Pregnancy with Bronchiectasis and Pseudomonas?
Posted , 5 users are following.
HI everyone,
I'm a 30-year-old woman with the above stated condition and I'm still trying to decide whether or not having children is something I should/can do. All my doctors told me I can absolutely go for it, but I have some specific concerns.
Does pregnancy actually heal or exhaust you? (Some women have said that pregnancy has is "regenerating")
Does all the work around the baby and the lack of sleep worsen your condition?
I would appreciate to hear some of your thoughts and, from all the moms, the experiences.
1 like, 6 replies
eve75 alouette
Posted
I do get very exhausted by the end of the day, but hey I am a mum of 3 busy children and I also teach a year 5 class 3 days a week.
Even though I am exhausted, I would not give up what I have! I do get sick often, I do suffer from lung pain but I don't give in. During my pregnancy and breastfeeding I was on antibiotics at times but as long as you have a good obstetrician you will know what is safe and what isn't.
Living with bronchiectasis is all about balance, exercise, postive mind, good diet and time out! Don't give in to it, the more you move and live your life the better life you will have!
Hope my story helps.
John_N_B alouette
Posted
Having children is challenging for every parent in different ways. You will find life difficult at times, but you probably have your difficulties now and there's nothing more rewarding and worthwhile than bringing up children. Children are very adaptable and they would be an enormous support to you as they grow. Living for your children rather than constraining your life within the limits the illness places on you could also be theraputic. Don't let your illness deprive you of the wonderful experiences having a family can bring as I suspect you would regret it for the rest of your life. Use Eve as a role model and build yourself a future.
Best wishes.
John
Stixlabushka alouette
Posted
there are plenty of pro's and very few cons - but they are crackers!!
the cons on the other hand are tough and certainly test you as a human - even without Bronch.
they totally exhust you, you are on call 27/7/365
and i didnt need to breast feed.
when they are babies its easier, you sleep when they sleep, you let them eat, then you eat. cyclical!
once daycare and interaction kicks in it's another story. GERMS and VIRUS' everywhere. which leads to us bronchs acting like retards not being able to live a normal life. this part sux arse so if you ahve a supportive partner, family, friends and whatever you safety net maybe then you should be ok-ish.
i'll be honest it hurts. in the last 4 years i have spent 300 days in hospital and 300 being sick. my daughter is now 6. its been really hard on the family unit. as i start to get sick my patience starts to wear thin and i get angry quick- she didn't understand it at first, but now i can tell her and she can relate.
the lack of sleep = lower tolerence to stay healthy.
from a males point of view with personal experience its your call.
but weigh up the odds and you make the decision.
as long as you have the support and have spoken to your specialists, shrink nd parents.
alouette
Posted
I wrote this only 10 monts ago, but my condition has worsened so much, as the Pseudomonas has become basically uncontrollable.
I have another question - has anyone here been pregnant with Pseudomonas and how do you go without antibiotics for 9 months? And breastfeeding?
Thanks.
debra64041 alouette
Posted
alouette debra64041
Posted
Hi, thanks for the reply. Everything you say is almost exaclty how I feel about babies right now. And all the people around me don't really understand how it feels to have lung issues, so they think I can do it. And yes, the bugs they bring home, that's scary.
The problem with my PS is I only feel ok while on meds. Azitromycin gives me Candida, Cypro gives me fever-like side effects. All the natural remedies that used to help in the past are not as effective, and the BX seems to have spread a little.And this is all thanks to an extremely stressful period which happened in February. So I will probably have to go to hospital again where I'll get traumatized looking at people dying from lung cancer.