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Probable early Secondary Endolymphatic Hydrops. Or may be Minear's Disease

Posted , 7 users are following.

anadi_77868
anadi_77868

It started 2years back in 2016with plugged ears in flight. It was very painful and took many days to get them unclogged. Now I have near constant ear fullness. Very mild tinnitus. No vertigo ever. Mild hearing loss but at high frequency. Felt pressure in head and temples. Low nausea almost everyday. MRI is normal. ECHOG report says abnormal report. DPOAE absent bilateral. At times I felt mild vibrations in head. Tympanogram report is normal and suggest no middle ear issue. Doctor has suggested probable early Secondary Endolymphatic Hydrops. I doubt I may have PLF or Dehiscence. Can Minears be there without vertigo?

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  • daniel27500
    daniel27500 anadi_77868

    Posted

    Hi Anadi, your symptoms sound remarkably similar to mine.  I have constant ear fullness on one side, very mild tinnitus and a very small amount of hearing loss at high frequency.  Tymponogram is normal as well.  I have been diagnosed with potential cochlea hydrops (I think the same thing as SEL).  What treatment are you taking? 
    • anadi_77868
      anadi_77868 daniel27500

      Posted

      Hi Daniel

      I'm not taking anything as of now. Taking homeopathy. My 2nd Ent do not agree fully for CEH /SEH. He asked me if I want he can give me diuretics, but not needed. I have even not cut on salt too much. My ECOG report says Endolymphatic Hydrops only, but due to hearing loss it could be false positive also. My symptoms have not improved. Little bit nausea also started. Homeopathy seems to be helping a bit.

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