Pregabalin

How long have you been on Lyrica Elizabeth? Wise choice to get off it by the way, and our post has inspired me to do just that. Its the dementia indictors that worry me the most.

Jemstone, i have heard its good epilepsy but not for fibromyalgia.

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No this is not good for Fibro in teens. The brain is still forming and Pregabalin changes the brain chemistry and central nervous system. In my view no GP or Consultant should ever offer this drug to under 25's (at that age they can make a qualified decision for themselves after doing necessary research on this drug). There is little evidence available that it helps Fibromyalgia at all and I question why it is used for this. It is given out for so many health issues now, as if it is a wonder drug. It is not as the testimony of many patients tells. There are some people who do benefit from taking it without the side effects taking hold but far fewer than those who suffer from using it. 

Do you know any good drugs for fibro on teens? they'll probably have to mix with 10 mg amitriptyline and 40 mg propranolol per day.

There are few drugs that help Fibro I am afraid although there are a lot of natural remedies that others try and find give some relief. In the main, the drugs Doctors offer are too powerful and meant for other reasons and at times appear to help initially but then the pain and flares get worse...upping the dosage just does more harm than good in the end. If you like, I can ask what other Fibro sufferers use and get back to you? It certainly would be better to go the natural route in teenage years as at least no harm should be done to a young body. I cannot recommend anything myself as I do not suffer with this but have friends who do and I know would not mind sharing their knowledge should you wish me to ask for you.

That would be really helpful if you could. I hope I'm not being a pain. Anything that could help.  Thank you!

Give me a couple of days as I have to go for a Scan tomorrow. I don't mind at all if you don't mind waiting 

That's completely fine, good luck with your scan Bear in mind I'm 13 (probably the youngest person to exist on Patient)

I am so sorry to bother you but I really need some help as I'm only getting 2 hours sleep a night and in incredible amounts of pain! I hope you are doing OK.

that does not sound good jemstone.  My best advice would be to go to a herbalist health shop and tell them your situation and they can spend an hour with your or something talking and stuff and end up making a solution liquid of special herbs and meds that work just for you and no one else, My mother in law did this for her ailments and wow she swears by it and wishes she went yrs back. It is probably one of the best things  you could do that is if your parents can afford it. Perhaps ring a herbal health shop and ask if they do that and ask prices etc then ask mum or dad  that way its not an out right no at first as you may be surprised 

 

You are not bothering me at all, just that something went wrong at my scan and I had to stay in hospital so only just home. Now, I am very concerned that being 13 yrs old and your body and brain still forming (which as I said was a big NONO to being put on Pregabalin) that even some natural remedies may not be good for you either, including herbal remedies. Natural supplements have to be purchased from UK Companies that comply to the letter with our Laws etc. and can be expensive. I notice, bless you, that you are doing your own research to try and help yourself but may I ask if your parent/s are on board with you taking supplements? You can private message me if you prefer as I do not wish you to give private information about yourself on forum if you do not wish to. I am 68 yrs old (ancient to you I am sure LOL) and as much as I wish to help you I have to consider your circumstances and very young age. You are already on Amitriptyline and Propranolol....Amitrip is a very old drug (over 50years) and was used as an anti depressant initially but found to also help with sleep, which does not appear to be helping you, and some kinds of pain. Thankfully you are on a low dose but I would caution you going on a higher one! There are certain supplements that do not mix with certain drugs and that has to be researched. Please understand that if any advice I gave you resulted in doing you harm 1) I would never forgive myself and 2) I could be charged in Law. 

I am so very sorry that you are in so much pain and wonder if you have been diagnosed with any other condition/s? Is it your family GP who suggested you go on Pregabalin? Without more information I'm afraid I can't offer the help you so clearly need. I am still gathering information on supplements used by my Fibro sufferers, but it will need research before I can pass it on and more info from you personally. Have you looked on Fb to see if there any any Fibromyalgia Groups that you are able to join? These can be very helpful but you will need to admit your age. Pm me if you feel you can.

ok i'll pm you tomorrow

Hi again. There are two natural remedies that a friend of mine gives to her 11yr old daughter which I also happen to take myself for pain, anxiety and relaxation. Also L-Theanine helps me with sleep. They have certainly helped me! These are: Passion flower and L-Theanine. There are no contra-indications that I can find but please do your own research. These can be purchased through Amazon from Health4All and are not expensive. Hope this helps and look forward to your pm tomorrow. x