Prostatitis - only thing that made me feel better was Doxycyline but my Uro changed me to Cipro :(

Posted , 7 users are following.

I hope someone here can offer some advice to me. I am so depressed over this prostatitis thing right now and I just want to feel better sad

Here's the quick version of my story: many prostatitis symptoms, the ones I care about most are decreased erection strength and quality along with lower ejaculate. I went on an Anitbiotic cocktail for treatment of H Pylori and one of them happened to be doxycyline. OH MY GOD! Within 3 days my erection quality/strength/libido and other prostatitis symptoms basically vanished. I also had left testicular pain intermittently prior to doxycyline.

After the antibiotics cycle of 10 days - my erections and positive prostate effects vanished. Interesting. Saw my GP, described everything and he put me back on Doxy for another 7 days to see if it happened again. Sure enough - same positive effects. Rock solid erections, no testicle pain, no prostate pain. Fast forward to now, saw urologist, he touched my prostate said it did not feel good, said I have prostatitis - took me off Doxy and put me on Cirpofloxacin. Said it works better than Doxy for prostate. It has now been 3 full days of Cirpo and off the Doxy and once again, all my positive effects that I got from the Doxy are completely gone again. Only this time the Cipro is making my body shake uncontrollably at night, I am sweating, and my muscles and tendons ACHE!

I don't know what to do! I got tested for Chlamydia and it came back negative (std urine test a few months back). And after he touched my prostate last week we did another standard bacterial urine test - came back all clear. I have requested semen analysis but they said its not worth it and they dont do it (I'm in Aus).

If it is Chlamydia, can it really hide in the prostate? All I know is the positive effects from Doxycyline are not in my head - they are distinctive and have happened twice in a row, exactly 2 days into taking Doxy. I realise ABX have anti-inflammatory effects, but if that were the case the Cirpo should be giving me the same positive effects.

I'm not sure how to go about this. Urologist wants me to persist for Cipro + Flomax + NSAID for 6 weeks. So annoying. Any ideas? Would be so appreciated.

0 likes, 13 replies

Report / Delete

13 Replies

  • Posted

    Ciprofloxacin did nothing for me, only thing that has helped is Ertapenem which was Intravenous for 28 days at Hospital each day. Have had 2 sessions of it and each time it gave me 2 months of relief. Urine infection now and Consultant agrees that infection is likely trapped in Prostate so I am pressing for Prostate removal now. Don't think there is any easy remedy for Prostatitis and very little research appears to have been done. Hope you can get better answers.

    David

    Report / Delete Reply
    • Posted

      I have never heard of Ertapenem. So everytime you stopped the symptoms came back?

      All I know is my gut is telling me to get off the Ciprofloxacin to avoid any damage or neuropathy and go back to Doxycyline where I was having positive response.

      Report / Delete Reply
    • Posted

      Hey David, before you take that final step, and trust me i know where you are coming from, just wanting it out.

      Talk to Dr Karamanian, he is working on a regiment of intra prostate injections, done in his office, using ultra sound. Coupled with the DNA test of the prostate fluid, he will know the EXACT antibiotic to use.

      He did this for me when I had the FLA done on OCT 19th. So far so good, for the first time in years I do not even feel my prostate most days, even tho I had surgery on it just 5 weeks ago.

      I told him if this works, he will have guys lined out the door. Most Docs dont understand how debilitating this is.

      Briggsey since you are in Australia I cant offer you much advice, other than GET OFF the Cipro now, I would up with both of my triceps tendons broken completely thru from using Levaquin which is in the same class.

      Bactrim which is an old Sulfa drug worked as good or better for me than anything. Unfortunately I am now allergic to it, most likely from taking so much of it. But you might give that a try,

      Good luck guys

      Good luck Joe

      Report / Delete Reply
    • Posted

      Joe, Unfortunately I am in UK with NHS and can't get them to do DNA testing. They told me it was not done here and it was a USA thing. Have Prostate Cancer which is small, but they want to do 2 year Biopsies to keep watching it and last time they gave me Sepsis and since then infections have run riot. Also I am concerned I am becoming immune to A/B's so what can happen then. Already have some Incontinence which after 3 years is getting better and have E/D with no reaction to any tablets so far, again worried as they say "Use it or lose it".   A friend had his Prostate removed by same guy and came out of hospital next day after the op and is keeping really well with no side effects so I think Robotic surgery is for me.

      David

      Report / Delete Reply
    • Posted

      Ertapenem can only be given in hospital due to risks with it, and has to be monitored daily. Yes after stopping A/B I have had 2 good months every time and was on Cloud 9, now back to misery again, but just now waiting for Total Knee Replacement as that pain is worse than Prostate just now. At one time I looked forward to retirement, now not so sure.

      David

      Report / Delete Reply
  • Posted

    Read up on the dangers of this family of drugs.

    https://patient.info/forums/discuss/fluoroquinolone-toxicity-syndrome-427305

     

    Report / Delete Reply
    • Posted

      I have ready plenty on it. Seems like it can be very nasty, especially when it may not be needed, and is often over prescribed. That is why I am thinking - if the Doxycycline was helping me, why the hell am I putting this fluoroquinolone in my body that is 1) not doing anything positive for my prostate and b) giving me back muscle aches and pains and shivers.
      Report / Delete Reply
    • Posted

      Each time I was prescribed it my tendons were affected. One time even without walking while confined to bed after surgery.

      I have a problem in my lower left leg where the only diagnosis is a type of neuropathy but I suspect it to be long term damage. 

      Report / Delete Reply
  • Posted

    Hi Briggsey, I've had prostatitis twice in my life, most recently from 2016 to 2017 so I sympathise fully with how depressed it can make you feel. I've tried Cipro and Doxy in the past but no antibiotic ever helped me. What I think did help was herbal remedies, I've taken rye grass pollen, said to help some, but it was a mix of Quercetin and Bromelain, Pumpkin Seed Oil and Saw Palmetto that I'm sure gave me some relief for weeks/months at a time. Other things that helped? Well, my uro gave me a prostate massage under a general anesthetic which eased things a bit, and he, by the way, acknowledged that the above herbal remedies have been proved to help some men with prostatitis. In September this year, I had a bladder beck incision due to a high and narrowed bladder neck. This, my uro told me, was making my bladder work harder to force the urine out and, in doing so, some urine was getting forced into the prostate causing the irritation and prostatitis. As scans showed a thickening bladder too - and I was peeing far too regularly - I went for the op. It's taken about 10 weeks to really start to feel the benefit, but since the op, my prostatitis has all but gone, flow has improved and a left testicle pain I'd had since July has also faded. A BNI might not be relevant to you, but it's just another possibility. I'm now 49 by the way.

    Regular ejaculation is important too. My uro, and others I've seen in the past, have stressed this and my first bout of prostatitis years ago eventually got better after I started having regular sex with a new girlfriend!

    Rarely mentioned, but it was recently on this site, is steriod injections into the prostate. I have FOUR of these in my early twenties over  a period of 4 years and the first 3 of these gave INSTANT 100% relief for up to a year. My uro couldn't quite believe I had that done - not protocol now it seems to do that - in the UK at least, but others on this site have mentioned it.

    Anyway, try not to despair! During my darkest days, I wondered how I would keep going, but it can and does go. I'm living proof! I just left no stone unturned in my quest to get some relief.

    I don't know if any of this is useful to you, but I hope some of it might be.

    Best of luck.

     

    Report / Delete Reply
    • Posted

      Cheers Nick. It's nice reading something like that knowing to never give up. Also a lot of stuff in your post that I never knew about... The more info the better!

      Report / Delete Reply
  • Posted

    Not much to add, except I think 3 days isn't long to try out the Cipro. My guess is that the night time shaking is the infection, not the drug.

    Report / Delete Reply
    • Posted

      I agree that 3 days is not enough to try the Cipro. Actually today was the fourth full day and all my positive erection/prostate benefits I had on the Doxycycline were completely vanished on the Cipro.

      Both times I started the Doxy the positive effects I noticed started within two days.

      I think since Fluoroquinolones can be so dangerous, and I am already experiencing tendon pain from the first day, it would be smarter to do a full and proper course of Doxycycline for 4-6 weeks which I have proven is actually improving my symptoms of Prostatitis. If the positive effects do not continue after discontinuation of Doxycycline then I can revisit the idea of the fluoroquinolone. I feel like it's a bad idea right now given my experience and the circumstances.

      Report / Delete Reply
    • Posted

      Oh forgot to say tremors are a known side effect of Ciprofloxacin. Interestingly I came to find out that taking an NSAID like Voltaren along with fluoroquinolones are not a good idea at all, because they use so km Ilaria clearance pathways and also may increase the adverse affects of the Fluoroquinolones. Yet my urologist prescribed them both at the same time for me. Thanks a lot!
      Report / Delete Reply

Join this discussion or start a new one?

New discussion Reply

Report or request deletion

Thanks for your help!

We want the forums to be a useful resource for our users but it is important to remember that the forums are not moderated or reviewed by doctors and so you should not rely on opinions or advice given by other users in respect of any healthcare matters. Always speak to your doctor before acting and in cases of emergency seek appropriate medical assistance immediately. Use of the forums is subject to our Terms of Use and Privacy Policy and steps will be taken to remove posts identified as being in breach of those terms.

newnav-down newnav-up