Posted , 55 users are following.
Interested in hearing peoples symptoms and experiances with this. I had pvd of the left eye and sure enough 6 months later,right eye. Having problems dealing with it. When both eyes are affected,hard not to think of it 24/7. Would like to hear others stories. Thanks.
3 likes, 244 replies
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mandi38180 lee12629
Posted
Hi I'm 36 I was born with dislocated lenses, had cateracts removed at 6 and 7, had a tear in my retina at 15. Then 2 years ago I developed pvd, which resulted in a detached retina. I'm now experiencing pvd in my only good eye, seeing floaters, black dots, cobwebs, flashing lights ect.. I'm just waiting on the retina to detach again. I'm also showing signs of glocauma which I'm awaiting more test for. I have another check up next week. I'm glad they're keeping an eye on me as Rochdale hospital left me 2 years ago, I kept going back saying my retina had detached but they kept saying it hadn't. In the end I went to Manchester eye hospital to be told it had detached and I was lucky to still have my sight. I was 31 weeks pregnant and wasn't allowed to be put asleep, so I had to lie theee for 3 hours with needles and lazer in my eye. Then because I couldn't lie flat Because of my bump, the gas bubble wouldn't push the retina back so I had to sit face down for another 2 weeks until the bubble left my iris and did it's job!
I'm a lot more positive this time, Because at least I can be put asleep for it and I can lie flat. I'd love to know if anyone else has my problems at a similar age. I'm always told I'm very rare haha
lee12629 mandi38180
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mandi38180 lee12629
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Thanks hon. It's more then likely it will happen again because I have no lenses behind my eyes. It will be a miracle if it doesn't happen. It took 9 weeks for it to happen last time. And the pvd started in this eye nearly 2 weeks ago. It's so interesting to read about other people's experiences. I'm new to these forums
cara96698 mandi38180
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It sounds as though you have had a terrible time with your eyes! The PVD is very frustrating isn't it. When mine first started, I was terrified I'd have a retinal detachment. The operation to fix it sounds awful, but I can't imagine having to go through it awake like you did. We have a lot of eye problems in my family due to a rare genetic condition. My sister is blind and my dad is partially sighted (almost blind). Sight is so precious isn't it. All the best xx
mandi38180 cara96698
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So will your eyes get worst over time then? I'm sorry to hear it's a rare genetic condition in your family. There is no history of eye problems in my family. I'm the only one with bad eyes. Your right the eyes are very precious. Thanks for your reply and sending big hugs xx
daisy22870 lee12629
Edited
It's Thursday today. Monday I woke up with These flashes of light out of the lower cirner of my left eye....at first I thought my husband was trying to tickle me with a feather, cause when the light was on the flashes were dark and when the lights were off they were like lightening flashes in the lower left of my left eye. I called tge eye doctor right away and got in that afternoon (after looking up my symptoms on google) and yes the doctor diagnosed me with PVD....I drive a school bus for a living and it is so annoying in the mornings driving cause all I see is these streak flashes every time I look to the left and back quickly, drives me nuts. Daytime it's not so bad, just seems like and hair is dangling in my face and I catch myself brushing my hair away alot........I can't loose my vision I have driven a bus for 23 years and rhis is what I do and watch my grandchildren. It scares me.
lee12629 daisy22870
Edited
Lolasmom daisy22870
Posted
This happened in my left eye last March. Yes, it freaked me out. I also went to the eye doctor and after examination, she said it was PVS. I had the sparks and tons of floaters. As long as you got checked and it was not a retinal detachment, should be fine. Just annoying. She also said that the other eye will probably do it too some time soon,
I still have a weird kinda white film that passes over my eye. It is not there all the time
Just annoying
Lolasmom
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lee12629 Lolasmom
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Guest daisy22870
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denise75833 daisy22870
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Wow your story is almost identical to mine--only mine is right eye. Couldn't believe this happened doing absolutely nothing out of the ordinary. I too had the tiny lightning bolts (yellow in color for me) Definitely worse for me in the dark. I too kept thinking I had hair hanging in front of my eye. I am 53 eye doctor said usually happens to older people, but that everyone eventually deals with it as they get older, just to different degrees. Hope you are well.
Lolasmom lee12629
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It is a cloudy film that if I blink a couple of times, it seems to go away..Annoying
TiffanyNOLA Lolasmom
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TiffanyNOLA Lolasmom
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I'm 34 years old
Lolasmom TiffanyNOLA
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TiffanyNOLA Lolasmom
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lee12629 TiffanyNOLA
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Lolasmom TiffanyNOLA
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She is actually a neighbour up the street from me, and told me to just knock on her door if I had any questions. I would never do that, but was so kind of her
Guest lee12629
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Lee, does this mean that PVDs don't clear up? According to the doctors they should clear up by themselves within about 6 months. Do you have any treatment?
annie93193 TiffanyNOLA
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I agree with you that an incomplete detachment is scary because when it finally detaches it is possible that it could cause a tear, take part of retina, or macula with it. That is the scary part and that is my biggest concern because mine also is not complete and it started first of December 2017. I will breathe easier when it is complete without other damage. I, however, am more scared for my better eye which started a couple weeks after my right eye. I do not want to lose my sight in either eye, but especially not my left eye. We have excellent vitriol/retinal surgeons who specialize in macula and other eye diseases as well so as long as we watch for the veil or curtain and call eye doctor and get to hospital that has vitriol/retinal surgeons we should be ok. We most often think the worse outcomes when we do not have enough information. All we can do is prepare for the worse and expect the best. I hear the worst is the recovery positions, especially face down.
Lolasmom TiffanyNOLA
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TiffanyNOLA Lolasmom
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That is so frustrating! I have the start of it in my right eye. Left eye is still in process. It's so frustrating because I feel like I never know which flashes to really worry about.
Guest Lolasmom
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Heyy everyone. Mine started 2nd January 2018 in my right eye now three months later in my left eye as well , so terrifying. Can’t ever see them getting better. Floaters, blurred and fuzzy vision ,have a check up every month and they have say it will settle down. Soooooo many floaters Terrifying s**t 😅
lyndal99045 Guest
Posted
Last week I visited an optometrist interstate where I was with work as I had more flashes, they did a full scan which was sent to my specialist. I worry constantly, but I am being reassured constantly that it will all settle within 6 months. I have the blurry spot and a Weiss ring, it is quite daunting when it first occurs. I have a huge vitreous gel floater that is right next to the Weiss ring, but my optometrist and specialist both say it will eventually disappear.
Lolasmom TiffanyNOLA
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My right eye even after a year has this frosted floater that moves over my eye. I really thought it would have gone by now.. My left eye which started about 8-9 days again is still flashing and have a lot of floaters.
Through the week I was standing at the counter making butter tarts (I was actually making them for my eye doctors office). I went to lift an envelope off the counter to move it aside. When I lifted it up I saw a big huge what I thought was a black bug go scooting by. I freaked out and started moving everything to find it. Geez, there was no bug. It was one of those crazy black floaters.
Both eyes feel like they are thick and mucky. Just hate all of this. And to add to the nonsense, I have had vertigo (BPPV) for the last 6 weeks.......Want my life back
Guest lyndal99045
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Yes Lyndal it’s a terrifying thing, no one I know had even heard of this. I just pray my eyes return to normal . Seem to keep getting new floaters so I panic and I’m back to the eye Hospital 😅😅. Just hope there is nothing worse going on but they say if it was anything serious to affect vision they would know. Here’s hoping we both get it sorted 👍
denise75833 Guest
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karol1211 denise75833
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Yep. I've been a nurse for 30 years and only vaguely remember hearing about this. I was under the impression that it was rare and when it occurred it was an emergency and very involved treatment. It is frustrating that the Ophthalmologist can't be a little more sympathetic. Maybe THEY don't think it's rare because people that experience this, go straight to them and it is COMMON for THEM. But in the general population, I don't hear of a lot of people that complain about this at all. But sigh, it is bothersome and sometimes scary when you see that floater and think it's something coming at you from the side...especially while driving. You have to really be hyperaware so you can learn to ignore it. But if it actually IS something coming at you (another car for instance) would our brains ignore it? There is a lot of ifs. I didn't feel comfortable driving for about a whole month and a half because of this... that can and will stop people from doing important things like working, grocery shopping...etc.
denise75833 karol1211
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I asked my eye doctor how in the world did I get this? His exact words were, "You Lived!" He said I am younger (53) than usual patients he sees but that everyone eventually has it. I was stunned as I had never heard of it and no one in my family (7brothers/sisters) has ever complained about it and they are all older then me. I am trying to stay positive and calm and hope it all works out okay.
Guest denise75833
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lyndal99045 Guest
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We just have to be vigilant. I am a bit panicky as well, so I understand why you are. It's a good idea to visit the eye Hospital just to reassure yourself. I have been reading about the infrared eye masks that some people say have helped but I am not keen on making my problem worse so am reluctant to try it. I have a friend who had a retinal detachment and issues with her macula as well. She says the mask helped her considerably.
denise75833 Guest
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