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Recently Diagnosed w/ Reactive Arthritis

Posted , 10 users are following.

Chuuch11
Chuuch11

Recently, I have been diagnosed with Reactive Arthritis after having chlamydia. First was the left heel pain, then the mid spine pain, hip, left hip and wrist. I can manage to work and still do my daily activities normally, though I noticed my knee pain is getting progressively worse. I do have a family history of arthritis as my mother has Rheumatoid Arthritis. She's managed to enter remission and it's helping me become more hopeful. I am a 20yr old male who use to be extremely active in body building and working. I just feel as if I will never be the same way again. There are so many "what if's" and the overthinking is starting to take a toll on my health as well. I'm finding hard to sleep, be happy, or even want to get out of bed. Thank heaven that I am still eating normally. Though I know a change of diet would help, I have no idea where to behind. Here's my story. I look forward to hearing from you all. Thank you.

0 likes, 34 replies

34 Replies

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  • susan84637
    susan84637 Chuuch11

    Posted

    Hi I was diagnosed with reactive arthritis in February after flu last year I've had it over 6mths now and I feel the same constantly tired no energy I have good days but are overtaken by bad I don't see any end to it I'm older than u at 44 but it's overtaken life I'm a hairdresser and it left me with contast pain in my wrist which now won't bend at all which obviously is a nightmare to work .I've tried creams, painkillers I've got a splint I wear to bed but don't help .have u seen a specialist at all ? A person told me to try anti inflammatory diet so I'm going try that coz this could last over a yr if not longer
    • Chuuch11
      Chuuch11 susan84637

      Posted

      Hello, I am so sorry to hear that. But at least we're in this together.

      I have seen a Rheumatologist and he was able to give me an injection of Depo-Medrol, it's been about 6 days now and I see nor feel no different at all. I completely understand the pain and the mental torture that comes with it. I don't see an end either. But my mother did tell me about dieting and how it plays a major role in healing and treating arthritis. I am going to look into diets as well as doing yoga and swimming, those are two greatly benefiting exercises that not only help physically but help with the depression too. If I find any good diets or exercises I'll be sure to share them with you.

      I read a story recently about a man who had reactive arthritis, he had a strict diet as well as exercised and took daily multivitamins and after some months he is now RA free for two years! That's given me hope!

    • susan84637
      susan84637 Chuuch11

      Posted

      I'm waiting on a steriod injection but I'm in two minds whether to have it I'm just willing to try anything atm .I've stared taking cod liver oil tablets but early days to say if they do anything I'm also going to try looking into the diet so will also keep u updated if anything works
    • Chuuch11
      Chuuch11 susan84637

      Posted

      Yeah I heard about those tablets. I'm currently taking a daily multivitamin, fish oils, cranberry pills as well as glucosamine sulfate for the joints. You should definitely look into those!
    • susan84637
      susan84637 Chuuch11

      Posted

      I will try those also anything got to be better than painkillers .I friend of mine gave me a herb remedie called devils claw to try aswell suppose to be very good for arthritis worth a try
    • susan84637
      susan84637 Chuuch11

      Posted

      Hello I'm not too bad thank u for asking I had a hard day in work today so wrist is hurting .how r u?
    • Chuuch11
      Chuuch11 susan84637

      Posted

      I'm sorry to hear that. For the past 3 days my left knee has gotten so bad. I woke up this morning for work and I couldn't stand because both knees are now in pain, left is ridiculously swollen. I emailed my doctor and he prescribed me prednisone, I will be taking that 2x daily for 8 weeks starting tomorrow. I'm also starting a tai chi class tonight. I'm hopeful that things will start looking up for both of us
    • susan84637
      susan84637 Chuuch11

      Posted

      Awww I'm sorry bout that sounds awful painful take care hope the tablets help u
    • susan84637
      susan84637 Chuuch11

      Posted

      Hi I had a steriod injection about 2 weeks ago pain stopped in my wrist after about 3 days but it still has no movement at all 😣 it's already started to ache again now and also I noticed my pain in my neck and left shoulder blade is swollen now nd very painful apparently because inflammation has been helped in my wrist from the injection it's caused another area to flare up nightmare .I'm sick of not being in control of my own body and forever being in pain and it's hard for people to understand when they can't see anything wrong with me .how's things with u ?
    • Chuuch11
      Chuuch11 susan84637

      Posted

      Oh no I am so sorry to hear that sad have you been dieting?

      For me, I've been in the prednisone since we last spoke. I've been well actually, there have been days where I can honestly say it's as if the arthritis isn't even there. Though I have a follow up appointment next week, I have been tapering down on the prednisone as well as the pain killers to see what my body can and cannot take. I've been doing decently this last week, only on one 20mg prednisone pill daily. I have noticed pain though in the heel, knee, spine, hip and wrist occurring again but nothing major from stopping me from working or doing any regular activities. I have no been dieting due to financial issues, but I have created a meal plan as well as a workout for when I am ready.

      I won't lie, I did have a day or two in which I woke up completely unable to move a few weeks back, I was being careless and that resulted in me not being able to get out of bed. I had to crawl myself downstairs and to my car, but I noticed the more I move the easier it gets. We can't baby ourselves. I'm deeply sorry to have gotten back so late to you. I've been dealing with so many other issues as well. But I will be replying and checking on you daily

    • susan84637
      susan84637 Chuuch11

      Posted

      Oh that's fab news ur feeling a lot better ☺ I tried the diet nd take vitimins I have good days .I think I've got used to the pain now I just get on with it my bad days I just try sleep it away with painkillers .thk u for ur concern x
    • Chuuch11
      Chuuch11 susan84637

      Posted

      It's so unfortunate how flare up occur honestly, the randomness of it all. I know there's some way to beat this or at least control it. We'll find a way sad

      Have you seen your rheumatologist lately?

    • susan84637
      susan84637 Chuuch11

      Posted

      I've got an appointment in august with my rheumatologist. I've just finished work now and been in agony all day with my back which came from nowhere this morning when I take a deep breath it's like a spasm shoots though middle of my back omg I'm sick of moaning this year it's seem I have a fab few days I feel normal again then I'm really ill
    • Chuuch11
      Chuuch11 susan84637

      Posted

      That doesn't sound pleasant at all sad I really hope your specialist can give you some good news soon. I'm learning a lot as I'm becoming certified as a personal trainer and nutritional specialist specifically for this reason. All I can really say is stay on the strict diet sad

      Maybe I can help come up with one that works for you, i notice everyone is different. As far as pain goes, what do you take?

    • susan84637
      susan84637 Chuuch11

      Posted

      I take lansoprazole b4 I take ibuprofen to line my stomach also naproxen nd painkillers. I try to only take tablets if I really got to as I don't like taking tablets .
    • Chuuch11
      Chuuch11 susan84637

      Posted

      I know what you mean about tablets. Hopefully your doctor can give you some good news as far as coming off at least one medication. I heard tumeric pills are great for inflammation, I'm looking into getting some soon. I also have a follow up appt tomorrow, I hope all goes well. I'm feeling great at the moment, my knee is the only issue with slight swelling. Fingers crossed for us both
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