Pregabalin Withdrawal Timescale and Symptoms

Posted , 52 users are following.

I have been on 600mg Pregabalin for 2 years for muscle spasms in the back as a result of the muscles in the left lumbar region apparently distrophying.  

I have been warned about hyperalgesia syndrome and have been trying to self withdraw from the drug.  300mg per day to start with and achieved with fairly severe side effects but were alleviated within three weeks.  And now I have gone cold turkey for two of the most physically horrible weeks possible - intense pain, nausia, lethargy and foggyness, sickness and depression.  

Im sticking at it as it has to be worth it - has anyone else done similar with same quantities?

6 likes, 62 replies

62 Replies

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  • Posted

    I've been buying Internet ones plus

    My weekly prescription, so what I'm asking is, is the Internet have the same withdrawal?

  • Posted

    i had been on 600 mg of pregabalin for over 9 years and it was only the last 4 years i started getting very bad side effects including speech issues. My neurologist told me after my throat scan came back as normal that it was " all in my head" for attention! Apparently medication would not cause all the 30 side effects that i gad been getting. i started to taper off slowly and it has taken 6 months to be free of pregabalin and i am now on week 3 of being free from this drug and surprise surprise the 30 odd side effects have gone! My own Dr ( a new surgery to me) was horrified at how many side effects i had been getting and was not aware of just what a horrendous drug this is. i am moving forward and it us such a relief that people can actually understand my speech where as before i used to have the Mickey taken out of my speech at times. Admittedly all my nerve pain is back but i am going back to basics when it comes to medication and anything i am prescribed i will do my homework with and nit just take it.

  • Posted

    12 months ago I started on 2700mg a day of gabapentin for bulging discs in my lower vertebrae, I was permanently tired, lightheaded and still in pain. I was advised to wean down and started pregabalin 6 months ago, I had awful side effects including dizziness, drowsiness, being off-balanced, dry mouthed and breathless, again I was advised to wean down from 600mg a day to 100mg before starting deluxetine. Told to take co-codomol 30/500mg 8 a day and oramorph 4 times a day. I weaned down to 100mg and stopped altogether and then the nausea started, 5 days of not wanting to eat, tea/coffee tasted awful, the doctor sent me for a covid test because of my change in taste which came back negative. Its now been 8 days since I stopped and I feel awful, my skin itches, I feel so sick and i'm exhausted all the time, the dr suggested i go back on a very low dose of pregabalin but i refused so i'm taking it a day at a time I also refused to start deluxetine. The other down side is the pain has increased a lot so not sure where i go from here.

  • Posted

    hi paula that is a very high dose i was on it for a year then i got off for 6 months and did 2 weeks what is weird i still felt a withdrawal after the 2 week period it lasted a month then at it was gone ...i will never take it again i took a really low dose of gabapentin to wean myself off i would pour capsules of it in an empty bottle and get enough to cover the tip of my index finger and put the powder in my my mouth and wash it down with juice or something it was probably like only 10 mg just enough so i could sleep at night i know it sounds weird but it worked for me gabapentin is hard to get off too be not as hard as pregabalin i hope you can find a way to lower down more before you go completely cold turkey

  • Posted

    Hello Paula and all my fellow users.

    I was manoeuvring between Gabapentin 300mg and after a year or so my doctor prescribed Pregabalin 100mg for me. My other drugs were Es-Citaloperam 20mg along Pre. and in the evening 1/2 of Quetiapine 25 and Clonazepam. I tried to stop escitaloperam by going from 20 to 10mg but the brain shocks and the brain haziness comes and I understood my levels of hormone in the brain aren't functioning well so I still need to take 20mg. how do i know about this? well even when the doctor raised my dose from 10mg to 20mg i knew something is not doing its job and this drug suppose to block serotonin inhibitors in the brain so the body try more to produce serotonin! what i'm trying to say is that by knowing what the drug acts in your body you can understand the nature of it, hence you can jiggle it, play with it, dose it up or down. if you feel better by living better you feel the need of something to take much fewer and you can make your dose down gradually, if you still feel the need to take your drug or you even consider taking Recreational drugs, probably it's not the time for you to break the habit of taking that drug.

    I hope I could say my mind the way it is in my own head.

    Stay safe and sound,

    Sincerely

    H

  • Posted

    Hi all, for those who have successfuly came off pregablin and stayed off what helped you in the first few weeks?

    My partner was unfortunately taking very high amounts and purchasing off the streets, he tried to wean himself off which didnt work so hes gone cold turkey and were currently on day 5. Hes been unable to eat, had uncontrolable itching, sickness, been confused, tired etc you name it.

    I want to get him back on track and feeling healthy once hes recovered, what suppliments / vitamins do you all recommend?

    Also the doctors have been pretty terrible with helping him and just keep prescribing him random anxiety medications knowing he was already taking a high amount of pregabalin, he doesnt even have anxiety! He doesnt want to take any medications once he comes off and i agree? Just looking for some reassurance as hes in a terrible state at the minute!

  • Posted

    hey all! i just wanted firstly say thank god for this forum! all these replies actually helped me get off pregabalin & know it wasnt me & i wasnt alone.

    i saw so many replies on here about coming off & when i tell you i tried twife before and failed badly to which i made some mistakes, i was being sick, upset stomach, hot & cold sweats you name it coming off these the tablet gives you that side effect.

    i found out i had celiac disease march 2020 ; it hit me for six & my anxiety increased i was put on pregabalin because i couldnt take beater blockers, i have bradycardia. Its effected me in the long run in my relationship for a man anyway & decided to come off, i tried before & failed badly, got very poorly very fast & had to go back on them. when i started taking them again all the symptoms went away & it goes back to normal''' whilst wanting to come off which the doctors dont really help i found this forum & you made it so much more better for me and the mindset knowing i wasnt alone or weak!

    I wont bore you with the first part but i basically had my tablets changed from 50’s to 25’s as i came down & did this week by week.

    When i got down to 25 morning, 25 day, 25 night this is where you have to be clever when before i wasnt & just dropped them thinking 25 wont be bad! How wrong i was!

    25 middle day dropped for a week, done & not to bad.

    Next was the morning dose & left the night but instead of taking it at night i moved it to 4pm which helped in the body clock and tablets as i used to get sickness in the afternoon. This leaves the last 25mg which i know if you stop it just like that your body doesnt like that so i moved after 2 weeks of 1 tablet at 4pm to taking it at 12 noon & this time for 2 weeks i did every other day ( something i should have done before ) .. if your on 50 tablets cut them in half or break it into powder & split to half.

    Ive now been off pregabalin for my second week now with none of the side effects i had before other than abit itchy & mentally its tough but its farrrrr better than last time & im so so pleased im off them! I read people in here say by week 4 start to feel normal again! I cant wait for week 4 if i feel ok now.

    Thank you everyone that wrote in here! You helped me with this & ive never written in a forum before this is my first one! Thank you everyone & i hope you all can get off them and live happier without the nasty drug.

    Love.

  • Posted

    This is going to sound impossible, but i assure you it's true. I developed an addiction to pregabalin where i had an arrangement with a Dr and family members. I was taking (10) 300 mg capsules a day, minimum. I have taken 20+ a day. Obviously, on such a high dose, this has been hell. After failed attempts, I lost my Dr. This was a blessing in disguise. I'd spend a week every month extremely ill. I'd take Gabapentin, but for whatever reason, it wasn't a ton of help. My new Dr. wouldn't prescribe me as much. This hasn't been a linear progression, but my nee Dr. has retired bc of health struggles and i have decided that i am finished with this. I had tapered to 600 mg per day. It has been horrible, but it's been 5 days and for the first time ever, I'm using nothing. I've experienced: itching, freezing, hot flashes, headaches, body aches, sleeplessness, inability to sit still. Over the last couple of days, due to the months of on and off again, i assume, the symptoms have become more psychological. It's paralyzing, the anxiety, the depression, the up and down, but I'm sticking this out. I've had it worse than this before. I've just never tried to go longer than 10 days. Good luck to you. You can definitely do it.

  • Posted

    Oh yeah, the things I have noticed to be helpful are: taper as slowly as possible. Eat regularly. No caffeine. My body is incredibly sensitive to these things. Warm baths, especially before bed. Avoid stressful situations, but try to get up and move.

  • Edited

    My son has been on Pregabalin for several years now, for both severe anxiety and nerve pain. Over the last 4 months, his doctor has been slowly weaning him off it, and in order to control the process, has been giving him daily prescriptions. He is now down to 400 mg daily.

    Over the last few weeks though, the doctor has been regularly failing to actually sign the prescriptions, and last week this escalated, so that he had to wait at the surgery 3 times (out of 5) until the late afternoon to receive his medication. The constant irregularity of dosage alone initiated a visible decline in his mental health and an increase in his pain levels.

    On Saturday morning, when once again no prescription had been signed, the surgery was not open to remedy the situation. He was directed to telephone 111 to find another doctor who would write one out for him. He was finally (after 3 failed attempts to get a prescription sent to a local pharmacy, and after his own pharmacy had closed) told that one could be sent to a pharmacy in a neighbouring town ( at least 1 hours travelling time away) It was now almost 6pm.....we do not have a car, and he cannot drive for medical reasons. There is no local public transport to that town, and the designated pharmacy was closing at 6 pm, so he couldn't have possibly accessed it anyway.

    By now withdrawal had well and truly kicked in, He had a monster of a headache, nerve pains in his leg, the runs, nausea, fast heartrate (panic) and suicidal thoughts were starting to race through his brain. He was told there was nothing they could do. He would have to wait until Monday..... in other words, go cold turkey.

    It was the worst weekend I can remember, he was so ill, and had to be supervised at all times, to prevent self harm/ suicide. He neither slept nor ate for over 48 hours.

    On Monday morning, there was still no prescription, but a different doctor in the surgery finally wrote him out one at 11 am. It seemed to make no difference to either his physical or mental state.

    Today is Tuesday, but he is still suicidal, heart rate still elevated, the headache and nerve pain is still there, and he is so deeply anxious and depressed, I am seriously afraid for what might happen. He would normally only become violent with himself, but in this state he has also been known to become a danger to others too. He has lodged a complaint, but unfortunately it seems the damage has already been done.

    This is a dreadful drug. I can understand why he wants to detox, and why you do too, but it is clearly not easy, and potentially very dangerous. I hope your symptoms have eased now. My son still has a long way to go, if he actually makes it at all. I really wish he'd never been prescribed it in the first place.

  • Posted

    h> i read your entry and i know i need help. I been on pregabalin for 4 years between 600mg and 1200mg/day. i run oit early at times and get early refills quite easily. However i have been reading more and realize now that alot of my issues are being caused by the meds and not the illness. i have ms and the pain for the ms put me on a road to excessive medication abuse. i was diagnosed in 2002 and was issued vicodin then went up over time to oxys. then off of those to methadone which i am on still now with the pregabalin. i want off the pregabalin but im terrified of the withdrawal symptoms ill encounter. can anyone please tell me how i can get off this stuff comfortably?? i have felt some withdrawl already at times that i have ran out and its scares the hell outta me....can anyone please help me???

  • Posted

    hi folks,

    ive been put on this for nerve pain in shoulder. im a bit worried about it now. im on 100mg twice a day

    nothing else works and sleep was a huge problem affecting my life negatively

    whats your thoughts??

    j

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