REALLY Bad Experience of Colonoscopy

Posted , 11 users are following.

Hi. I'm 53 and had my first colonoscopy today. Because I had no-one available to take me home I opted for the gas and air. I have to say it was an absolutely horrendous experience for me; absolutely excruciating. The endoscopist did say I had a particularly tight twist on the first bend and he swapped the scope out for a paediatric scope and then he actually got past the tight part, but I still couldn't bear the cramping and the pressure from him pushing the scope through my bowel.

I have had 2 children; the second with just gas and air for pain relief so I honestly thought I'd be OK, but this was worse than any Labour contraction. I suffer from IBS symptoms so I don't know if I have a particularly sensitive bowel or not.

The endoscopist had to terminate the procedure as I became so distressed. Unfortunately, because he had found and removed a rectal polyp (this was not painful at all ... I even watched it on the camera), he has said I have to go through the whole procedure again, with sedation, at a later date. I was then wheeled out to the recovery area where I could not stop sobbing. The nurses in the department were very nice, but I was tearful for a while afterwards.

Needless to say, I am absolutely petrified of my second procedure. I have read that the sedation doesn't actually put you to sleep but rather just "relaxes" you. What if I can still feel the pain or the sedation doesn't work at all and I have to go through that and the procedure has to be stopped a second time?

I even went so far as to call my consultant's secretary and left her a voicemail asking her if he would refer me for a colonoscopy under general anaesthetic (the hospital told me they do this under some circumstances).

Still feeling traumatised by the whole experience and wonder if anyone else has had to have a second procedure and if it was any better the second time around.

SW

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  • Posted

    Just had the triple whammy! Gastroscopy, Colonoscopy and Capsule Endoscopy (the travelling camera) which has just this minute completed its NASA mission in my digestive tract and splashed down in my bathroom! Incredible technology. I have had several gastroscopies and colonoscopies before. Thus time I had all three tests due to unexplained anaemia (very gradual haemoglobin decline then a sudden iron loss in April but with no visible signs of blood loss from stomach or gut). I went to a consultant I met once in 2010 when I needed an emergency gastroscopy when I was in hospital for an unrelated condition and reacted badly to aspirin. He is youngish and very calm and gives you his full statistics including number of procedures he has performed and his percentages where anything happened like a bleed. He had done 800 capsule endoscopies before. The day before, I took a dummy capsule which can be detected in the body by a scan and which is slightly larger than the Pill Cam but which dissolves after 30 hours if in contact with the digestive juices. This is to see that there is nothing preventing the real capsule (which does not dissolve) from going through. He gave me Senna and MoviPrep (he prescribed the orange one which he thinks is less sickly than the lemon and I agree) and although not my favourite tipple, I got through it. I was an afternoon test and the usual fun started although I found (oddly) that the Senna, which jump started the process,  actually made the MoviPrep less violent. I had a Senna combination once before and the same thing happened. You would think it would make it worse. The second dose of that lovely drink actually produced much less than in previous times. It was clear and stopped about an hour before I needed to set out for the hospital. The Dummy capsule passed about four hours before I went. I hardly noticed it except nothing else was solid at that time so I guessed. If it doesn't pass they give you a scan when you go in for the procedure and it's fine as long as it is in the colon. If it is stuck in the small intestine it dissolves later but you may not be suitable for the real thing. On arrival at the hospital, I was calm inside but I also had a BP of 181/81 which shows there is an inner stress we cannot completely control. My previous gastroscopy had been in 2012 and showed some wear and tear in the lower part of the stomach and duodenitis. My previous colonoscopy was routine in 2015 and was entirely negative as all my previous ones had been. He sedated me effectively for the gastroscopy which I don't really remember and brought me almost out of sedation (though relaxed) for the colonoscopy because he wanted me to roll over several times from side to side and on my back. He is particularly interested academically in how to make the procedure less uncomfortable and the pressure at the turn seemed much less. He used water inside the gut and explained to me everything he was doing. He discovered one small polyp at the sigmoid end and snared it - that was fascinating and painless as the gut itself doesn't feel pain (despite all the torture it can give us when distended) and then introduced Buscopan (the anti IBS stuff) near the end of the procedure. That made a huge difference afterwards. I wasn't bloated or gassy and my gut has been very calm and well behaved since. Results from the camera will be in a week or so, but he thinks he has found the cause of the anaemia in the gastroscopy which is worsening wear and tear in the last part of the stomach and which has a tendency to bleed very gently, thus it is occult and invisible to the naked eye but over time will cause blood loss. He didn't seem too concerned and says that I can either have some iron from time to time or he can laser it with an endoscopy under general anaesthetic. He also found mild diverticulosis in the gut but he thinks that is more age-related than anything and will treat that with gradual fibre increase. So, sorry this was a full one, but I thought it might be interesting. I have a colonoscopist friend who says you need to go to those skilled and specialist at it and that not everyone is as good as each other. He also says that although some people will feel pain because of structural issues or the condition they have, most good colonoscopists do care about making the procedure as comfortable as possible. He added also that there is nothing comfortable about bowel cancer or bowel surgery which these tests can prevent.

    • Posted

      Your account of your procedures was really interesting! It's really amazing how technology has progressed isn't it? I really do think that, as far as colonoscopy is concerned, it makes a huge difference who is on the other end of the scope, ie. How experienced the doctor is. On my second procedure the doctor used water to inflate my sigmoid colon which made all the difference. I think all endoscopists should be trained in the water insufflation technique from the outset as this makes the procedure so much easier for those of us with diverticular disease and other conditions that make air insufflation of the colon more painful.

      I wish you all the very best

      SW

    • Posted

      Thanks Susie. You would think they would wake up to these advances more generally. The gut can’t feel pain if you cut it but it is sensitive to being stretched by things like air. The first gut test I had back in the 1990s made me come out of the hospital like the Michelin Man. If they had stuck a pin in me I could have blown home. Using Co2 instead of just air was a big advance and for me, like you, the water has made a great difference. The fact he also added Buscopan to my medication towards the end also relaxed the colon which meant I didn’t have that usual post-colonoscopy tetchiness. I appreciate not every has a good experience for reasons the medics can’t control but I think many of the horror stories could be avoided. After all, they should be wanting people to have the test, not being frightened of it. Good luck with your tests in the future too. David.
  • Posted

    Hi, I had a colonoscopy last Friday. They tried to persuade me to hsve gas and air but I refused on the grounds in childbirth it sent me a bit la la. So I had sedation, fentanyl and midazolam I fell.immeiately asleep with it. Two minutes 20 into the procedure and I wake up screaming in agony. The procedure was promptly stopped.  Everything was normal up to the splenic flexure where the procedure was stopped.  I have been having stress related ibs symptoms. They proceeded to do a ct enema which passed without incident. Post colonoscopy, some 5 days later and he hd a little bit of wind, some aches in the colon and a bit of pink blood twenty four hours after plusand the rest of the moviprep.  I had my bowels open on the third day. I have to say this is a most unpleasant procedure and I for one, will never have it done Again unless I am knocked out. 

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