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Question about Fibromyalgia and NHS

Posted , 9 users are following.

laura11452
laura11452

I asked my doctor for painkillers for my Fybro and he wouldn't give me any.. He also has not suggested any help like pain management etc..

If Fybro is seen as a disbility in the UK what help am I entitled to??

Am I entitled to pain management ??

Am I entitled to get help from an Occupational Therapist to make improvements on my home?

 

0 likes, 17 replies

17 Replies

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  • pollmadoll64
    pollmadoll64 laura11452

    Posted

    Personally I believe you are. I have had Fibromyalgia for over nine years and have had an OT assessment and have a bath inflatable seat and a stair rail plus I am allowed counselling and pain management. Pregabalin,Lyrica,Amitripoline are suggested and recommended medicines that help the pain I am also on ESA and Pips I suggest you return to your doctor and insist on these things you are entitled to meanwhile I advise having Epsom salt baths and getting a good night's sleep.
    • pollmadoll64
      pollmadoll64

      Posted

      I have also found taking gluten out of my diet really helps
    • laura11452
      laura11452 pollmadoll64

      Posted

      Thank you for taking the time to reply.. Does it depend on how severe your Fybro is?..Mine fluctuates but I don't go through a day where it is not affecting me.. I get good days but I know at this present time due to pain and fatigue I couldn't work..
  • trisha87499
    trisha87499 laura11452

    Posted

    You really need to ask, your doctor doesn't automatically send you to pain management, however yes I did the 6 month course 2 years ago. I've had fybromyalgia for 10 years and had a stroke 2 years ago, that's me just got my appointment with an occupational therapist now, however I had to push my go into arranging it. Good luck
    • laura11452
      laura11452 trisha87499

      Posted

      Thanks Trisha I will do that..This has been going on two years now..Did take ages for to get an Occupational Therapist to assess you??
    • bronwyn97278
      bronwyn97278 laura11452

      Posted

      Hi Laura; here in Aussie Land, it is a Rhuematologist who assesses us, and starts us on the road to the right medications that are best for us...........and yes Physio is also very helpful for relaxing/working on muscles/tendons etc......................the occupational therapist is good for assessing your physical needs and would help in getting you some financil benefits.....................try the Rhuemy first for pain, though..............Bron
    • laura11452
      laura11452 bronwyn97278

      Posted

      Thanks bronwyn

      I have made an appointment for the start of June so will see how it goes

  • miss_naomi02913
    miss_naomi02913 laura11452

    Posted

    See a different doctor and do not let them treat you like your not important doctors don't know much about fibromyalgia so they make us feel crappy because they don't have a clue my doctor was less than helpful I've had to do a lot of research on fibromyalgia myself or I wouldn't of had a clue about medication or ways to manage sytoms better so do some research print it off or write things down and take it with you at your next doctor appointment show them you will not be dismissed or left to suffer
    • Magpie2me
      Magpie2me miss_naomi02913

      Posted

      I agree that at times it might be necessary to change doctors. Mine was retiring so I looked for another doctor. My friend recommended the one I am with now and he does take me more seriously. Although I rarely go the doctors, if you have been with one for many years, they don't really take our complaints as much attention as they should. Always good to get a fresh outlook and a fresh approach. 
  • linda18441
    linda18441 laura11452

    Posted

    You should ask your council about where to get help for adjustments to your home. If your dr isn't helping with pain management can you see a different dr in your practice they may be more helpful. It took me having a really bad time in front of my dr before he started to help im now seeing a pain specialist which has helped me a bit im still having pain but I get a few days now and again pain free . Ask him to be referred to a pain clinic good luck with everything living with fibro is tough on all of us fibro sufferers
    • laura11452
      laura11452 linda18441

      Posted

      Thank you Linda..I just changed over doctors because one wouldn't class me as having Fybro..This one that did wouldn't give me pain relief..weird..

      I will fight  my corner>. I have been practically housebound going on two years.. I can get out more these days..But I pay for it as you know..

  • deirdre._03652
    deirdre._03652 laura11452

    Posted

    Hi laura, I sympathise with you a great deal....

    Have you been diagnosed by a rheumatology specialist...? They are excellent, they referred me to the pain clinic at the hospital where they were excellent....I take many medications....

    PREGABALIN....TRAMADOL....CO-CODOMOL....sertraline....

    HRT.....and others as needed.....this morning when I got up...at

    Midday...( i went to bed on Friday night.. ) I took my usual medications and took 2000 mg ..4 tablets..and even then I have only been able to move for the past hour or so....some days are not too bad, I can garden and function after a fashion...I also suffer from...asthma....COPD.....osteoarthritis of the spine....two completely collapsed spinal discs...paralysed hand....asthma do a few other ailments...at the moment I weigh 6st 6bls....

    But I digress,...ask your GP to refer you, if you can get the pain under control more...it helps with the exhaustion and depression....it am lucky ..i have an amazing GP and family....it wish you so, so so much luck....big warm hugs also....dee xxx

    • laura11452
      laura11452 deirdre._03652

      Posted

      Hi deirde

      I was on 150 mg Pregablin and 150mg Sertraline but changed doctor and he reduced Pregablin 50mg and took me off Sertraline to Escitalopram 10mg.. That is all i am on outside of thyroid tablets and supplements..To be honest i don't think I could function if I was on too many..I found Pregablin made my head more foggy..

      I have other ailments as well but its the Fybro that stands out the most..

      I have only been diagnosed by a doctor..

  • deirdre._03652
    deirdre._03652 laura11452

    Posted

    Hi laura.. push your GP for more specialised help..you are entitled to it...pain and exhaustion is so, so wearing and depressing...it causes other problems on top....I do hope you find a treatment that gives you some relief....,bless you lovey...take care...xx
    • laura11452
      laura11452 deirdre._03652

      Posted

      Thanks Deirdre

      I done some gardenng yesterday have done nothing but sleep.So frustrating..

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