Premarin advice needed

Posted , 5 users are following.

hi

i need advice please.

iv been on tiberlone for 15 years due to a total hysterectomy which I have had no problems with I was on 2.5mg every other day my choice.

but my gp changed me to a estrogen one only Premarin I tool my first one Friday and yesterday I had a bad migraine. I was awake all night with it and feel complete rubbish this morning. 

Im so scared of taking another.

sorry if I have spelt anything wrong but my vision is still bad from the migraine.

i don't know if to not take anymore and phone the gp up tomorrow to go back on the tiberlone. Which I know has a higher risk. Feeling very low this morning iv had a bad year with health Anxiety which I am on sertraline for and I was back on track, but now I feel I'm back to square one. I feel out of sorts, headache, tingly fingers, nauseous, don't know if it's down to the HRT or anxiety now. 

Sorry for the long post.

i do have the occasional migraines, 

does anyone else have migraine side effects with Premarin 

0 likes, 16 replies

16 Replies

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  • Posted

    Ps. 

    the dose the gp put me on with the Premarin is 0.3mg. 

  • Posted

    I don't know anything about Tiberlone but I know that Premarin should be banned.

    I have been on oestradiol for 26 years and have had no problems with it.  The best thing ever.  It is bio-identical and it is best used transdermally.

     

    • Posted

      I know there is risks with every HRTs I haven't heard of oestradiol. Is it a estrogen only. 

      A elderly lady I know has been on Premarin for 30 years and had no problem. 

      A nurse I went to see for a check up on another issue she's been on it too for years, with no problems. 

      She did say if I have any problems I can go back to tiberlone, but obviously I don't need a combined one. I just want to get on with life iv had a crap 12 months health wise as it is.

      thank you for replying 

       

    • Posted

      Yes, it is oestrogen only.  When my gp insisted I use Ralovera (progestin) too, that is when I developed problems but every other reason was given except the Ralovera.  It is an oestrogen antagonist, so reduces the effectiveness of oestrogen.

      It is only necessary when a woman has a uterus and I don't have one, except I did have a lot of endometriosis before my surgical removal.  That is why I agreed to the Ralovera in the first place.  A few weeks ago, I ditched it and now no longer have head sweats.  Sweet.

      It is best that you read up a lot about different oestrogens, not just from blogs.

       

  • Posted

    Hi, Julie, sorry you are feeling so bad.  Why did they change you from the thing that was working?

     

    • Posted

      Hi Kathleen.

       im sat here feeling so drained.

      not done a thing all day because I haven't got any energy

       I took my last tiberlone last Wednesday I only took one every other day of those anyway which suited me..

      she said that I didn't need to be on a combined one beings I didn't have womb or ovaries and estrogen only,.. lowers the risk of strokes and blood clots.

      i don't know what to do now, do I carry on taking the Premarin. Would I feel so ill after just taking one, now 2 had another this morn.

      or do I take the risk and go back on tiberlone that's worked for the last 15 years.

      i suffer from anxiety and that's why I'm on sertraline which was working with the tiberlone.

      but nobody want to have a stoke or blood clots, but I don't want to feel like this either. but the gp has scared me now. 

      Thank you for replying. 

      Just feel so low today. 

       

  • Posted

    Julie, to the doctor, you are one of many.  To you, you are the important one, and your problems are real and they are yours.  I am thinking you are in England or around there?  Here in the states, it has become normal, at least in my world, that the doctors are not very aware or that they just don't care to take the time to know patients, and they don't explain anything much anymore.  This is problematic to me, and I have had to become my own advocate, and research everything they give or tell me and ask a lot of questions.  The best visit I had with the doctor has been the one time lately when the computer system was broken and he had to sit and talk to me.  That is sad, but the reality of medical care these days.  It is all about production.  Think about this, as I did, and asked my previous doctor before I agreed to use him as my regular doctor:  how long has this person lived in your body?  Only you know when something doesn't feel right.  Not everyone reacts the same way to drugs.  We do not all fall into that "normal" category.  But the doctor won't be aware of it unless you tell him or her.  Read everything you can about the medicines you are prescribed.  Then read about how the meds you take interact with each other, and possibly with other medical conditions you may be experiencing.  I have had migraines, and I would not take anything a second time if it caused me to have my head explode like that.  But that is just me and how I react to migraines.  if you don't get satisfaction or relief from your physician, and they won't listen to what you are telling them, change physicians.  I have no knowledge about the doctors and availability in other countries, but I live in South Texas, where good doctors are few and far between, but I am allowed to go to a different area for care if I choose, and I do.  I drive two and a half hours to see the Orthopedic doctors because of a bad experience with the ones here.  And I was basically told I was too old for HRT when I asked for it from the GYN I saw last month, so went to a different doctor.  And I read everything I can to see what they are doing to me, because I have become very distrusful after having had several incidents with doctors giving me meds that I am allergic to after my telling them I was very allergic.  I don't know if it is incompetence or that they just don't care, but either way, the result is the same, and it is my life at stake when that happens.  

    So, what I am trying to say is read everything you can, research all the meds they give you, and take care of yourself.  To me, feeling terrible is 100% happening, and is much more valid in my world than their probabilities of something possibly happening to me just because a percentage of people had it happen in some tests.  That is a chance.  My feeling terribly is a reality.  

    So that is just how I deal with it.  I don't get satisfaction all the time, and am very sad about our medical care and how it has evolved into a sham for the most part, controlled by the drug companies and money.  But, the only thing I can do for myself is question everything and tell the doctor.  If the doctor doesn't listen, I go to a different one.  Remember, they work for you.  You are the boss of your body and your body's care.  I hope you get to feeling better.  I know how it is to feel like crap.  I have felt that way for years and finally am doing something about the hormone replacement, after my daughter finally told me how she has seen the changes over the years.  I am 64, so that is a long time.  Keep us posted and take care.

    • Posted

      Thank you Kathleen.

      im in England 

      last year I was put on beta blockers to slow down my heart rate which was going crazy though anxiety, I was passing out, 

      i was also on Reflux tablets for 5 years and they are supposed to be for short term use. 

      Enough was enough, I went cold turkey because I was feeling so ill and down. 

      But the out come of having all that going on and family and work issues I was suffering from depression so I asked to be put on a low dose of antidepressants. Had a rocky ride for a couple of months until they settled into my system after that iv felt great, I start taking Premarin and I feel awful. I feel spaced out, and generally out of sorts,  so I dont think that the premarin and the sertraline work together, 

      so im going to phone the surgery in the morning to see if I can get back on the tiberlone.

      iv got a draw full of medication which Iv had bad reaction too.

      my motto is if it isn't broken don't try and fix it.

      by the way iv turned 57 last weekend, I felt so good as well went away for my birthday and walked miles in Whitby on the coast. Did the 199 steps up to the Abby.

      and a week later I feel crap.

      all I can put it down to is the change in medication. 

      I glad you stood your ground and got what you wanted, like you said everyone is different, one person can smoke 30 cigs a day and not get cancer and someone that hasn't touch a cig gets cancer. 

      will let you know if I get the tiberlone when I get past the receptionist who over here think they are god. 

      Kind regard and good health 

  • Posted

    Hang in there, Julie.

    Maybe you are one who just can't do the premarin.  Did you know they make it out of pregnant mare pee?  If you have any allergies to horses, I wonder if that would cause you to have a bad reaction.  I am so allergic to so many medications, that I have to look at ingredients and make sure it has nothing I am going to die over, ya know?  See if you can get past the receptionist and get some relief from this as soon as you can.  I get so tired of feeling miserable.  I hope you get to feeling better soon.

  • Posted

    Kathleen is correct, Premarin is made from horse urine. They keep the pregnant mares in horrendous conditions in stalls so that they can barely move and give them as little water to drink as possible to ensure their urine is very concentrated and contains lots of the horse oestrogen used in Premarin. First of all I wouldn't use it for moral reasons and secondly this is a horse hormone - why are they giving horse hormones to people? It is not necessary. No wonder women have side effects.

    • Posted

      Hi.

      iv been on tiberlone for 15 years and been ok so far.

      it wasn't my choice to go on Premarin and I didn't know what was in it.

      until I saw it on here. 

      which I'm surprised about is that the lady gp who priscibed it to me has horses!! 

      I agree they shouldn't give us meds without saying what's in them then we can make up our own minds, but I carnt take them any way.

      Any how they under a lot of fuss gave me 1 month of tiberlone until I get to see the same gp on the 21st.

      so I hopefully will get sorted, 

      but if I don't take. HRT for more than 2 days I get the flushes back and feel spaced out. So I need something. 

       

  • Posted

    Hi Julie, i was of the understanding if you had a total hysterectomy you should be on estrogen only & not progesterone? Maybe go back to see GP & tell him they are making you feel so out of sorts. I do take HRT both Estrogen & progesterone. the symptoms you are having can be caused thru anxiety, i use to be the same. Got my HRT changed all good now. I hope you get things sorted.

    • Posted

      Hi Mars.

      its not the combined one iv been on for 15 years that made me poorly, it was the Premarin estrogen only one iv had the problem with.

      when I went to the gp she picked up that I was on estrogen and progesterone, 

      That's why she gave me Premarin.

      iv got an appointment on the 21st to see the same GP and hopefully get sorted.

      at 57 im a bit worried that they might say no HRT, but when I don't take them I get hot flushes and working in a kitchen for my job it's not good.

      thank you for replying 

    • Posted

      Hi Julie, yes a nightmare those flushes!  I do hope you get sorted my Hrt has stoped mine but i still get hot cooking, but not so bad. They should not say no to HRT there are other ones they can try you on, insist you can't cope with your job. I am going to be 64 soon. I have been taking HRT for 7 years now, i have been on a few different ones, let me know what GP says.

       

    • Posted

      will keep you posted on what she says and hopefully gives me

      take care 

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