Prednisone allergy
Posted , 10 users are following.
well, well, well, saw my Rheumy last week. Today I opened the online portal to see the "summary of visit".
I looked at list of my meds and saw a list of allergies.
She told me to eat coconut, but I told her I think I'm allergic, I've gotten rashes and often itch after I've consumed it or even rubbed on skin. So I saw coconut was added to the list.
Then I saw Prednisone was on the list and it said, upset GI.
She never admitted this to me, I've told her of chest tightness since the beginning.
I'm betting since they don't know what else to do, the doctors did nothing but let me suffer with stomach issues.
I say this on forum for extra knowledge for others since I didn't know what was going on in the beginning.
I did wonder when I've read about allergic reactions to Prednisone could be chest tightness. Lovely.
1 like, 11 replies
elizabeth53956 LayneTX
Posted
sandra28555 LayneTX
Posted
Flutterbie57 LayneTX
Posted
EileenH LayneTX
Posted
Have you all had good cardiac checks? When this current flare produced extreme breathlessness after walking up a very gentle slope - the day before I'd gone the full circular walk round the village - when I finally saw the local medical consultant about 2 weeks later the the first thing he checked was BNP, a test for cardiac function and a chest x-ray.
Any doctor who is too lazy to examine the patient would lose my custom straight away. My GP got it wrong for 5 years but he did examine me! I later discovered that if I'd seen a different GP in the practice it would have been recognised straight away.
LayneTX EileenH
Posted
6 moths prior to PMR onset, I did have my first ever episode on a very stressful day and I was driving when I felt I couldn't breath, got dizzy, ended up at doctors office and she said my heart was contracting early or something like that? I did wear heart monitor for a week and they found nothing. Never experienced that again,
EileenH LayneTX
Posted
lorna77990 LayneTX
Posted
My GP and the pharmasyst warned me about GI issues. I take my med in the morning to try and off set an upset stomach. It has worked for me.
Cheers from NC
Canada
LayneTX lorna77990
Posted
I think just some people it doesn't effect which is great.
I never gained weight, did have round face and hump back.
so glad Lorna it's not affecting you, yea!
FlipDover_Aust LayneTX
Posted
What are you going to do?
LayneTX FlipDover_Aust
Posted
She has me on two DMARDS thinking it helps with reduction, but I want to doubt it, but heck, I might as well think positively and say it does help. Ha, ha.
But hope my experience will somehow get out there that there are potential allergies to it and doctors should notice. I hope like heck my stomach heals and not get worse! I really try to avoid foods that can be harsh on tummy.
EileenH LayneTX
Posted
In the most recent (2015) international recommendations for the management of PMR, Recommendation 5 on p2575 recommends considering the use of injections as an alternative to oral steroids.
Usual place: https://patient.info/forums/discuss/pmr-gca-website-addresses-and-resources-35316
after the Bristol paper.
These are Recommendatins drawn up by a combined committee on behalf of the European and American Colleges of Rheumatology so it doesn't matter where you are, they can't say "oh they do it differently there". As if PMR or GCA are different just because you live in the US rather than the UK. which one rheumy did say.