Pyloric Stenosis and long term effects

What a distressing problem your son has - and that after an op most doctors will tell people will get rid of the Py and vomit problem for good. Most doctors don't have a clue (and don't care about) how to diagnose the long term issues which arrive not always but for all too many. A pediatrician or GI specialist may or may not be better from what others have found.

I'm no doc but having had some other post-PS problems I've read a lot of what others have found. So here's a list of some of the possibilities - 1) adhesions from the op affecting the stomach region and or gall bladder, messing up digestion etc; 2) hyper-acidity in the stomach (those who have had PS keep this tendency and they may get gastric ulcers in later life); 3) unrelated to the PS but a separate stomach or esophagus problem; 4) a very strong gag reflex (not uncommon); 5) in recent years "Chronic Abdominal Pain in Childhood" has become recognised (a grab-all label for unexplained symptoms?) - I have posted on this on my blogsite "Surviving Infant Surgery"; 6) anxiety (one suggestion I found was to try medication for a month's trial). Not an exhaustive list and not personal professional advice but I hope it helps you get help for your young man.

Thanks. I'll look into some of your suggestions. I definitely want to get to the bottom of this. Thanks for your feedback.

Thank you Fred and everyone for sharing your ideas and stories... Still trying to find something that works for my son.. My prayers to each of you... good luck!!

I've just come across this forum which has really thrown a light on the issues I've had for years. I too had pyloric stenosis operation (Ramstedt) at 3 weeks old and as far as I'm aware never had any after effects! I'm 36 now. The only time I thought about PS was when it came time to wear bikinis....something I've never done! My incision was really badly done and I have a lot of scar tissue hanging over the scar. I can grab the amount of scar tissue!! Mine is Y shape and aprox 6 inches long now which is not normal as far as I know. Anyone else have this shape scar? I've always had digestion problems....whether it's constipation or more recently diarrhoea. But for the past few years I've been a little wheezy but more recently having trouble breathing and have had acid reflux issues. I put the reflux down to eating the wrong foods but it now seems to be linked to my breathing difficulties. It's not that I can't breath it's that I feel that I can't. I finally went to the doctor (I tend to stay away from doctors) and she thought that the PS may be the root of the problem. She thought that maybe the opening that was made 36 yrs ago may have widened further and may be contributing to my current health problem. Causing the acid to be inhaled therefore effecting my breathing. I think I've been ignoring my ailments for years but reading the posts here has really opened my eyes.  The next step for me is to get a camera down to check out my stomach and also get the scar tissue removed. I fear there may be more surgery to follow. Has anyone had surgery long after their PS which is linked to the PS??

My 18 yr old girl also had this surgery. She is very thin and suffers from nausea and abdominal pain frequently. For two yrs after surgery, she was given ranitidine and Cisapride (which was taken off the market in 2000 leaving me wondering if that also affected her health). I'm just concluding that her suffering is related to the PS surgery so I have no real advice yet. I found a FB page on PS. Look it up, it's been helpful. Also, someone on there suggested a GAPS diet.

I had my PS operation in 1952

i was 8 months old and was dying of malnutrition

photos of me until I as six showed a thin limbed child with a huge stomach

Sorry pressed wrong button

my scar is ugly and when I was in my early twenties I pulled "thread" from it

i had a very athletic life until I was in my mid forties but weight gain was always a problem

i have suffered many serious lung infections but do not have asthma

i was recently diagnosed with Bronchiestasis due to lowered IgG antibodies (very bottom range) and the recurrent chest infections

My pulmonary physician and my immunologist have suspected occult GERD

i also have heli bacter which is being treated now

I am being referred to a Gastroenterologist to investigate whether I have been aspirating acid into my lungs

It will be interesting if this traces back to PS

Hi

hoping this conversation is still current

i am a 62 yo female

I was operated on at 8 months old for PS in a stae of severe malnutrition

I cannot tolerate milk at all

The first five days of my life I was breast fed by the wrong mother then would not accept my Mother's milk

My mother and I had a difficult relationship

I had separation anxiety and wanted to be near her

and she had no time for me

i have had bronchitis all of my life with multiple cases of pneumonia, pleurisy and shingles

i have just recently seen. respiratory Physician and an Immunologist for constant lung and sinus infections Ii have bronchiestasis and mild CVID

I recently had a Bronchoscopy and no harmful bacteria were found

it is now suspected that I have have been aspirating acid into my lungs causing life long infection resulting in incurable lung scarring/damage

I will soon be seeing a gastroenterologist

my specialist suspects that PS may be complicit

i will keep you posted

ps I have dreadful problems with diarrhoea, weight gain and bloating and fatigue

 

Hello,

I had pyloric stenosis more than 44 yrs ago.  I had the surgery and was good for quite some time.  At times throughout my childhood I had severe stomach aches.  These were rare, but they happened.  When I was 19, I woke up in the middle of the night with great abdominal pain.  My parents rushed me to the ER and I examined for appendicitus.  I had an appendectomy later that day.  While that surgery turned out that my appendix was fine, they performed an exploratory surgery and found I had bands around a small portion of my small intestines.  They cut that out.  I was fine until I was 28... I then had a similar surgery for adhesions.  In my 30s I had my gall bladder removed, too, but I have been good since then.  Every now and again after eating some meals (maybe once a month) my stomach gets upset or bloated, but I don't necessarily attribute it to my ps or other surgeries.  I am happy to share any additional information if others are interested.  Whle I am only 5'5" (which I have always wondered if the PS prevents full height of your body, but no way to know.  I have multiple brothers which range in height from 5'10"-6'1".  In college I used to compete in powerlifting and I don't think I had any ill problems from my PS.

It seems you are one of the many (though still it seems, a minority) of PSers who have been left with a chronic adhesions problem. We've all been left with adhesions after abdominal surgery, but those who have them as a problem will unfortunately find it hard to shed this. I have corresponded with people who have had multiple surgeries to remove the latest growths, but each surgery tends to aggravate the issue in the longer term. Chances are your gall bladder was fine but its work choked with adhesions - many have been told this. Try to manage the discomfort and pain, or have them removed when you reach your limit.

My little man had polyric stenosis at 3-4 weeks old his now 15 months . His got bright yellow poo and they have given him amoxcillian for tonsilitis but it's like his got bad wind pain and his had a cough for a while and sometimes brings up the congestion off his chest. His also scratching at his ears does anyone else have this with their baby the doctor keeps saying his belly is clear but gets rally unsettled through the day and night generally is a good baby that never cries or has tantrums .