Post viral symptoms / syndrome

Hi Alec, I don't have post viral fatigue but cfs, many symptoms are similar/the same. I'd Say yeah, try not to worry about the numbness but, check it out with a doctor anyway. Its scary when our bodies do things out of the ordinary that we're not used to like this. There's an ME website for young people that you could look at? I know you have post viral fatigue but, symptoms wise it maybe useful.

Best wishes

B

Amanda,

In March this year I my ears were plugged for about two weeks, it moved to my chest for about 2 weeks and then to my sinuses. I went to get some antibiotics at the walk-in and they told me it was a virus and that antibiotics wouldn’t help and it would resolve itself.  I usually get a cold in the spring as I have allergies. I noticed while I had this it was behaving differently than the normal spring cold I get. Near the end of April, I thought I was feeling better until early May I woke up one day and my left inside of my foot was tingly. I waited to go to my doctor till the following day, as the feeling in my toe was still tingly. I got a full checkup, checked my optic nerve, blood work. They said just let them know if anything changes. Over that following weekend, when I was sleeping on my back, I would wake up and my hands and feet would tingly. That progressed till the following Tuesday where I woke up and my entire body felt like it was in slow motion, very groggy feeling. That lasted about a day. I also started experiencing body wide muscle soreness, weakness, and the feeling like if I were to flex my muscles they would cramp. Within a few weeks I started experiencing body wide muscle twitches and weird sensations like my right big toe would feel like it was buzzing. Around this time I started to experience sleep problems and would wake up in the early morning and would literally feel like my body was vibrating. Many of these sensations where transient thought and I would feel them for a day and then it was something different the next day. The one thing I can say is that the tingling was general caused from pressure on my nerves. I noticed this when I would lay down on my elbows or seat in a seat too long or something like that.  I had an MRI after a month that was clear. I had numerous blood tests that were clear. I followed up with a neurologist who said it is not MS, ALS, Lupus, etc. and that none of these conditions express themselves this way and that all of this was too widespread and felt it was systemic. All this time I had a feeling of sinus pressure. I returned to my primary physician who ordered a CT scan of my sinus and found I had a severe sinus infection with total blockage. This was after I had been on 2 courses of antibiotic since May. Since that time I have seen an ENT, and have been on three more rounds of antibiotics and a steroid. I am feeling better and I can now sleep on my back without my hands and feet going numb but I still am experiencing slight versions of many of these  sensations at various times. I do have an overall sense of getting better thought. It is very unnerving to go to so many doctors and none of them are able to give you an answer. This has opened my eyes to the reality of the medical profession that we all live with. There is a lot we don’t know about our bodies. I too still have no real answer. Let me also say that I working out eavery day, eat well, and was in generally good shape prior to this. It seems that oddly this is common. 

 

Thank you for responding and sharing your symptoms with me. I agree with your comments in regards to how our medical professionals can contradict themselves so quickly. I like you , are finding my symptoms being less severe,  but my right side has stopped the feelings of pins and needles, however my left side has now started, and if I turn too quickly my balance is misplaced. There just seems to be so many viruses effecting people that there is no explanation for, however Doctors just want to label it. I do hope you get better soon. 

Hello Amanda and Luvubeaner,

I started this post nearly a year ago and am afraid I still have symptoms... Mainly tingling and numbness in the legs. Sometimes in the arms. My main problems are achy knees.

Have you both actually been to see a neurologist and been given a diagnosis of post viral symptoms? I am afraid I have and it just sounds soooo bizarre to have this "illness". I am curious what did your neurologist recommend? Mine just said nothing to do but sit it out. Well it's nearly been a year and I still have symptoms.

By the way do you have tiredness and fatigue because I do not have this symptoms just normal fatigue etc.

I have tried taking vitimins but I really do not see it making a difference to me.

Hugs to everyone.

One thing for sure it is not "in our heads" and "we are not bonkers". By sharing our comments our symptons are similar and real. In the beginning my GP looked at me like I was crazy.

Thank you for your feedback. My symptoms started as I tried to explain to the Doctors as if I was standing in a freezing cold bucket of water but my legs were warm to touch. It then went into my right arm and I started to struggle to walk. The freezing cold feeling has now gone but i still have the tight, tingling feeling but now In my left side, the right side is now fine after 3 months. I do on occasions get tired, that I fall asleep on the chair, which I never did before. I only seen my Consultant when I was leaving the hospital, who said rest and take paracetamol as it was a virus there was nothing they could give me! I just get frustrated in that, there is nothing they can do in this day and age, and that they keep changing their mind on what is wrong with me. They told me all tested were fine, except the MRI showed small black cells in my fluid spine, that they believed was a virus. Then it was a 95% chance it was an MS attack. But I have been told that there needs to be something showing in my bloods, or glucose fluid to show MS. I am currently taking Vitamin D, Vitamin E and cod liver oil. I now faithfully drink at least 1.5 to 2 litres of water a day, and really try to eat even more healthier. I cNot go to my gym or any classes as I don't have the balance and also the feelings in my legs and arms wouldn't help. So I have been taking a 2 mile walk most nights. Don't know if it is helping, but I will give anything a try. I am sorry to hear that you are still suffering. My MRI is next Tuesday and the consultant on 9 September, so I may have more answers then. 

Elle,

I had achy knees for several months after this started. I lot of that has subsided. Is the tingling constant or is it like your body is pressure sensitive? For me I couldn't lay on my back for months, but I could lay on my side. I still can't lay on the floor long on my elbows or my hands will get tingly. Does it change day to day? I have different symtoms come and go. Some other things I have experienced are light sensitivity and my eyes are mildly bloodshot.  

Sorry I didn't answer all your questions...my neurologist felt it was "systemic" and that it wasn't MS, ALS, Lupus, etc. She said it is too widespread and that those diseases don't present that way. She gave me no answers.

What exactly did your doctor mean by systemic? My neuro thinks it's anxiety, which is just nonsense. I had a lot of tests that were all normal, but I still feel horrible. I've been worried that I have a few diseases because my symptoms are so scary!

My understanding of that term is whole body or system in the medical world.

Hello everyone,

That gave me a giggle ( a sarcastic one) why do all doctors say it is anxiety ! That gets on my nerves (pun unintentional). It looks like all three of us has had some kind of virus attack and our body is dealing with it in many guises.

We just have to keep on keeping on. It is great to hear that some of our symptons come and go and some have gone forever. So that means for the three of us our symptons should all go eventually. Fingers crossed.

I have been doing this. I must admit on and off:

Vitimin d

Cod liver oil

Magnesium

And try to take a spoonful of manuka a day. ( it is expensive )

I hope you do better with the vitimins etc. can't do no harm.

Well this has not got rid of the tingly feeling nor has it improved the symptons in my knees. But I suppose I take them thinking " the next lot of vitimins" will fix all my symptons.

I must admit sometimes I feel very alone in this - muscle twitches are going crazy lately but am glad I can talk about it on this site and also offer some advice of the things I doing too ( ie vitimins) which has not helped me but may help you

To all,

Have any of you had any antibiotics? I have had about 5 rounds of various kinds. Just wondering.

Wow Luvubeaner that is a lot of antibiotics. Did any of them alleviate any of your symptons. I am afraid from the the very beginning I was not given any antibiotics because the GP said my symptons sounded like a viral infection from a cold ... Later I saw the neurologist and he did not prescribe me any antibiotics. But I remember he prescribed me with some pregabalin that is suppose to ease the symptons of pins and needles. Unfortunately this did not work so I gave up on them.

It is hard to say if the antibiotics are the reason I feel better or not. i do feel generally better since this started though. I was prescribed the antibiotics because my sinus infection wasn't going away. My feeling is the antibiotics can't hurt.

Hello girls,

I have a lot of similar symptoms and it seems they are from an infected root canal, please check this.

Hi Marian,

There is someone else on here who also has these symptoms from dental issues I know of. My own is from a car crash, seems some kind of trauma to the body whether from infection, physical, emotional, psychological seems to set off a chain reaction for some of us. Have you had the problem alleviated now?

Beverley

Realise this is an old post but just wondering how you are and others? I have a vague diagnosis of PV syndrome but finding it hard to accept. A close colleague at work has the same, both for 6 months now. All blood work, investigations are normal. Feel we have an ongoing infection that no one can find. Symptoms wax and wane, have generally improved but still impacting hugely on life. Initial upset stomach, nausea, heartburn, malaise, fatigue, headaches, body aches, neuralgia. 

Thanks.