recently diagnosed
Posted , 3 users are following.
Hi all iv recently been diagnosed with Fibro although I have suffered many years now that I have a diagnoses I suddenly feel completely overwhelmed with everything. I have 5 children and my husband is supportive where he can be. I'm really struggling with things I can no longer manage as I have always been so independent the thought of having a carer coming in to do my jobs really upsets me. Does anyone else feel this way??
3 likes, 21 replies
Bluebell21 nicola51831
Posted
I was first diagnosed when I was 20 by a locum doctor. Because so little was known about the illness my then doctor said I did not have it.
After years and years of unrelenting pain and constantly being told it was depression I moved to a new county and was formally diagnosed 3 years ago. I am now 54.
When I was diagnosed it was not a surprise as such, but I did definitely feel like you do now. I know it is very common to have the feelings you are having.
I too am a very independant person and a single mum to 2 children. I worked right up until 2 years ago when a lot of life changing things happened in my life and I had pneumonia.
That finished me off! I still look after my children and the house as best I can but I would be lying if I didn't say that every day is a real struggle.
I am on lots of medication to help relieve pain, etc., but the only thing that really helps is Oramorph and my GP is insisting that I cut down my use of it due to addiction problems.
It does take some time for it to sink in. My opinion is that at least you now know what you are dealing with and can get some support.
Take some time just to let it all sink in for a while. Fibro does not get progressively worse and hopefully you are 'just' in a full flare at the moment.
Are you on medication and do you know the sort of things you could be asking your GP for? For instance a referral to a Pain Clinic?
Let me know if I can help with medication suggestions and places to get help.
I really feel for you. This condition is awful.
Gentle hugs
xx
nicola51831 Bluebell21
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kaz_40 nicola51831
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nicola51831 kaz_40
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kaz_40 nicola51831
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lisa52101 nicola51831
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I've been diagnosed for 7 moths now and at first I was elated that someone finally believed me and had a name for it. Now I too am angry and grieving for the life I once had. It's a perfect normal reaction but it doesn't make it any easier to come to terms with, does it?
All I can really say is thank goodness for the amazing people on here, and also try to be kinder to yourself. It's nobody fault it just is what it is.
You will Always find somebody on here almost 24/7, so try not to feel alone.
Take care and gentle hugs xx
nicola51831 lisa52101
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lisa52101 nicola51831
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On an upside I think we begin to learn things about ourselves that we didn't even knew was inside of us. We end up having a strength that others can't even contemplate. We need it to deal with the daily battle.
Take care xx
nicola51831 lisa52101
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lisa52101 nicola51831
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Im also quite socially isolated, the friends I thought I had have quickly fallen away and no family close by. Nearest family is in Kent and I'm in Manchester and the next nearest is in Northampton at uni. My eldest daughter lives reasonably nearby but for reason far to complicated to go into is unable to visit me at home. So in some ways we are in similar situations. I think we all find our own path through this.
As for the pain, there are many options. There is the usual throw every type of pain medication which in itself is a lot of trial and error, then there's cbt, acupuncture, hydrotherapy, physio, swimming etc..I'm sure others can add extensively to this list,.
Good luck and gentle hugs xx
nicola51831 lisa52101
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lisa52101 nicola51831
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Hope your finding everyone's suggestions of some help 😊
Take care xx
nicola51831 lisa52101
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lisa52101 nicola51831
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I. Hope you don't think I'm telling you what to do, I'm hoping to make your path a little easier.
Take care xx
nicola51831 lisa52101
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lisa52101 nicola51831
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Take care xx
kaz_40 nicola51831
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