Probable early Secondary Endolymphatic Hydrops. Or may be Minear's Disease
Posted , 7 users are following.
It started 2years back in 2016with plugged ears in flight. It was very painful and took many days to get them unclogged. Now I have near constant ear fullness. Very mild tinnitus. No vertigo ever. Mild hearing loss but at high frequency. Felt pressure in head and temples. Low nausea almost everyday. MRI is normal. ECHOG report says abnormal report. DPOAE absent bilateral. At times I felt mild vibrations in head. Tympanogram report is normal and suggest no middle ear issue. Doctor has suggested probable early Secondary Endolymphatic Hydrops. I doubt I may have PLF or Dehiscence. Can Minears be there without vertigo?
0 likes, 19 replies
cathy63119 anadi_77868
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Gosh, really don't know. The mineres disease started with severe vertigo on me. Progressively increased and the TINNITUS is there always with no relief. Now I have low vertigo every day and as stated TINNITUS is horrible. Sorry you feel so bad. I'm new to this site so maybe some others can answer this?
anadi_77868 cathy63119
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cathy63119 anadi_77868
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Hi, no I don't remember. I woke up one morning and the vertigo was there, could not move. After the first episode, the spins kind of subsided, but then eventually the fullness in my left ear. Everything Progressively worsened from there. Vertigo, tinnitus etc.
anadi_77868 cathy63119
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cathy63119 anadi_77868
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You are so welcome I just understand how this disease is so debilitating and I wish someone would come up with the Cure or at least calm down the awful aspects of it. I have had this for over 20 years it started over 20 years ago like I said with the Vertigo Vertigo got so bad that I had to stop working for a while went to a ENT specialist that deals with Meniere's he gave me Gentamicin shots in my left ear but the sound he said there's nothing absolutely nothing that they can do about it suggested I get the hearing aids with the white noise in the worst ear because now it started in my right ear I don't know what the answer is but there's got to be one I'm ready to travel wherever to find the right doctor to take care of it I just can't stand it anymore. I wish you well and please if you find out any more information let us all know
christine_35821 anadi_77868
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anadi_77868 christine_35821
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Thanks a lot Christine. It helps. Knowing what a bad evil MD could. I pray day in and out not to have MD. I feel it could be PLF or dehiscence. Not sure. Met few neurotologist, neurologist, ent specialist. Noone managed to fully diagnose the issue. More of a wait and watch. May be no vertigo so far is not letting them decide. I'll soon be meeting very senior neurotologist, hope some help. This mild nausea and ear fullness is so irritating.
christina91807 anadi_77868
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Sounds just like me! PLEASE get checked for TMJD. People have been cured of their hydrops and Meniere's by exploring TMJD as their route. I have it and I was diagnosed with Meniere's.
anadi_77868 christina91807
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Thx Christina. I'm due for HRCT and MRI contrast. They should help find if any other underlying issue. Apart from all the literature on MD I found a paper on MD talking about possible root cause of endolymphtic Hydrops. Long one though. https://www.researchgate.net/publication/320557268_Middle_ear_muscle_dysfunction_as_the_cause_of_Meniere's_disease.
anadi_77868 christina91807
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christina91807 anadi_77868
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Good!! Make sure to find a GOOD specialist in your area. What part of the world are you in? I may be able to point you in the right direction. Don't listen to people who say this is it until you die, there's defo hope.
cathy63119 christina91807
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Hi Christina, need that hope..i asked the so called specialist here in Idaho about the betahistine. He said he has never heard of it. Actually told me to go see my primary doctor and ask for a good antidepressant so I would not care about the meniere's and horrible tinnitus!! I'm at
T the end?
christina91807 cathy63119
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Oh dear!!!!! Betahistine has been a lifesaver for me, despite the fact that my root problem is TMJD. I no longer have attacks thanks to it. I was diagnosed with Meniere's disease last year and am constantly dizzy. They seem to care more about my mental health than my physical health at the moment which is such a joke!
Please see if you can find a TMJ specialist, there is a Facebook group called "Meniere's Vertigo Tinnitus TMJ : Meniere's no more chat and support group", if you log on and read people's testimonies it is amazing to see.
christine_35821 cathy63119
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cathy63119 christine_35821
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christina91807 cathy63119
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Hi cathy,
I can't find any in Idaho...would you be able to travel to New Jersey or Memphis? The best two specialists live there
Guest christine_35821
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