Remeron withdrawal hell!!!

Posted , 15 users are following.

I was put on Remeron (mirtazapine) by an Egyptian doctor when I worked in Saudi Arabia a year and a half ago and suffered from GERD. He told me that it would remove the nausea and help me sleep. That it did. What I didn't realize though was how difficult it would be to quit it. I'm at my wits end so please anyone who successfully went off let me know and share your experience, I really need it.

I had a surgery for GERD, but retained some hypersensitivity and pain problems despite that. I was seen by some of the most brilliant surgeons in the US and they did all tests and concluded that my surgery was a success and I'm suffering from a functional problem now.

I already tried to discontinue Remeron 4 or 5 times. I even tried to taper it over a month or two, but when I go off of it completely within 7-8 days I get the same picture: terrible abdominal pains, heartburn, cramps, some diarrhea, hunger pains, excruciating upper back aches that strangely come and go suddenly, exhausting nausea, no sleep for days, tremors, sweating profusely many times a day, general fatigue, fever like condition, shakiness, dizziness,headaches and goosebumps, electric waves over my back and head, feeling of doom, complete desperation. I have never felt all of these symptoms at once before. In fact I have never felt some of them at all ever before.

Back in April the psychiatrist told me to take it every other day for 2 weeks and then just quit it. I tried that, and after 3 weeks of terrible suffering I gave in and went back on it again. I called and talked to the RNs and they just didn't seem to believe that it could be withdrawal.

As soon as I take 7.5 mg for a day or two, all the symptoms are gone, almost completely! It's amazing. It's the only medication I've been taking since I quit all acid meds in April, 2011.

My GI Doctor told me to stop Remeron and start taking Nortriptyline for dyspepsia. I wish I could!!!! I tried again and it's been 3 weeks now and I'm absolutely dying. Nortriptyline is helping a little to take the edge off the pain and nausea and insomnia, but the suffering is still too much. It's mostly physical, mostly abdominal symptoms although I get a fair share of the other symptoms listed as well.

I even have a feeling that I don't have any underlying gastric pathology and this all is related to withdrawals. Otherwise how could it clear with the first dose or two of Remeron? A while ago when I was tapering I felt very well on 7.5 mg every 3 days but when I stopped completely - after a week all the symptoms came back with a vengeance.

Desperately,

Roman

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  • Posted

    wow that is horrible...i have been on it for two weeks and came off and it has been three weeks and I am still extremely nauseated. It is awful! I definitely think it is withdrawals.

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  • Posted

    Hi Roman,

    I have had the same experience. Headaches, nausea/vomiting, anxiety, motion sickness, severe insomnia, aches etc etc. Have been trying to get off it for years.

    I am now on a very slow tapering regime. Basically I have got a chemist to change my tablets into liquid and am now reducing 1 ml a week. I only drop down to the next ml if everything going ok. now on 12ml and everything ok so far.

    I think some of us are more sensitive to withdrawal than others and might need to take months to taper. I think this depends on how long you have been on it and how quickly your body can make the adjustments it needs to when you reduce a dose.

    I wish you all the best

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  • Posted

    I know this post is old but I wanted to reply to it anyhow. I'm hoping you are off the Remeron safely!

    it is the remeron because I went through the same thing when I tried to get off this medication. I went from 30 to 15 mg without to much problems. I them went to down to 7.5. I decreased and went very slow. The taper itself was not very rough.

    when I was done with the remeron completely. I felt sick, vomiting, dizzy, trembling very anxious. The saddest part about this was it went on and got much worse( vs better, which seems more logical to me). By the 21 day I felt I had to get back on this medication and when I did, I felt fine by the third day. So, yes I knew it was from the remeron. I take no other medications and I was using this for sleep.

    i went to three different doctors and all of them disagreed with me which was worse because here I was caught in an addiction with no where to turn. They pretty much dismissed me. I have been looking on the web for answers and have seen so many people who have posted about mirtazapine withdrawl. No one seems to know how to safely go off this medication. I'm 60 so I could just stay on it till I die but I developed bad cramping in my muscles from it. I told my doc this and he says stay on it anyhow.

    i don't think most of the doctors know what the hell they are doing with these drugs. They would like to blame the patient .....because it lets them off the hook.Hope you are doing well!

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    • Posted

      Rose, my first try (I am 61) was after 10 years on 45 mgs. 45 mg 2 wks, 30 mg 2 wks, 15 mg 2 wks, and stop. Withdrawal started almost immediately. Headaches, diarrhea, severe abdominal pains, no sleep. I called my GI doc who said that the taper had been too fast. I went back on 7.5 for six months, and stopped again 11 days ago. I have just been able to sleep the last couple of days. I still feel rotten. But, I can have times during the day when I feel a little better. I have made up my mind that I am going to try to never touch another one. My pharmacist tells me that 3 weeks is usually hump that most people need to get over, so that is my goal. I am sorry that you are having the trouble that you are. After getting clear of the Mirtazapine, I have 6 years of Lorazepam 4 mgs per day to get off of. I am determined to not have these chemicals in my body for the rest of my life!
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  • Posted

    I am now in my sixth week of withdrawal from Mirtazapine and yet again today I feel terrible - anxiety, nausea, feeling of unreality. Can anyone tell me how long these awful feeling last. It is very temptong to go back on this drug but I feel that I have come this far so hopefully will continue to struggle in the hope that it improves
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  • Posted

    I realize that it has been a while since your post, and I hope that you worked it out eventually. I am in the same predicament, almost a mirror image of the withdrawal hell. GI symptoms, headaches, nightmares, anxiety, and stress through the roof. I am 18 days into my second attempt. I ask that anyone reading this say a prayer for me.
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  • Posted

    I am right there with you! Word for word! Mostly abdominal symptoms. I'm almost afraid that I have some serious, life threatening GI pathology because I just can't believe that I am suffering this way from my body craving that awful chemical. I wish you well. Today makes 31 days for me, and I have been to the ER and my PCP and have been given Phenergan for nausea and Tylenol 3 - C for pain. And, I, like you, feel desperate. Today makes 31 days since I went cold turkey from 7.5 mgs.
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  • Posted

    I know this post was a while ago but did you manage to get off mirtazapine? Mine stopped working so I haven't took one for 3 days now and side effects are bad!

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    • Posted

      You are ahead of me but i have tapered and now at half of 7.5.  Nausea, diarrhea,anxiety,fear, and the worst vivid dreaming.  Are you having all this too?  I am scared to go to,sleep as dreams so bad.  Anyone else have these on mirt i wonder

       

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    • Posted

      Yes I use to love going to sleep but now it sends me into a panic!!! I wake up in the middle of the night not knowing where I am or who I am! I've been getting abdominal pains today and still horrendous anxiety and panic....we will get through this!!! I started getting silly and laughing last night at my anxiety to my husband because I am so sick of it!!!!

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    • Posted

      Hate this sleeping problem, it affects me all day. Nausea too. Thought last night i felt so good in evening i might go to cinema today, no chance now, feel so bad.
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    • Posted

      I spoke to my doctor this morning and he has given me something to help me sleep better, don't know what it is called I haven't picked it up yet from the chemist. I do seem to feel a bit better in the evening but come sleep time panic sets in 😦 I hate this feeling of fear I feel petrified all day. Hopefully we will both see light at the end of the tunnel x

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    • Posted

      Did you happen to start feeling any better? I am on day 12 off and lying here in agony at 3am, feel like the walls are melting and I'm screaming and screaming in my mind. I know that sounds crazy. I am not crazy. I've never been crazy! Total feeling of unreality and my thoughts are racing. I feel like I'm going to lose my mind before the end of this. Please tell me it gets better!

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    • Posted

      Hi. I totally understand what you going through. I'm 2.5 months into it and God I've been suffering. Physical symptoms are worse and nausea and vomiting and sleep troubles. Also lately I am getting very bad stomach pains. My GP said it could take up to 3 months for symptoms to stop. I so had enaugh. I hope you getting through. Be strong. X

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    • Posted

      I agree-it's so hard but this is my third attempt and determined to get off this drug

      The panic attacks severe headaches on a daily basis are almost  to the point that I can't function but I drag myself to exercise classes and I meditate daily which helps

      im now down to 22.5mg from 30mg and now the major sedative effect has kicked in-sleep for 10 hours solid and feel tired most of the day

      i took these following bereavement two years ago but on balance wish I had dealt with my feelings rather than take this drug which has done nothing to relieve anxiety attacks but given me a host of side effects.

      I wish you well Diana.

       

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    • Posted

      So my nausea and diarrhoea ibs type symptoms are all to do with me lowering the mirtaz, thats really helpful.  I suppose then that when i jump off the 3.75 tthey will still be with me Longside other things.  I am happy the nightmares have stopped now at low level, and the ideation too.  But i do feel more anxiety and depression at the moment.  If the whole CNS is so messed up then what else can i expect?  Hoping for some better days then dropping off them.  I wonder how long the stomach problems will last.  Keep going,youre already ahead of me!
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    • Posted

      Hi Ann

      i'm on my third attempt to get off this drug.

      The most I was ever on was 30mg so I thought it would be easy -big mistake.

      I  have never felt well on them and they made anxiety worse.

      i got down to 15mg over 10 weeks (had been on two years in total)

      when I dropped 10% on 15mg in one week I crashed really badly.

      major panic attack and smashed up my car as result 

      I am not a depressive but suffered a bereavement two years ago

      Ive gone back up to 15mg and have stabilised on this so I guess I'm stuck here for a while.

      Ive had the lot nausea blurred vision shaking and total confusion/ panic

      This drug has tried to ruin my life but I will get off it this year and so look forward to many drug free years ahead.

      Stick with it but go slow is my advice...

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