Recently diagnosed with meniere's, remedys/supplements for tinnitus

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Hi everyone

Since 2015 I've had problems with my hearing. But lately worse with fullness in one war, some loss of hearing and tinnitus since 2015 but recently worse. I read that taking magnesium and a bit vitamin complex may help so I bought them. Oh and I've had terrible spells of vertigo etc but really just got diagnosed on Friday. Obviously it's quite upsetting but life must go on. Can anyone offer any advice on reducing even a little the tinnitus? Thank you all in advance, still coming to terms with this..

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  • Posted

    I've had MD for 20 years, so feel slightly qualified to respond. For me, the tinnitus is worse if I overdo the salt. Try to reduce your sodium to see if that helps. However, one of the big mysteries of Menieres is that we all react differently to the standard remedies, so it is lots of trial and error. Good luck.

  • Posted

    High dose betahistine (which takes a month to be fully effective) helped me a lot. Some of my hearing loss was reversed and the tinnitus is down to background noise only noticeable when its very quiet. It should also stop your attacks of vertigo and sickness - my regime involves staying on it for 5 - 6 months after last attack and then weaning off.

    Good luck.

  • Posted

    Hello Peter,

    I had my first attack in 2000..Diagnosed with MD. Lasted about one month, then went away for thirteen years. I had slight tinnitus off and on during that time. Did not bother me so did nothing about it. MD came back three years ago and lasted three months and went away for another year. Now it is back and I have attacks every week and sometimes everyday. Of course I have fullness and tinnitus along with vertigo. I keep a record of everything I eat and my symptoms in relationship. I keep my salt around 1000 mg per day and have cut way back on carbs and any added sugars. I found both my attacks and tinnitus are reduced (not eliminated) by watching what I eat, getting a good nights sleep, reducing stress, and exercising. I also take magnesium, potassium, C, and D. You may also want to check yourself for any food allergies. Everyone responds differently. Tracking is very helpful. More scientific. Find what helps you. There is not a cure. 

    Take care. 

    Jim

  • Posted

    Hi Peter,

    Thank you for sharing your diagnosis. As Jim mentioned , MM is different for patient to patient, so a treatment that works to quell my symptoms may or may not work for you. I’ve entered a phase of the disease where vertigo is now part of my life. I’m now searching natural options to deal with the minor episodes. Also, diet seems to make a difference as does excercise. I take betahistine 36mg twice a day and just started taking meclizine to deal with vertigo. I have a hearing aid and I use noise cancelling earphones to help with ambient noise because I also suffers from hyperacusis in the left ear. Ear plugs are a must when I’m in a noise environment. Look at a UK company called Flare audio for good plugs. I hope that helps.

  • Posted

    Hi Peter,

    I suffered with horrible vertigo for a year before I my ENT finally referred me to a  specialist who believes strongly in courses of intratympanic steroid injections for Meniere’s.  While I went into it with  terrible tinnitus  and hearing loss, it was the vertigo that I wanted/needed to be treated, as that was what I couldn’t live with.  But happily, after my second course of injections, my tinnitus receded and my hearing loss decreased.  It was really amazing. A big bonus!   Apparently, the steroids work cummulatively at the cellular level of the inner ear.  On the odd occasion that I have an attack, I still find that it’s preceded by in increase in tinnitus, but so far, it decreases back to a manageable level once the attack has run its course.  

    I wish you the very best of luck!

    J-

  • Posted

    Thanks to everyone for getting back so soon to my query. As this is very recently diagnosed I'm going to try reducing salt and giving up coffee to start with. I'll probably be a pain in the neck with more questions very soon so sorry in advance....

    • Posted

      No way could you possibly be a pain in the neck!   Everyone here is happy to share their experiences with you.  We’ve all been there.  So, ask away!

      Take care,

      J-

       

  • Posted

    I know this may sound trivial but one of the scariest things about this for me is the idea of life without music, it's that important to me. Now my doctor has said I can continue listening to music with headphones, just not too loud however I use Spotify with my mobile and honestly I have to have the volume up cos basically I've lost some hearing in the left ear. Curiously my doctor said my years of listening to loud music isn't the cause of meniere's. I'd just like to know if you all continue listening to music with headphones or have you had to give it up and what's the general opinion on this...

    • Posted

      Hi Peter,

      Loss of music was initially my greatest heartbreak!   I’m a lover of all types of music, but during those early months of Meneire’s, music sounded very distorted,...Some of my favorite songs sounded horrible.  So I stopped listening, which was very depressing.  Not long ago, I started listening again.  I adjusted my iPhone so that the speaker was louder on one side than the other, and it was much better than it was.  But Beats headphones have been my saving grace.  They have made music sound great again! I’m enjoying music once again.  I don’t know if it’s adaptation, or the fact that my hearing and tinnitus has improved after the steroid injections, or it it’s mainly the Beats,  but things are better.  Before this happened, I was considering hearing aides especially designed for people with sensorineural hearing loss. I think I googled “Best hearing aids for music lovers”.  If my hearing ultimately diminishes any further,  I would probably get those, as music is that important to me.  

      I have gone to my share of very loud concerts and have always listened to loud rock music, but my hearing never decreased until MD, when I lost lower frequency in my right ear, plus the tinnitus.  That’s not to say it my rocker days won’t  ultimately come back to bite me, but I do try to protect my ears now from loud sounds.  

      Don’t give it up your music!!! Try a whole bunch of different earphones and see which sounds the best, and make the investment.  This disease takes too much away....we musn’t let it take away something so precious, while we still have our hearing. 

      Take good care,

      J-

    • Posted

      Cheers,

      I'm thinking along the same lines looking into noise cancelling headphones. Also listening to music helps distract from tinnitus when it's particularly bothersome.

  • Posted

    I am still in denial that I have MD.. all the tests said "no" - but my ENT says maybe.. I have to say, it is SO nice to find a supportive group of people. I will have questions, but first I will decrease my sodium. I am going for an MRI and ultrasound because I am also hearing a whooshing/blood in my veins sound. Did any of you have that as well?

    • Posted

      Hi Jamie,

      I didn't have those symptoms but as you'll quickly realise meniere's is very tricky to diagnose. The mri and ultrasound are a great idea to eliminate other issues. Best of luck with them.

    • Posted

      Jamie,

      A precursor to my vertigo is the whooping sound where I can hear my heartbeat. It makes sense to me because if there is pressure in the inner ear, the cochlear organ may likely be bumping up against the artery or vein there. Who knows for sure though.

  • Posted

    Has anyone tried acupuncture for the tinnitus aspect or any of the other symptoms. I'm so desperate to reduce the tinnitus I'm willing to try anything! Any tips? Still only 2 weeks taking serc 24mg twice a day as prescribed by ent so maybe it's early days.

    • Posted

      Service takes at least a month to make a difference for most MM patients. Some say it reduces their tinnitus while others like me don’t. For me, Serc is a way to reduce the pressure build up in the inner ear, which left unchecked creates the hearing loss and vertigo attacks. That does seem to be the prevailing theory. How that pressure builds could be caused by a virus, diet, malfunctioning inner ear etc. Some folks are finding success with tinnitus by using CBD. I am planning to give this a try at some point.
    • Posted

      CBD is one of 113 different cannabinoids found in the marijuana plant. It’s non-psychoactive, meaning you will not get high from consuming it, yet it’s believed to be responsible for many of the medicinal effects of cannabis. Studies have shown CBD to have a wide variety of medicinal properties, from anti-inflammatory to anti-anxiety and anti-nausea. It’s also neuroprotective, has pain-killing properties, and can help to lower blood pressure, amongst many other benefits.

    • Posted

      Ah ok, what form does it come in? I live in Spain and there are smokers clubs where due to a legal loophole people can smoke and purchase marijuana and I believe related products. But can CBD generally be found in health shops or pharmacies?

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