problematic underarm surgery, please help.
Posted , 9 users are following.
I have suffered with HS for YEARS! My gp was less than helpful, protesting it was nothing more than boils and refusing to refer me to a dermatologist.
its taken six years to see a plastic surgeon and I have finally had my first
operation, I had it done march 30th. The wound was sutured and looked
Incredible, I was so happy. I had a drain in but that was removed the very next day and I was sent home.. then the problems started.....
Gradually, my wound has reopened! At first it was 3cm now its a huge cavity and the entirety of my arm pit.
my surgeon is on annual leave and everyone else seems reluctant to touch it, the latest after demanding to see another surgeon is that it should be left to open further?
I cant see my surgeon for another 9 days and I am feeling so low, my husband is doing everything for me and our family, even bathing me and getting me dressed.
I am meant to have the remaining stitches out tommorow but im not convinced thats a good idea..
Help me, please.
1 like, 24 replies
lauren4525 chrissey15612
Posted
Right. When you go to get your remaining stitches out, the person doing it should be able to tell that your arm isn't ready for it. At the end of the day, if you get them taken out and your arm deteriorates more and you get infected (sorry if this is putting horrid thoughts into your head!) it'll reflect badly on the medical practice, and they don't want that. Tell your physician or nurse your concerns - they're there to help you through this, and I know as a fellow HS sufferer that it's a b**** of a condition, and hopefully they'll listen and find a solution for you. It won't go away over night, but there we go - just got to ride it out .
Good luck! If you experience horrendous pain after going home, don't be afraid to go to A&E!
rachel052 chrissey15612
Posted
Your wound sounds horrendous. If your surgeon is on leave and nobody is willing to touch it, I would suggest going to A&E. An open wound is not good or correct, the hospital need to sort it in some way for you to avoid infection and unnecessary pain.
Discuss your concerns with the nurse removing your stitches. They will have a look and might suggest leaving the stitches in longer and clean it for your or dress it.
I hope it gets better quickly xx
chrissey15612
Posted
I feel totally useless and almost broken... I'm 25 on the 19th and I'll still be in this state when I should be well on the way RE healing.
the hole is huge, constantly weaping now there is blood on the dressing (im so lucky to have such a wonderful husband) he is redressing it right away when its needed.
its all making me question further surgery, I wouldnt say im a wuss but this has me in tears all the time.
how do you cope?
lauren4525 chrissey15612
Posted
Like Rachel said - you could try the A&E again and stress that it's hurting you and that it's seriously affecting your sense of well being. It's their job to sort this kinda stuff out.
Ah that sucks!! But just think - by the time you turn 26 you'll (or should be anyway) be healed and healthy and happy and ready to take on anything!
There's plenty of things you can do that don't involve you hurting your arm further - you just have to look on the brighter side of things. If there's such a thing as karma - you'll be owed a good time in the years to come!
My first surgery went absolutely brilliant - the scar was a little larger than I wanted, but it turned out alright in the end, and I personally don't think that my scar is that visable - just looks like a line of slightly-wrinkled skin. My second..well that's what I'm suffering with at the moement...but I'm already looking ahead to my third surgery in a few months time. It won't always go perfect, but (hopefully) in the end it will all be worth it.
To be honest, my approach at coping is so..weird. I read a lot of books and watch films that make me realise how lucky I am to be in my situation. For example, Before I Die by Jenny Downham and My Sister's Keeper...they're both so doom and gloom and terminal that it puts H.S into perspective. It's a debilitating disease - but we can fight it! (:
Sorry for the long message!
x
chrissey15612 lauren4525
Posted
My mum suggested asking if the head of plastics has any private appointments before my date the nhs has given me, luckily between some members of my family they are prepared to pay if they can get me one.
We're keeping it as clean as possible, going through dressings like you wouldnt believe and cleaning with saline.
x
chrissey15612
Posted
I've been to the hospital about 20 times since.. a&e agree that it neess sorting but then on the surgical ward, they say it needs to be left?
Its crazy, I dont know where to turn or who to listen to up there.
Its dressed (soley because of my husband ensuring it is plus mum and mother in law) im on antibiotics but surely the fact its massive and was originally stiched isnt good???
Thanks so much for the help guys, I really am upset with it all x
rachel052 chrissey15612
Posted
Your family are saints for keeping it clean. Don't feel your letting any of them down, this is not your fault. If you feel anxious about your next surgery, I'm sure your entitled to postpone it until your current wound is healed at least and then speak to your surgeon when they return.
Try keep your chin up (easier said I know) xx
Deb70 chrissey15612
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chrissey15612
Posted
im dreading tomorrow, doubt i will sleep tonight if im honest.
im on cocodamol and naproxen but its doing nothing, its like touching a live wire with the dressings against the wound.
I really do wish I had the money to go private for all of it, some of the aftercare staff have made me feel like im a massive nuisance and I really dont mean to be but its horrific, I dont see this day in, day out!
The first time I saw the open wound was with a thin mirror when my husband went into the kitchen to fetch dressings and I could have passed out.
xx
crystal_08850 chrissey15612
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hypercat chrissey15612
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Hi wasn't your wound packed from the inside? They do this so not just the skin grows back but underneath the skin does too otherwise you have a hole there. If they haven't done that already I don't know if it is too late now but in future they must do this. It should be done every day for a while then every other day until the skin heals underneath it. x
chrissey15612 hypercat
Posted
its just agony, before my next op I am going to request a step by step and back up plan before we go ahead because I have seen about 10 other people since the op, theres been no continuity. X
kristin15811 chrissey15612
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chrissey15612 kristin15811
Posted
kristin15811 chrissey15612
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How have things been with you?? Thanks for asking!
chrissey15612 kristin15811
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Started a fb group... HS UK
Head on over, ur story will give so many hope! X
kristin15811 chrissey15612
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