recently diagnosed
Posted , 8 users are following.
I am a 60 year old male from the United States. After 2 years and 2 doctors telling me there was nothing wrong I was finally diagnosed. I am beginning steroid cream therapy. After a few days now I think I am having some relief but it is difficult to tell.
I hid my problem for as long as I could. I thought it was somehow a sexual transmitted disease but couldn't think how.
Now I've been diagnosed I have done a little research and found there may be a genetic link and not contagious.
4 likes, 21 replies
sha1271 darrell90950
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sha1271 darrell90950
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hanny32508 darrell90950
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Morrell1951 darrell90950
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Glad you're here for support. So, this whole business of hiding LS because it's sort of yucky is common to both genders.
We have a GP who posts here sometimes who posted this information to add to the theory that women get LS more often and worse because urine comes and stays in contact with more of our anatomy. This is what Heather wrote
"There was correspondence in the British Journal of Dermatology recently regarding the cause of LS, and Dr. Chris Bunker from University College Hospital in London, who is a dermatologist seemingly interested in male genital dermatology. He suggests that it is likely that LS may be due to 'chronic occluded exposure of susceptible epithelium to urine'. This means urine on sensitive areas may be affecting the tissues and causing inflammation which leads in the longer term to the sclerosis, which then causes either itching , soreness and lack of the normal elasticity which leads to tearing. The reason for this suggestion is that males circumcised at birth never get LS, males never get it around the anus, LS appears around surgical scars and genital piercings, and also around urostomies (where the urine tubes are brought out on the skin after bladder removal). Circumcision also seems to cure males with the condition. It is suggested that some genetic predisposition of the skin 'barrier', such as occurs in eczema, allows it to occur in some women and not others. This genetic predisposition may explain the connection with autoimmune diseases. "
Hope that helps and that the cream works for you. Don't expect speed. I was a bit disappointed after six months, but now it's been a year and I'm really good.
suedm darrell90950
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You may have seen references to Dr Goldsteins webinar - do look at it there may be answers to questions you didn't know you needed to have answered!
The biggest issue we all have with auto immune conditions is the part that stress plays in our lives. Others will talk about their diets too. Often there is a lack of thyroid in the system so get your doctor to check your levels
The ultra potent steroid can sting - it is an anti inflammatory, so eventually it is hoped that the inflammation decreases to stop the itch etc. I am not sure how LS feels for men - but as Morrells thread suggests do keep the urine off your skin at all times - use a moisturiser to keep the skin supple and a barrier ointment to keep the urine off the skin.
The Dr G lecture talks about massaging the steroid ointment in for 90 seconds to the female vulva - i am not sure how that relates to the male anatomy, but the issue is to get the anti in'fla'tory into the deeper layers of the scar tissue - Now you see why you may prefer to relate to a chap - also the moderator of this site - his name is Alan - may be able to steer you to helpful threads - do contact him, he is very helpful
Best of luck sue
darrell90950 suedm
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wendy14679 darrell90950
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You have all my sympathy. I think, like you, that it is genetic and a very awkward subject. I am pretty sure that my Dad has LS, but would never discuss it with me. He is in a retirement home now and there is always a steroid cream in his bathroom, but although I have got up the courage to tell him I have problems, he has never reciprocated. It isn't contagious. Take care and Bravo for speaking out.
darrell90950 wendy14679
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Some things I've read states it rarely occurs in circumcised men yet I am circumcised.
I am hoping for some relief with the steroid cream.
Morrell1951 darrell90950
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darrell90950 Morrell1951
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sha1271 darrell90950
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hanny32508 darrell90950
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Wishing you well, Darryl.
darrell90950
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hanny32508 darrell90950
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Trying to come to terms with our' new selves' is I believe, one of the hardest tasks in this. Plus not being able to talk to others openly, like other people talk about their being diabetic, or their painful arthritis or other. We suffer in an anonimous way, don't we. Having this burden which one can seldom share with anyone who doesn't know what this disease is all about. As if we are to be ashamed of ourselves, or something. No longer 'functioning' sexually in this over sexualized world could easily cause feelings of inferiority. It is hard work to be able to cope in such a way that one can stand proud again.
darrell90950 hanny32508
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