Posted , 7 users are following.
Does anyone get days where you feel unable to do anything and just want to
lie down. Do you get breathlessness and rapid heartbeats that just come on.
I know I am meant to be doing things but it's so difficult when you feel terrible
3 likes, 18 replies
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belinda45747 debby01
Posted
Yes everyday find it difficult to do tasks I get very breathless and my heart races as soon as I move. B
Since September my life as changed I was so active before now I struggle everyday to mobilise. I get very depressed, down because I miss doing the things I enjoyed, going to the gym and socialising with friends. It really scared me when I was rushed into hospital and could not breath and was put on oxygen I just hope I don't go through that again. Now I am on medication for the rest of my life and have blood tests to keep an eye on my INR. I just keep doing the best I can everyday Belinda
debby01 belinda45747
Posted
loved being out and about, now I feel a shadow of how I
used to be.
This forum has been a great help and it is good to know that you
are not alone.
Keep positive and things will get better and easier.
Take care
debby01 belinda45747
Posted
I know it is horrible and so scary. I am out in the car with my partner and my brrathing went all weird and i felt terrible,now i just want to get home. Yesterday i had quite a good day and now today terrible...
I am 52 and like you say, it totally changes your life.
Take care
Debby x
lizzie70061 debby01
Posted
Hi Debbie. yes I get times when I just haven't got the energy for anything. .I just do what I can when I can. I don't push myself too hard. I realise now this will mend in it's own time.
debby01 lizzie70061
Posted
That is the best way to go, do what you can and rest when you need to. It is just such a shock when you feel so limited.
Take care
rona92956 debby01
Posted
Hi I had my PE 2 yrs ago and still have days like today where I have no energy
i just rest it's the only way to go I agree having a PE ruins our lives I struggle to walk like I used to and swimming is very hard I hope you start to feel better just try to. Be happy that you are still here
belinda45747 rona92956
Posted
Yes I totally agree with what you are saying I am lucky to be alive. My doctor said he's suprised I am still alive he told me the truth that I had a large clot and lots of small clots on my lungs. I try to keep positive and keep mobilising as much as I can. I have seen what happens to people when they give up and it's not good. I hope we can help each other it's nice to talk to someone who is going through the same thing Belinda
rona92956 belinda45747
Posted
Hi Belinda , thought I would talk to you again you didn't say how old you are
I was 72 when it happened to me I have never got over it like you I am so lucky to be here My specialist tells me it's the scaring that stays in our lungs that cause our breathlessness and because our lungs don't work at full capacity anymore my clots were huge and went to both lungs Hopefully you are young enough for your lungs to heal so keep. Your chin up and look after
yourself
debby01 rona92956
Posted
It has been such a shock and a real life chager.
I am so glad that they found them when they did and I do feel better than I did, I guess it is a long slow process but be positive and just do what you can.
Take care
acrdpt debby01
Posted
It's 2yrs now since I had bi-lateral PE's. I still get frequent episodes of both breatlessnes, rapid heartbeats and palpitations. I have been to a variety of specialist and got no explanation so I am just living with it the best I can. I use to work full time but now I can only do 3 days a week. My life has totally changed but I am happy that I am still here.
belinda45747 acrdpt
Posted
i am really happy you are working 3 days you are the first person who I have spoke to that is able to work. I have spoke to different consultants and none of them as been able to give me answers. I just keep going day by day. I don't know if I will improve or not but there is no point worrying about it. I just wish doctors could help more
acrdpt belinda45747
Posted
It would be great if someone could tell us how long these stressful symptoms   will continue. Good luck with your recovery - remember at least we survived.
lizzie70061 acrdpt
Posted
debby01 acrdpt
Posted
Hi Acrdpt
Yep it is a total life changer and I am so glad that they found the PE's when they did, it went undiagnosed for about 3 weeks.
I am looking forward to getting back to work at some point, and I am so happy for you that you are able to do part time work.
Like you say take every day one at a time
Take care
Sway belinda45747
Posted
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