Really down tonight
Posted , 11 users are following.
This condition has really affected my life. But I am simply stunned tonight. M ybest friend told me that I should be thankful I don't have something worse. And I need to just live with it and get over it be glad I don't have cancer or something really bad. Ha ! It really hurt me. All I said was I am worried about the long car rides I need to take in May and July and I hope I can handle it. Honestly I don't think one person in my life gets it. I'm just going to shut up and suffer in silence from now on
It takes a lot to get me down, I work right through any illness I've ever had. I am just exhausted. Telling me to forget it and just get on with my life. Wow I would really love to do that
3 likes, 56 replies
catherine32075 donna18720
Posted
Donna
No one who hasn't experienced this can understand.I t has changed me and my life in 7 months. The only person who knows what I am going through is my husband because he sees me and what is/has happened to me. None of my friends understand, they can't see it and they think it's 'nothing' or 'just menopausal'. Probably your friend doesn't understand and how could she? I wouldn't have known about this 7 months ago. Hope you are OK x
donna18720 catherine32075
Posted
Catherine 7 months ago my life changed overnight just like yours did. It has been the roughest most emotional 7 months. I feel like I have lost a friend. My heart is just broken that she could act like that. I just told myself she is going through some major health problems too. So she probably thinks I'm being silly.
donna18720 catherine32075
Posted
I think that is what I hate the most, it has changed ME , I tend to cry over nothing. And I hate that I really can't get involved in anything, a movie , a conversation or even my work. I keep thinking the pain will show in my painting but it doesn't seem to. When my friend said I need to just forget about it I felt like screaming but I just said burning every hour of the day is kind of difficult to forget about. I really am doing the best I can right now. But I don't even like me,
Guest donna18720
Posted
donna18720 Guest
Posted
Thank you ! I guess I'm going to have to accept the fact that no one that isn't living this doesn't get it
donna18720
Posted
Thank you all for making me feel I'm not alone. When I saw all the replies I just started crying !
jean0078 donna18720
Posted
nancyo jean0078
Posted
I too am on Medicare...mona lisa should be covered as women are suffering... The estrogens didn't help me at all, and the health risk is so much greater... who do we pressure... I will write and call
jean0078 nancyo
Posted
As I understand it, nothing can be done until the procedure gets a medical coding number from the FDA. Until it is approved by them nothing will happen. Right now it is viewed as cosmetic so, like plastic surgery, it is not covered. They have to deem it medically necessary. I don't know who you begin to conatct at the FDA. Those wheels move very slowly. Drug approval takes forever and putting drugs that are now prescription to over the counter takes even longer. I have a really good ointment for some arthritis and you can buy it over the counter for really cheap in both Mexico and Canada! Not in the US. I think the Dr's would be the ones to work with the FDA and shoare their experiences but I don't know.
jean56555 donna18720
Posted
I totally totally relate! I have been 5 hours into a car trip and turned around and gone home! This condition is miserable. But it is so hard to talk about. Like you can say, "my knee hurts," but can't say "my vagina hurts." It is very diffiucult to understand this condition if you are not experiencing it.
nancyo jean56555
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jean0078 nancyo
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I meant FDA approved as something besides a "cosmetic" procedure. Cosmetic procedures are not paid by insurances.
nancyo jean0078
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So what agency approves a procedure to be covered by insurance. It's not the FDA. We should find out and send letters and postcards saying this is more than cosmetic as women are suffering. Lets do some research. Is dept of health. Who approved viagra. ??
jean0078
Posted
jean56555 donna18720
Posted
I have to confess that I too have a friend who has had for a long time what I now have. I once accused her of being a hypcondriac and obsessed with her health. She was continually canceling and I became increasingly annoyed, thought she was making excuses. I feel awful for my lack of sensitivity and understandiing. I'm amazed that she continues to be my friend