prinzmetals angina
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I have had prinzmetal's angina for over 7 years. Information about prinzmetal's says that pain occurs at night while in bed. Well not in my case. I get angina pain in the day time as well at night. Does anyone out there get pain in the day as I do ? I get pain at anytime, when it is cold or when I feel stressed and sometimes activity brings it on. I am taking a lot of medication for it , can't be without the nitro spray. Am having a lot of bad days lately hope to have a few good days soon.
Because prinzmetals is rare I feel a bit lonely having it , even though there are people who have the usual angina. It would be good to talk to somebody who prinzmetals.
14 likes, 699 replies
Guest
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cher42845 Guest
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Where are you at. If in USA please do go to Mayo Rochester MN and ask for the cardiac Team that handles Prinzemetla angina. I have had several cath there with provication. My cardiac at national Jewish & Mayo have said that I am one of the hardest pateints to control with the medications. I listed my meds on last update. Also if you are in UK Dr Abhiram Prasad at www.stgeorges.nhs.. I know soem other good one sdepending on waht country or state you are in.
rich5022 Guest
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That doctor was correct God rest her soul
samuels rich5022
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For some , they don't always work, I'm on 600 Mg a day and still have them frequenty, Perhexiline ( Pexsig ) was added to the mix, did help, now not as effective. Both Cardizem (Diltizem) and Perhexiline are calcium channel blockers. Both worked well for awhile. Our bodies will , well most people with this condition will develop a tolerence to angina medication and the attacks will return , for some it helps them permantly and that has to be a good thing for them, we know what it feels like and have our fingers crossed for them that their medication continues to work .
amy91711 Guest
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We have all been there with the cardiologist on call looking at us in scornful disbelief. So upsetting and annoying. I finally told the last one that just because it is rare, that doesn't mean that no one has it. SOMEBODY has to have it. And, I've been diagnosed with it. You should trust my regular doctor's diagnosis. (BTW, it took me 5 years to get that diagnosis! They covered a lot of other things until they put me through the machine.)
Stick with it.
christina1962
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josie_mccall
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Keep warm, keep taking the tablets, and if your spray doesn't help during an attack.. call the ambulance STAT!
Best Wishes
Shannon22
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I have just been diagnosed in the last week.
Katie93
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Just been diagnosed with this after years of suffering. The nurse said how it was so rare and the hardest condition to diagnose as they would have to see it happening but it only happens when someone is having an episode. My mum actually had a cardiac arrest from obviously sever chest pain that was not relieved however she was amazingly brought back with us and now takes slow release medication and was tol how important keeping the spray with her at all times is. The medication helps the night pains but she has been getting pains in day time. I think its because its cold and shes been stressed.
tigger123
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Hope this helps
Tigger123
alex_38985 tigger123
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john_smith
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I have had these symptoms; crushing chest pains, day and night, infrequently, for forty years. Blue light journeys to A & E twice in that time, with, 'no problem', ECG results, from doctors who have looked at me as if I was a hysterical time waster.
I was a vegetarian for most of that time, with a high dairy intake. 'Ah', you say, 'so the high calcium was triggering it'. But then three years ago i began to get more and more total body pain, which began in my feet and now exists 24/7, in every bone and muscle in my entire body. From Ibuprofen to Solpadol to Tramadol and Gabapentin and Amitriptylene, to the jackpot, morphine patches.
And along the way, a diagnosis of OsteoMalacia, aka Rickets, because of too little calcium caused by an acute lack of Vitamin D!
I had never heard of Prinzmetal angina before I found it this week on the internet. And I was looking on the internet because last week I had a Coronary Angiogram because finally my GP decided the chest pain required further investigation.
And guess what? The angiogram was, 'normal'. Why for Gods sake, when I was having the angiogram and knowing my symptoms, didn't the cardiologist test for this!!!
I am at my wits end, in constant crippling pain. Would anybody like to have a stab at a whole body diagnosis because having been passed from Rheumatologists to Neurologists to Cardiologists, all of whom deny any responsibility, I am now being, 'parked', in the pain clinic?
Cash prize for best answer! (That's a joke BTW).
Lisha
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