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Proctalgia Fugax

Posted , 123 users are following.

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Guest

I have had this problem since my late teens or early 20's. As I get older (now 56) this pain is coming much more frequently.

The pain generally comes when I am sitting or in bed, which is fortunate since the pain is so severe it is very difficult to do anything until the pain subsides. Each episode lasts 5 minutes or so (never actually timed them)

Since my early 20's I have brought this up to my Dr. and have been fully dismissed. Over the alst 10 years or so I never bother mentioning it when I change Dr's because I have not expected an identification.

While watching the Dr. Oz show on TV this morning this was brought up during a question period. This was the first time I heard of others having this and an identifying name for it. I now am able to do research on the internet and decide on further action.

7 likes, 261 replies

261 Replies

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  • itsapain
    itsapain Guest

    Posted

    ive tried so many cures. none stop the attacks but i have finally found someone who listen s to me. he has prescribed me valium, as a muscle relaxant . i take 5mg as soon as i feel an attack coming on and they have gone from being intense, sometimes enough to make me pass out, to being much shorter and milder. bearable infact. i know its not ideal and we would all like a ''cure'' but i doubt there is one out there. and until a cause is found how can anyone find a cure?  ive tried hypno, acupuncture, alexander, chiro, food intolerance, to name but a few. had all kinds of intrusive exams, with no results. seeing is a psycho-sexual specialist who is open to all ideas re cause, but believes that it could be made worse by physical tension created by emotional/mental stresses. seems to suit my personality. it will b hard for a lot to accept but i do think there may be truth in this idea. im 57 and have had this damn thing for 30 years. yes it gets me down and even scares me but i think i can now manage the attacks i get by taking the valium. my gp is totally against me taking them 'because they are a drug and addictive' but i have been strict and only take them when i must.
    • vanessa12916
      vanessa12916 itsapain

      Posted

      Wondering how many people out there have also gott hemorrhoids too as found a study linking the two. When removed they had no pf pain.
    • lovemuffin
      lovemuffin vanessa12916

      Posted

      No hemorrhoidial trigger with me.

      A few months ago, I had a colonoscopy. After the procedure, my pf pain was non stop for four days. It fellt like constant electrical surges of sharp pain.

    • lovemuffin
      lovemuffin itsapain

      Posted

      Hi itsapain

      I've been on an extreme food restriction/low fodmap diet. It's the hardest, unimaginable

      Food Deprivation ever..but as a result, I'm able to identify pf triggers. For me, there's a definite correlation. My theory is ...if left unchecked, pf symptoms/allergic reactions will intensify in pain and causations. Dairy soy, preservatives, sugars will trigger my pf along with ear nose and throat congestion, headache and runny nose, and severe skin irratation.

    • carriosity
      carriosity vanessa12916

      Posted

      Hi Vanessa,

      Ive had this condition for 30 years and I've never had hemorrhoids in my life, even during pregnancy.

  • lovemuffin
    lovemuffin Guest

    Posted

    My Pf has also worsened with time. Food intolerances/allergies are big triggers. And here lately, food s not my friend. Mt food allergies also cause nasal congestion, plugged ears, headaches and skin sensitivity.

    I'm 54, female in seemingly excellent health. I'm a School Counselor with approximately 28 years in CA certificated work experience. I have two

    children 32 and 30. The pain of pf haunts me daily.

  • lovemuffin
    lovemuffin Guest

    Posted

    Hello Brave Pf Comrades

    I liked to establish a connection with a local o f sufferer. Does anyone live in or near sf eastbay area?

    • JayJayBee
      JayJayBee lovemuffin

      Posted

      Funnily enough, I've found that if you just mention this to people you know well, they will often confess to also experiencing it. I watched a chat show a while back in which Keith Lemon was a guest. He started talking about something he called 'shooty a#s#'! He was clearly talking about PF. He was clearly talking about PF and he said to Jonathan Ross and said he didn't believe that he and all the other guests didn't get it also. They just wouldn't admit to it!

    • jim77426
      jim77426 JayJayBee

      Posted

      Hi there

      I suggest giving the "punch technique" a try. Several members of the forum have tried it and report great success.

      The principle of the technique is to interrupt the timing of the spasms so they stop.

      To do this I make a fist, reach around and strike my anus with the back of the hand using the first knuckle to focus the energy.. Not hard - just firmly enough to send a shock wave up the colon tothrow off the timing of the spasms.

      I normally strike about 20 -25 times. And that's it. It just stops.

      Search this forum for more discssions of the technique.

      Cheers

      Jim

      Vancouver

    • cory31975
      cory31975 JayJayBee

      Posted

      Try the punching technique that we learned from jim77. My attacks stop w/i a minute or so of punching my anus 20 times. It sends a shockwave up thru the muscle stopping the attack in its tracks. All hail jim77
    • JayJayBee
      JayJayBee jim77426

      Posted

      Thank you , yes, I did actually try your technique a few months ago when I last had an attack and I did have success with it. I actually used the end of a baseball bat which is just the right size! ...So thank you for your advice, it definitely helped. Although , as with most of the remedies I have tried over the years it is rather undignified but it does the job so I'm not complaining! I'm trying something new at the moment which seems to make some sense to me in order to try and stop the attacks full stop. I suffer from very painful trapped wind in the stomach and wonder if there is a connection. I'm trying to improve the good bacteria situation in my stomach by consuming Kefir, a very powerful probiotic fermented milk drink. It's early days but I haven't had a PF attack in ages (touch wood) and it also seems to have a beneficial effect on many aspects of health in the body. It is worth researching! 

    • jim77426
      jim77426 JayJayBee

      Posted

      Hi JayJayBee

      I'm glad to hear things are moving in the right direction for you. What I found with the punch technique is that as I gained some experience with it, the process became more streamlined and efficient.

      Cheers

      Jim

    • julie62021
      julie62021 jim77426

      Posted

      I've had this for a number of years and not told anyone about it. I used to think it was something extremely serious. Last night I had another attack that lasted about 15 minutes. I've been googling the condition this morning and thank goodness I even found this forum. It's so reassuring and some of the posts are funny - it's been a relief to find some humour in this horrible condition. At least I don't get it very often. I am definitely going to try the punch technique next time. Thank you for the advice and reassurance.

    • itsapain
      itsapain julie62021

      Posted

      hi julie

      ​i know some arent too keen on my answer, but if the punching technique doesnt work, i immediately take a valium. it acts as a muscle relaxant - i believe the pains are a cramping of the rectal muscles - and with me it seems to work very quickly. whether or not it is placebo, i dont care. anything to rid us of this pain. my gp reluctantly agreed to prescribe it to me only once i had promised to take it only when i have a prooctalgia attack. but we all have to find our own ways of coping with the condition. valium and the punch is mine. i hace managed to reduce the average time and intensity of my attacks but not stop them from happening in the first place

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