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PsA mtx 4 years now thumb knackered!

Posted , 5 users are following.

snowycat
snowycat

Hi been on mtx 4 years arthritis symptoms started in ankles with 30plus years of scalp and skin guttate.

25mg now 15mg methatrexate and scalp getting bad again and thumb had 1 injection now seizing up again with intense pain ..

also have herniated disc n swollen root nerve so pain relief meds cabinet full. ;-)

any thoughts on meds to be combined with mtx.

thumb is agony.. have further rheumy in 2 weeks.

would love your thoughts.

thx x

0 likes, 16 replies

16 Replies

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  • shaziebabes
    shaziebabes snowycat

    Posted

    This is soooo spooky .... I was just about to post about my painful thumb! I too have had PSA for 4 years, was on mtx 25mg & reduced to 15mg about 2 mths ago. I have developed a really sore right thumb, from middle knuckle to tip & I'm not sure if it's PSA or something else causing it? I have a sore back & a trapped femoral nerve on right side for which I am receiving treatment from a chiropractor. 

    Have you tried chiropractic? It's really helping me. I suppose you take anti inflammatories as well as paracetamol or something? 

    • snowycat
      snowycat shaziebabes

      Posted

      Omg we are virtually twins!!

      Mine is left thumb. Lower to middle.. she scanned it before injection all infected also near tendons.. not sure her next plans.

      yes had physio made no difference to back if not more painful overall.

      have lots pain meds some not good for day working driving.

      am lucky have lovely rheumy see her private and NHS 

      appointment 17th hoping see her before.. before I chop thumb off lol

      thinking body is beginning to not let mtx work as well as has..maybe increase back up to 17.5 or 20 mg or add additional drug maybe... I'll ask ..  thumb is very weird.... can't bend it.  

      Rheumy says my pain threshold is good.. Lots deep injections into ankles maybe helped lol... However pain in thumb wakes me in agony  or if not back does.....

      good job I have sense of humour.

      great to meet you!!!!

    • shaziebabes
      shaziebabes snowycat

      Posted

      Ha ha we are!!! My rhuemy is great too which is reassuring isn't it? My thumb feels hot and tender to touch. Hope u get some relief from injection... I had one in my foot for plantar fasciitis which worked brilliantly👍👍 also they can put you on other drugs in addition to mtx can't they? We have to be very patient with arthritis don't we....a lot of trial & error til they get the balance right. Good luck with it all & hope your back settles... Back pain stinks!!! 😁😁
    • snowycat
      snowycat shaziebabes

      Posted

      Yer I had quite a few injections in ankles mtx finally settled them .. had injectiona in wrists and thumb 2 weeks ago so am gonna go down the route of asking my lovely rheumy for new thumb...think that's only fair! Lol

      Yes indeed patient which I'm ok most of the time.. had very great hubby oh and calming cat that helps!! I'm 45 but feel 65 but in my head 25. Result x

    • snowycat
      snowycat shaziebabes

      Posted

      Forgot to answer..  no to anti inflammatory pills not food makes me ill even with tummy pills.  Steroid pills on and off. cocodimal and harder stuff for nighttimes occasionally such as oramorph n tramadol but mainly cocodimal.

      How do you manage yr pain hun?

    • shaziebabes
      shaziebabes snowycat

      Posted

      It sounds like you've had a really rough time😔 I hope things get better for you. 

      I have to say, I think mtx generally works well but the potential side effects bother me. I also feel about 65 & I think it's difficult for people to understand that when they don't live with chronic pain... I get quite frustrated sometimes when people look at me puzzled because I work part time and have two kids! They don't see the state I'm in in the morning & evenings ;- crawling up and down stairs etc! Oh well, I also try to maintain a sense of humour 😜😜 

      Naproxen works well for me when pain is bad and I take paracetamol only as codiene gives me stomach pain. I also do deep relaxation and mindfulness meditation which helps. .... Try it if you haven't already 💆💆💆 

    • snowycat
      snowycat shaziebabes

      Posted

      Thx hun.. I've got an appointment due in new year with pain consultant who will also help me mentally deal with pain.. I'm normally pretty good but sometimes I fall over in my head so open minded for idea thanks.

      Today I was good. Worked from home as fatigue terrible and need to be selfish.. For once!

      :-)

    • snowycat
      snowycat shaziebabes

      Posted

      Hi shaz just wondering how you are and update you on me too lol.

      Well I'm now on sulfazaline 3g a day now and 200mg pregabalin and rheumy putting application for me go go on humira injection she recogns it will transform me! I'm also on an antiinflammatory ecoxtib or something and back up to 25mg mtx

      Rattle cattle lol 😀

      Hubby had a seizure so lost his driving licence so I'm main driver and not fun as painful back, thumb, toe and ankles.

      I'm blessed to have the best consultant ever! Oh and currently have chest infection asthmatic so back on steroids and bullet antibiotics... Still today is a bank holiday so day 4 of copying my cat (chil sleep etc)

      Hope things comfortable your end, take care🌈🌷

    • shaziebabes
      shaziebabes snowycat

      Posted

      Hi snowycat, nice to hear from you. I'm not too bad thanks, still trouble with thumbs, back, hips etc but not as bad as it was. Seeing Rheumy nurse tomorrow about starting sulphasalazine as I seem to keep getting infections & having to miss the Mtx. I saw a new Rheumy a month or so ago & he seemed to think it would be worth switching to sulph. Hope it works. Hope ur

      enjoying your chill out day. I've heard great things about humira & will be interested to know how you get on with it - good luck & hope hubby is feeling better

  • lucynewas
    lucynewas snowycat

    Posted

    Alexander relaxation technique for disc in spine. 2x 20 mins per day.  I do mine with a 20 min youtube meditation audio running.  I am now on sulphasalazine increasing dose too.
    • lucynewas
      lucynewas snowycat

      Posted

      Hi Snowycat - yes I do take methotrexate and sulphasalazine, plus arcoxia, folic acid and amitryptiline.  I'm on a reducing dose of steroids.
  • karen20616
    karen20616 snowycat

    Posted

    hi my name is karen ,i have just joined this fourm only today ! I was told that have got psoriatic arthritis ,iv have psoriasis in my head and have since i was a child .i started mtx six weeks ago, 

    how long does it take to start working ? 

    i feel really ill after taking it ,ie hips hurt more and legs ,feel sick ,also my hair is starting to snap off at the top of my head is this normal? 

    My left thumb is knackered!  my knees and ankels swell,i find it hard to drive along way which i have done for years .One thing i'm worried about is my eyes ,they  are blood shot and puffy in the mornings it looks like iv been drinking all night but i havent! does anyone else have this with there eyes ? 

    im in pain all the time ,find it hard to get up stairs and sit on the loo! I notice as well at the end of the day i get really bad back ache.

    any advice would be great 

    Karen 

    • hannaballecter
      hannaballecter karen20616

      Posted

      HI, I have RA and because of RA I have dry eye and dry eyelids, its common to have eye problems, I have a district nurse visit twice a day to administer eye drops and ointment

      Methotexate can take some time to kick in so persist. if it dont help, tell your rheumatologist if yours is anywhere as good as mine he will  address the problem, unfortunately the quality of the consultant often depends on the quality of treatment.

       

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