Recurrent Cystitis (HELP!)

Hello, just updating everyone on my cystoscopy. I arrived at the hospital at 7:30am and was taken to the ward around 7:50am. Where i was given 2 hospital gowns to wear, one for my front and the other i used as a housecoat to cover my back and long socks used to prevent blood clots. I then was given a bag to put my belongings in. Once i was settled in i had a quick check up to make sure my blood preassure and temperature was ok. It did take an hour or so before i was taken to theatre. I was then wheeled into a room before taken into theatre where they put the tube in my arm to feed me my medication and the general anesthetic. It was quite painful getting it put into my hand and the pain did stay with me until i got into theatre. When i was wheeled into the theatre room they walked me through everything they were doing. I got hooked up and was fed medication first which i was told can make me feel really light headed which it did but i just closed my eyes to block it out and then i opened them to them telling me they were just going to give me the general anesthetic which was the last thing i can remember from it all. I then woke up in the recovery room in my bed. I felt like i had to urinate really badly when i woke up all i could think about was going to the toilet. But they gave me a urine hat (not sure what the real name for it is called) which looks like the sick hats you are given when you feel nausea as i had to wait for the nurse to wheel me back into the ward before i could use the loo. When i was wheeled back throw i must have ran back to the toilet 3 times before i felt comfortable enough to even think about leaving the hospital. I was given a sandwhich and the nurse was nice enough to run back and forward for me filling my cup up with fresh water so i could try and flush my system out. When i felt comfortable i got back into my clothes and was checked over again to make sure i was ok to be discharged from the hospital (i.e blood preassure and temperature). I also had to be able to hold down food, water and be able to urinate before i could leave and go home. Which i could so was discharged within and hour of coming out of my general anesthetic. Thankfully nothing showed up in my procedure but i now have closure and can cross it out of my list. I am still going to ask my doctor about referring me to a Gynochologist to get everything checked out. As i am now stuck in the position where i don't really know where to go from here. I just want to get better and not suffer any more. But for anyone who is going in for a cystoscope and going under a general anesthetic, you do not have anything to worry about. Staff registered in the NHS are so helpful and reassuring and i couldn't have had better nurses/surgeons to help me through it all. Will keep you's all updated with what my next move will be. Right now i have a sore head and feel a bit tired but i felt that way before i even went into theatre. Your hand can hurt after theatre for a while. I got home about 2:30pm and it still occasionally hurts but you kind of expect it to and still get some pain passing urine but it is just natural. I was given pain realivers but trying not to take them at the moment as some of them have side effects which can have an impact later on in life so just going to get better the natural way, loads of fresh water and ice for my hand if needed. 

Thank you for standing by my journey, i am sure i will update this again soon. 

Hello Emma, Drinking a lot of water will definitely help you to prevent the cystitis. It is also commonly advised to drink lots to treat cystitis if symptoms start. You can also take a low dose of antibiotic regularly. One dose each night will usually reduce the number of bouts of cystitis.

Hi Emma  glad to hear youve got it over and done with and it wasn`t too bad an experience.  But leaves you and many of us with that odd feeling of relief nothing bad has been found, but still with symptoms. l guess youll be seeing gp or urologist for report, as they often do a biopsy at same time, also advice on symptoms.  l had the scan today, hard work going as l felt very nauseous, but got there, only a l5min job and  she couldnt see anything much amiss, a small cyst on left kidney, and slight retention after going, but neither thing a big problem, apparently, read  another poster a while since who got same results, so will see what urologist and gp say next. So of course its a relief nothing looks bad, but symptoms still a problem, so its ongoing, as seems case with many for all manner of problems and  symtpoms when scans, scopes are neg. So l,m also drinking plenty. with water bottle always at hand, and see what urologists gp says on next visit. l hope your symptoms improve, too early to know yet, but its possible, keep us posted.  Take care 

Hello Everyone. So it has got to the point that my cystitis has just took over my life completely. The cystoscope just made it worse and even though I am a bit annoyed I put myself through it for the results to come back negative. I feel that I have ticked off a lot of boxes. I am now crying out for help with ANY suggestions of what it could be causing me to have recurrent cystitis. Bearing in mind I have had a scan, cystoscope and been checked for thrush and urine infections and all came back negative.

I have a wedding to go to in late July and I REALLY need this to be healed before then so any answers would be greatly appreciated

Emma

I too had negative results on occasions but still the burning continued.  I wrote on this site because I truly believe that I may be able to assist you with getting better, as I did.  D Mannose also works well to heal the raw lining of the bladder.  The probiotic I now take daily has also made a tremedous difference. 

See https://patient.info/forums/discuss/recurrent-cystitis-help--399012?page=0#1435667

Hi Emma,. So sorry to hear your having problems still, it seems to be the way for many following tests, scans, scope to find cause, l,m still waiting for cystascope, and know it can make you sore and irritated,  but still worthwhile to have it done to look for causes, mine  diagnosed intersticial cystitus for me years ago, with meds to help. But last few months having probs again, usual stinging heat in urethra lower tum with low back and hip aching, recently same higher up back and sides,  but now nausea big problem for me also.

l do know about d mannose as its been reccomended by c.o.b people for few years, many with ic use it, and thats more inflammation than bacteria, rare for me to get bacterial cystitus, though irony is l did get a bout of it a week before cystascope,a bad bout, helped delay the scope, so you can get both ic and bacteria, or underlying bacteria, and know a lot who use it and think it helps. Julie prompted me on reading post a few days ago, looked on ebay, they do sell it, so will give it a try. Lets hope we get help soonx

Hello ladies. Been a while since I have posted. Hope you are all doing well and beating cystitis. I however am still struggling with recurrent bouts of cyst