Recently diagnosed with LS
Posted , 8 users are following.
I was recently diagnosed with LS about 3 months ago after dealing with severe vaginal itching day and nigt for about a year. I was prescribed Clobetasol cream to use 3x a week. I have been using it since and have felt some relief from the itching but now I have started having tears in the perineum after intercourse that it even scares me just to think about wanting to have sexual intercourse.
I am really new to LS and after reading so many different things that can happen without the proper care I am not sure what to do to keeps things under control. Please any suggestions as to what can work best especially with perineum tearing?
1 like, 26 replies
alistar My_life_w_LS
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Sorry you're having to deal with this. Just do whatever you can to remain stress free...although it's pretty hard when you first learn you have LS.
My_life_w_LS alistar
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How long has it been since you were diagnosed with LS?
alistar My_life_w_LS
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I'm gearing up to move abroad at the end of the month and had what I think was a flare up (no itching but a sudden purple blister on my clitoris) due to stress of finding a new home for my cat. Stress is a HUGE trigger. Do whatever you can to minimize it. Anyway, I was kinda confused how to treat it as my gyno prescribed the steroid for only 2 weeks and never said anything about flare-ups, only come back in 3 months. So I started to use it again, then was worried after all that I read about side effects of it. I stopped using it, am now using CBD tincture (cannabinoid from the cannabis plant...not related to the "high" THC side of the plant...that is apparently good at helping with autoimmune issues), not sure if it's helping? But I've also been applying the jojoba oil mixture I mentioned above. From what I see I THINK it's working, like separating some of the fusing. But you know, it's not like I've been checking my bits out all the time, so it's tough to say.
alistar
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My_life_w_LS alistar
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alistar My_life_w_LS
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Did you watch the Dr. Goldstein video that's in I think the first post of the forum on LS? I've not been able to watch it all as I've got a 9 month old who distracts me. But I'm at a part where he talks about there being a connection for women and LS through their hormones or having had trauma to the area. Maybe research things to help level hormones. But I'm like you, checking the area most days. Just try to include moisturizing as part of your routine. I've got my little tincture right by the toilet, so I add it at least twice a day, sometimes more depending on how I'm feeling.
powerwoman My_life_w_LS
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It probably isn't wise to have intercourse until LS has settled down and is dormant. And then you have to use lubricant. Does your husband know you have this? Sex would need to be very gentle. I am not wish someone at the moment and haven't had sex for 3 years. I was diagnosed about 3 months ago and it still isn't stable. I would like a partner at some stage but sex goes with that, and I am not ready for that and it terrifies me at the moment! So for now, my life is just work.
My_life_w_LS powerwoman
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sandra01720 My_life_w_LS
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My_life_w_LS sandra01720
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christine64600 My_life_w_LS
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My_life_w_LS christine64600
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Any suggestions to prevent tearing that you've maybe tried and has helped?
Morrell1951 My_life_w_LS
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I think after you've used the clobetasol regularly for many months the thickness of the bad LS skin decreases and the tears aren't as deep and painful. The thing to really watch for with sex is stirring up thrush. Friction + stress + sugar = bad news. I keep a tube of Canestan cream on hand to use topically at the first hint of thrush. Don't wait till you have a smelly discharge. I wish I had known this 20 years ago.
powerwoman My_life_w_LS
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I am really upset today. I thought I had found some control of LS. I stopped most sugar. Bought some anti thrush medicine which is linked to LS. I also purchased some of those yogurt drinks which are supposed to be good for you. As well as yogurt. As soon as I started with those, I am really sore again. I am not sure if it a conincidece or not! I am desparate here. The good thing is the hospital are seeing me on Monday as they had a cancellation appointment. Has anyone here changed diet because of LS? If so what did you cut out? At this rate, I won't be able to eat anything. No sugar, no diary, no fruit! This seems fruitless; pardon the pun!
Can anyone help??
I appreciate any response as feeling very low.
Guppy007 powerwoman
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sandra01720 powerwoman
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Citrus fruit can present an issue also.
Also, you could try taking probiotics. My naturopath had me take one morning and evening to take care of systematic candida.
sandra01720
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powerwoman sandra01720
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I guess it probably is the sugar in the yogurt. I have given up sweets for now. So it looks like bought yogurt is out now too. Everything has sugar in it! This is very difficult! What can you eat that is enjoyable?
powerwoman
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Are grapes high in content of sugar?
Melon?
powerwoman
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So that is out now too!
Guess its a bread and water diet!
Brill
sandra01720 powerwoman
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Guppy007 powerwoman
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sandra01720 powerwoman
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Morrell1951 powerwoman
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