Pyloric Stenosis and long term effects

Hello to everyone, 

I am so glad I found this thread. I am 21 years old and all my life my phrase has been "I feel like throwing up." Reading this thread now makes so much more sense as to why I have never been able to gain weight even though I eat so much fast food and why I am still very picky with my food. My doctors never paid much attention when I would tell them I was operated with PS as a baby. 

My question to all those that are older, I am now having sharp stomach pains after eating and have gone to the doctor but dont know what it is. I see that most of you have been diagnosed with IBS or have acid reflux. What are you to take away the nausea and the stomach pains? 

Hoping you get some helpful responses here, Susana, though as you may notice from the thread these can often be a bit slow coming. If you're on Facebook, suggest joining one or more of the "closed" PS Groups there, as these are a more active forum. Best wishes!

Hi! I also have congenital pyloric stenosis and I was operated when I was 1 month old and was repeated 3 months later. I want to know what do you call this operation. Any idea guys? When I was 28 years old, I got pregnant but unfortunately I had miscarriage after 7 weeks. Do you think PS has anything to do with this? I will appreciate any responses. Thanks.

The operation is called pyloromyotomy - the way it's done with a baby. In later life PS can also occur and a more radical operation has to be done, called a pyloroplasty. You would have had an "incomplete pyloromyotomy" the first time - when the swollen muscle is not cut and split apart enough it regrows.

Your 2nd question: I've been researching PS for many years and have not come across anyone reporting a miscarriage because of it or the scarring, although the adhesions can cause discomfort, pain etc. Best wishes - try again. Facebook's PS groups have a lot of people's reports on their experiences.

I'm happy to have come across this discussion, I have a few questions which I will post after 'our story'.

My Daughter had symptoms of PS at 2 weeks, at 4 weeks she was finally admitted to our local hospital after being fobbed off by health visitors/GPs initially. She was discharged undiagnosed 3 days later, even though myself and Husband had researched and suggested PS it was written off, because she was a white girl and only 4 weeks old, they said it's more common in ethnic groups, who are atleast 9 weeks old, and usually boys.

For the next 2 weeks we visited the GP every other day, saying she's still not right, there must be someone able to look at her again, but they dismissed us, due to us being young first time parents, they thought we were exaggerating the symptoms. At 5 weeks old she had lost a quarter of her bodyweight and was starving. She only woke to try and feed, then threw up and cried a little and went back to sleep.

At 6 weeks old, we decided our baby was going to die if we didn't do something, so we went to John Radcliffe Children's A&E - fortunately we were seen and she was diagnosed within 45 minutes. The next 3 days she was nil by mouth and on a drip as due to the time she had suffered they needed to stabilise her prior to surgery, she even gained weight on the drip. She had her surgery and by 7 weeks we were back home with a baby that had missed the first weeks of her life and it was like starting with a newborn.

She's now almost 5 and is very happy child. She appears mostly healthy but is prone to stomach bugs, she's had the Noravirus, Rotavirus and probably others undiagnosed. She has an egg allergy and an intolerance to pasta (is unable to digest). She regularly complains of tummy pains.

It's nice to read others stories, and I'm shocked and disappointed that they have not done research into after effects!

my son now in 30s and was also very thin through out but has now started to fill out in 30s and  has had a normal healthy life included a love of food he has even become a chef , , the full feeling have with my other children whom have a bowel disorder  which affect the gangloin nerves , which i was told by my professor that the pylorx stenosis  is a side kick of ill ness its a rear bowel disorder called hypoganloinosis ,  where nerves do not devolpe either at all or reduced on both or either side of colon , my children with this illness often have full feeling and often because  consitipated  which often  not with common symtons  extra fluid with these kids  3 litres a day plus losts of fibre and  less weetabix as dry fibre 

I had PS when i was an infant, i had my surgery when i was 1 month old. I am now 16 and struggle with my weight. since I was a small child ive stuggled. IM a very active person, i play volleyball and softball. but i cant loose weight....at all, ive tried a lot of options and none have worked. becuase i had PS could that effect the way i gain and loose weight? and is there any solution to it if there is? Maybe even a better workout that helps more than others. any information would be extremely helpful and appreciated! 

Ally, studies have found there are long-term effects of PS they are mainly in the area of IBS, reflux and gastric ulcers, which are all related to high acidity in the gastric tract. As many PSers struggle with under-weight as the opposite: this has more to do with our genetic make-up and upbringing - build, metabolism and diet. Best wishes as you battle this one!

I believe I posted earlier- I just got back from the millionth trip to the ER for nausea and vommitting after eating which is very frequent. No allergies or anything and I watch what I eat. I've been really skinny all my life after having PS, and my doctor believes it may be related but isn't sure. I finally got diagnosed with gastroparesis and was given a drug that stimulates muscle movement, I will let you all know if it helps.