thought he was crazy, because I never imagined a virus could do this.
  • alec60127
    alec60127 Elle1234

    Posted

    I'm now having uncoordinated movements, and stumbling, which is scary. Also, I'm having trouble finding words. Anyone experience that?
  • georgeGG
    georgeGG Elle1234

    Posted

    Yes I was diagnosed with that over 35 years ago. The doctor called it a space age virus. I though it nonesense then and I still do. The result was  mild Sacoidosis was found. The followed ten years on a large dose of steroids . That was a disaster. It agrevated my systpoms. One prominant factor running through the posts on this topic is pacing yourself. Any overexertion sets you back. Yet doctors are still urging more exercise as a cure.

    Scan the older discussion when you have the stength on concentration. You will find a lot of information.

  • mark57938
    mark57938 Elle1234

    Posted

    Hi Elle, I know you put this post on a while back but it has come to the top of the thread. I was diagnosed in Sept '13, and was fully recovered by Sept '14. I am sure there are different levels of severity, but I fell ill following a number of bouts of tonsillitis, so i was PVF as opposed to CFS.. but I suspect they are they same root issue... which is a lack of cognative control of your adrenal gland. 

    Basically I worked a super stressful job and then in my spare time got very drunk or did very active things like active holidays or travelling to see people. I was living on adrenaline. Eventually after one week of tonsillitis I went back to work and was totally shattered. Couldn't do it.

    Eventually diagnosed with PVF. Eventually. 

    Finally I went to a homeopath. Best advise ever smile

    She told me my body had trauma'd whilst fighting the virus, and had stopped using my adrenal because it was shattered and needed a time to recover. Remeber your adrenal is your last line of defence...

    So to everyone who reads this, there is a way to get back to your former self... go see a homeopath. They will help you sort out your nutrition and the vitamins you need to take (which are a lot to begin with). They will help you assess the activities in your life which are still causing you stress. And you will need to follow their advise because if your body is still creating stress of any level then your immune system will be busy fighting that will have nothing else to build itself up with.

    Finally you need to have a hormone balancer... suma root powder is from a south american plant traditionally used to fight chronic fatigue. This was THE KEY to my recovery. I got the powder and with some sustained use my nervous system started talking to my adrenal again... And at that point i suddenly felt it would be possible to start exercising again.

    Good luck, persistance is required. Message me if you want more in depth details of things to help smile

    Mark

    • Elle1234
      Elle1234 mark57938

      Posted

      This is very helpful Mark. I liked the explanation on the adrenal glands being worn out.

      Do you know what to take for good adrenal functioning or optimal adrenal function?

      Elle

    • mark57938
      mark57938 Elle1234

      Posted

      Hi Elle,

      I had a couple of adrenal boosters from my homeopath. not sure what they were, might have been just a placebo like sugar. Either way ask a homeopath. However I feel the adrenal worn out is a key part in understanding some PVF scenarios. So just having that understanding can be very useful (if it applies to you) as you can manage other parts of diet around protecting adrenal... ie avoiding strong caffine, and having a proper breakfast so your body doesn't rely on adrenal, so it can rest whilst you're recovering smile

  • alec60127
    alec60127 Elle1234

    Posted

    Anyone have tremors at rest? I've been experiencing those lately. I have/I think I have weakness in my left pinky finger. Sore in different areas, headaches, dizzy, muscle twitching, tingling/pins and needles in hands and feet, some back pain, bad memory are my main symptoms. How's everyone doing?
    • Elle1234
      Elle1234 alec60127

      Posted

      Hello Alec,

      Yup I still have all the symptoms that you have. In the very beginning I had numbness in my fingers too as if they were weak. That has subsided.

      I have all your symptoms. But my knees are the worse. They feel sore when I walk.

      Tremors - do you mean shaking all over or do you mean twitching. I get muscle twitches in my legs. Then

    • alec60127
      alec60127 Elle1234

      Posted

      Hey Elle!

      It's good to know it's not just me, it's just a weird weakness in my fingers I cant describe. I can still do things, but they just feel different.

      My knees are sore as well, and I have soreness in my legs and arms. My neck is not sore, but more stiff.

      In regards to the tremors, my hands and feet shake when I they are stretched out. I do have muscle twitches in my arms, and legs tho.

    • Elle1234
      Elle1234 alec60127

      Posted

      Hello Alec,

      This post viral symptom is really really odd and bizarre. I shall have it for one year come September 😔.

      Not to be alarmist but different symptoms will come and go 😔. I am quite surprise not more is spoken about it... I do not think it is the same as chronic fatigue syndrome though.

      I just want to know when it will all finally disappear ...

      your hands will get better. Glad you do not have aching knees. I have that one.

    • Elle1234
      Elle1234

      Posted

      I love the twitches in the arms and legs. It's hilarious to watch when you see it happening because you cannot stop it. It's so weird.

      In the beginning I forgot to add I had these symptoms where my legs would burn up like as if they were pressed against a radiator and then they would cool down again. That one freaked me a bit. But that symptom has dissapeared in the last month ...

    • alec60127
      alec60127 Elle1234

      Posted

      Hi Elle, I know exactly what you mean about the muscle twitching. I see and feel the muscles twitch, it's annoying and funny😀. It's happening to me right now. I'm glad that symptom has disappeared, it sounds interesting. My most recent symptom is almost complete numbness throughout my body, it's scary. Hopefully it goes away soon!
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