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Prostatitis/Doxycycline

Posted , 16 users are following.

daniel76051
daniel76051

Good evening all,

I was hoping I could vent and get some advice on this nightmare which is chronic prostatitis.

I have suffered with pain at the tip of the penis/redness at the opening, slow urine flow/dribbling and scrotum pain for the last 14 months. In this time I have been given so many different creams which failed and likewise with Cipro and Doxycycline. All urine tests have been clear, bloods clear and all gum clinic checks carried out were clear. I have had 2 cytoscopys and everything was fine. A month ago I was diagnosed with chronic prostatitis.

It has been hell. I can't hold down employment and sex life has been non existent due to this. It has brought my life to a stop. I have 2 children under 2 and feel I am never positive when around them as this constant pain is bringing me down.

I was recently prescribed Cipro (1000mg a day for 4 weeks) and Doxycycline (2x 100mg a day for 2 weeks). I started both at the exact same time and within days the pain disapeared (very minimul), my mental health stabilised and I even started to have a sex life again with my partner. Two days after finishing the Doxycycline the pain has came back. It is exactly the same as it was before I started, bringing me back to square on.

What does this mean? It seems the Cipro isn't doing anything but the Doxy cleared me and returned when the doxy stopped? What can I do from here? Can I be on Doxy permanently or is there an alternative? Does this tell me what is causing my pain? I am pretty clueless to what doxy actually does....does this mean I have a serious infection that won't go or is it problems with muscles/nerves?

Sorry for the long post, I am just at the end of my tether.

Thanks in advance

Danny

0 likes, 40 replies

40 Replies

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  • Jay-1984
    Jay-1984 daniel76051

    Posted

    Hi mate, im 33 also have 2 kids under 2 and know how you feel. I get constant flare ups i was givin a 2 week course of antibiotics by my doctor yesterday. Im currently in bed with the worst body aches, sweating, headache. When i get a bad flare up its horrible and very embarressing i feel like a bit of a dick because i struggle in work and moaning to my mrs that i dont feel well and need to rest in bed. Would love for this illness to dissapear. I would say though last summer i started jogging a few times a week and started taking multivitamins for men and i didnt have any prostate problems, but i stopped just before christmas and now its back again. So once ive finished this course of antibiotics ill be back to that and sticking to it.
    • daniel76051
      daniel76051 Jay-1984

      Posted

      It's a bad bad situation Jay. I have contacted my Urologist again yesterday and told him the 4 weeks of Cipro and Doxy just aren't working. This has been going on so long. The Urologist has now moved my appointment to 2 weeks time (it was 2 more months away) and they have said they will try a different approach but I just can't see me ever getting out of it.

      I was heavy into my jogging before all of this started but the pains put a halt to that.

      Time will tell I guess. I will have to keep you posted on what the next medication is they decide to put me on and fingers crossed it does some good this time.

  • joey06
    joey06 daniel76051

    Posted

    Hey. How are you getting on? I’ve had this for yrs on and off and just been referred to my urologist again after 9 yrs. just been given Doxy for 4 weeks in the mean time. 

    Any advice ice would be appreciated. 

    Thanks. 

    • daniel76051
      daniel76051 joey06

      Posted

      Hi Joey,

      I have a meeting with my Urologist today at 4.30pm but not expecting much. I feel I am always more of a nuisance to them and they want to get me out of the room as quick as possible really. Today's appt is just a follow up to how I have been dealing with Prostatitis on my own for the past 3 months. The meeting usually concludes with them telling me to 'accept it' and that this is a life long condition. I get the impression that they have given up.

      I used Doxy and Cipro for a long time and if anything I am worse off. My symptoms are a lot worse now than when I started seeing the urologist tbh. I'm not currently taking any medication. The side effects were really making it difficult for me to work and raise my kids. But the pains and discharge are now out of control.

      I recently completed my assessment for PIP benefits, so waiting to hear back on this. I have just paid £140 for a further 2 sti tests from Harley Street (these sti are not checked for through the NHS). That is another thing really that has frustrated me. The NHS told me I was clear of all STI but failed to tell me that there are others that it could be which are not tested (Mycoplasma genitaliem and ureaplasma). Symptoms of these are discharge, penis pain, testicular pain etc. If I test positive for any of these it would mean I have been living with it for nearly 2 years without being addressed. Every GP, Urologist and gum specialist have told me that this is a NSU or Prostatitis and some have even told me it is anxiety/in my head!

      Time will tell I guess. I am going to ask the Urologist today for any alternative method of easing my symptoms. Can I have antibiotics injected straight into the prostate? I am just fed up with the constant red tip of penis/redness of area/discharge. It really is getting to me.

      I wish you luck with it. If you need any advice or further details just drop me a PM.

      Cheers bud

  • AC10965
    AC10965 daniel76051

    Posted

    I am on week 5 of Cipro and Doxy....just starting to feel normal again. My uro just did a prostate massage to help things along (bloody hell that was painful) and we are going to try a antibiotic called minocycline in a couple of weeks.

    I was fortunate in that I did something very bad (BJ from a massage 'professional' with no condom so I knew it had to be an STI). I had a PCR test that identified Ureaplasma and Mycoplasma hominis early on but that still didn't help. The first two Uros I went to didn't prescribe the antibiotics long enough. So now the bacteria are antibiotic resistant and have gone into hiding in my prostate. (My 4th Uro did a prostate fluid culture which identified what antibiotics it is sensitive to.)

    I've give up sex, coffee, alcohol and exercise for the time being (except for masturbation 2x a week as per doctor). I am on a supplement called "AlphaRise" and vitamin C and also probiotics (2 types). I am waiting for an order of Minocycline to be sent to me from Germany.

    I am on urologist #4 who seems to be the most knowledgeable and experienced. I don't understand why so many Uros are ignorant of these STIs and prostatitis in general. I even had one doctor tell me I was making all of this up in my mind and I shouldn't try to become a urologist. Yeah, if I listened to that quack I'd probably have a kidney infection by now.

    For me, I'm resigned to taking Antibiotics orally for a few months and then we will do another culture.  

  • keith47806
    keith47806 daniel76051

    Posted

    Get checked by a urologist for ureaplasma. It is a special test as the bacteria are very small and difficult to detect.  Sounds like the exact symptoms I had. Treatment was doxy for a month.
    • daniel76051
      daniel76051 keith47806

      Posted

      Morning Keith,

      I was tested for Mycoplasma and Ureaplasma through a private hospital in London about a year ago and was clear.

      They have now found the bacteria which is causing the problem (through more costly tests privately) - the bacteria is Enterococcus faecalis. I have been put on an antibiotic called nitro which is similar to amoxacyline? I have been put on 14 day course. I am on day 13 and pains are still there, although not as severe and no discharge. Maybe I need another course. I paid for my partner to have the same test and she also has the same bacteria which has been causing her symptoms.

      But I guess I am one step closer to ending this nightmare so I can't complain.

  • daniel76051
    daniel76051

    Posted

    Just a quick update - after the countless number of urine tests I have completed with the NHS and all coming back clear, I decided to pay for a private urine test. This test has found the bacteria Enterococcus faecalis. I also paid for my partner to be tested and she also has had this bacteria found. As it has been 3 years of constant pain everytime I urinate, I need to now look at whether there will be any permanent damage or scarring in the urethra.

    I hope you are all keeping well

    Danny

    • hank1953
      hank1953 danielle55208

      Posted

      Try crushed raw garlic. It's an antibiotic and has been used to prevent and control UTI. It might work for you. Hank

    • daniel76051
      daniel76051 danielle55208

      Posted

      Hi Danielle

      No major update to be honest. I am still in my pain everytime I urinate. I feel like I am constantly 'dribbling' urine or prostate fluid through out the day. Urine flow is still very slow and I always feel like I haven't emptied my bladder fully each time I urinate. I just feel like I constantly have a UTI. Antibiotics may help for a few days but it goes back to square one again. My last urine test showed the Enterococcus faecalis had gone. But I'm convinced it must be living in the walls of my bladder or prostate and keeps coming back. I don't know. I have become do desperate that I recently messaged 4 professors who carried out experiments on mice with enterococcus in 2006 and 2008. I have asked if they have any info on how this bacteria effects humans. in their work then mention it getting into the bladder, prostate and kidneys.

      I have been desperately phoning private hospitals for prices for prostate fluid tests as I feel this may help me. I have been quoted priced from £500 and upwards which isn't doable. I have been referred to a NHS Hospital in London which is meant to be good but that isn't until the end of January. Luckily my GP told me that his friend who works in a private hospital may be willing to do the prostate fluid test for free as he feels this has all gone on for too long now and needs to be dealt with. I have had a stupid amount of prescriptions/antibiotics and I think the health service is realising how much I am draining their funds.

      If/when I finally get this prostate fluid test done - I don't know what I will do if no bacteria is found. I will definetely be out of options of pinpointing what is going on.

      On a side note I didn't realise I have to be knocked out for a prostate massage. quite concerning.

      Are you going through something similar?

      Danny

    • danielle55208
      danielle55208 daniel76051

      Posted

      yeah I have but all my urine tests come clean and the doctors don't take me seriously anymore.

    • daniel76051
      daniel76051 danielle55208

      Posted

      Have you been referred to a Urologist? I can inbox you a website link they I used to find the Enterococcus faecalis if you like? I think the test was £40 - but as the clinic is private (Harley Street, London) their urine test go a lot deeper in its search for problems. maybe a dozen of my NHS urine test were clear....I tool 1 with this private clinic and found this bacteria. My partner also completed the test through them and found the same bacteria as me.

  • divine5592064
    divine5592064 daniel76051

    Posted

    Hello every one ! I hope your conditions have improved now.

    I have been personally struggling with is prostatitis for about 2 years and some months now.

    It was terrible till i discovered this supplement : a combo of zinc,beta sisterol,lycopene and saw palmetto. It eases the pain.

    I'm curious to find out your states now ?

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