Posted , 103 users are following.
Is anyone out there aware of any person who has had to have mesh removed due do mesh inguinodynia after inguinal hernia repair with mesh?
6 likes, 596 replies
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jennifer_26494 adele_89294
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I am having major complications from my surgery in 2014
Shar_UK jennifer_26494
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Hi Jennifer, sorry to hear of your problems with mesh. Appreciate the USA is a much larger state than the U.K., the nearest surgeon I'm aware of who removes mesh is based in New York , Dr Brian Jacobs. Sincerely hope you can find some respite.
RC009 jennifer_26494
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jennifer_26494 Shar_UK
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Thank you so much!! I appreciate it 😘
tb160422 adele_89294
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Hi all - I have been reading this forum discussions for last couple of months as I am also going through post operation chronic pain issue. Thanks to all sharing your stories and my best wishes to you all.
I had an operation for the right inguinal hernia repair in April 2016, in Kuala Lumpur. I live in KL, Malaysia. After several months of waiting the pain issue and numbness around the right groin never disappeared. After going through review by 3 doctors in Malaysia and 2 doctors in Australia I was told that there could be nerve entrapment and damage and the solutio is to re-surgery and removal of mesh. The pain aggrevates if i do some walking or minor workouts. Generally I don't take pain meds but sometimes if very painfull I take.
Now I am concerned whether i should really go for the re-surgery for mesh removal! How about further damage to nerves and scar tissues when there has been already over year of operation. If it is still advisable for mesh removal, would anyone know best surgeon in Brisbane or Melbourne to do so? Thanks to all
sandraoo7 tb160422
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john02944 adele_89294
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I had hernia repair sept 2015.. and I had mesh removed October 2016 last year here in the United states. I am still in various types of pain.. and it's hard to pin point what is related to the surgery and what is a separate pain.. it's been the hardest thing I've ever dealt with. Since having the mesh removal I feel less stabbing pain.. but I feel what appears to be scar tissue pain.. I also have recently been diagnosed with a small deposit of fat/hernia on the left side... all the surgeries above were for a right side hernia repair. I have extreme back pain hip pain where they damn near lock up. I am on medication. By the way I didn't have any nerves cut and from the feedback on that I am hesitant to allow that procedure and am not even sure if it's the proper way to go. Like I said this is confusing. I wish I could provide more solution. And less complaints and confusion. That's what we're all scrolling for is a solution to this. Hopefully we can go off who is the longest out of their surgeries and find answers. Has anyone tried pulsed radiofrequency for their post operative pain? I have had steroid shots, nerve blocks.. to no avail. But have no tried pulsed radio frequency as its a less covered by insurance type of procedure from my understanding.
tb160422 john02944
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Thanks John. Hmm.. looks bit scary either way you go. I was also advised to get steroid shots for the never blocks in KL but the Dr in Brisbane who is recommending for mesh removal told that steroid is just a temporary and it will not fix the issue for long term. Now your experience shows the similar. Looks like not much choice than going for the mesh removal but still concerned whether that is a right next step. Your mesh removal experience doesn't necessarily show that was the right thing or was done properly. I am also concerned about the possiblility of other never damages or scar tissue issues as you noted.
john02944 tb160422
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As far as I know from speaking to surgeon and from watching my video the mesh removal was done to the best of a great surgeon's ability. The mesh was removed at once ad a complete unit in one visit. I was given the option to cut nerves prior to this procedure. There is way less stabbing and tight shrinking sensation if any in the right groin where the mesh was before. So that is a success. I do feel there's a load of scar tissue and to know whether the scar tissue is the culprit is the question that I don't have the answer to. R
tb160422 john02944
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angela10254 adele_89294
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Hello Adele. I have never used a forum and was attempting to contact Adam (your conversation partner) since my husband is the one with the mesh. However, perhaps you wouldn't mind to tell me how your removal turned in the end and Adams as well if you ever heard? Mark had the mesh installed 5 years ago and is almost crippled at this point. Very active athletic man. I am terrified for him at this point his health and pain are so bad. We are in the US but all info is helpful. We simply want to know what his chances are, what are the possible outcomes, and please, please, will someone take it out! So far can't convince a doctor it isn't all in our heads So if you don't mind sharing what you know of your final result and Adams I would be quite greatful. Thank you.
ju_86 angela10254
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Hi Angela, I'm pretty new to all this too, but am in exactly the same position as you. My husband has suffered with chronic pain for about 10 years now (following a hernia repair with mesh) and is now in so much pain he can't work, or barley leave the house. It's so awful having to watch someone you love in absolute agony and there is nothing you can do to help. I am also investigating mesh removal as so far all doctors have been useless saying there's nothing they can do and give him more medication (he now takes 15 tablets a day, and is still in pain). We are in the UK but I am finding it extremely difficult to find a surgeon who carries out mesh removal surgery. There are so many people suffering with this problem because of this nasty mesh, and no one what's to do anything about it!
I hope you find some answers soon x
adam31057 angela10254
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Hi Angela I must apologies as hadn't seen anything from yourself. I had my mesh removed 1 year ago now and had a further clean up surgery 7 months ago. Progress is slow and not without its problems but I am on my way to recover and am a lot better than I was with the mesh in, for me now it's the extreme amount of scar tissue that formed which is pulling muscles everywhere. If your looking for a surgeon in the UK I would highly recommend mine who is part of the hernia association in the uk, a guy called Aali sheen who's based in Manchester and had removed countless mesh. The key is to find someone who with give you a contrast dye scan as not many will and no matter what you need to insist on this as it does show more than a normal scan, I had the scan done by another doctor in Huddersfield and then I went to see Aali in Manchester who had a clear plan of action on how he could do the procedure and what my complications would be afterwards
adam31057 ju_86
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Hi ju I have just replied to Angela in another post. If your struggling to find anyone the surgeon I used is a Aali sheen who's part of the Manchester hernia clinic and part of the hernia association. As he had removed meshes in the past he had a clear plan of what to do and realistic outcomes including complications I would have. I can't recommend the guy enough
ju_86 adam31057
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Thanks so much for your reply! You mentioned a 'contrast dye scan' to Angela, what is this? And does it show the mesh and scar tissue? My husband has had all scans (apart from this one) and they are all clear.
adam31057 ju_86
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Hi the contrast dye is normally used to determine blood flow and things like that, but it has a another benefit as it shows higher definition when going into muscles which means you can determine between normal muscle and scar tissue and with mine it outlined parts of the mesh. If you see a consultant they will say it's is pointless but you must insist on it and you must insist that's it's injected into the muscles in the leg as it lasts longer in the body, if it's into an arm vein it will not show the details you want as the dye will be in and out of the system to quickly. The spire in Halifax West Yorkshire performed my scan
jennifer_26494 adam31057
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adam31057 jennifer_26494
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richard2271 adam31057
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Hi Adam I had mesh removed in the UK 11 months ago and double Neurectomy. I had improved but over the last 3 months I have started to feel tight over the hip and the lower back also in the abductor and inguinal ligament. The surgeon believes it could be just a strain but it'd been 3 months. I feel so tight at times . What is the cleanup you had. I had onlay mesh not plug.
adam31057 richard2271
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Have you started physio as this should be started 3/4months after surgery to avoid excessive tightening of scar tissue. It would be worth finding a physio who can use ultrasound too as this helps with deep tissue
Ukroafster adam31057
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Was your mesh placed laparoscopically and was it removed that way or openly?
Have the nerves now settled down from the neurectomy and can you function or even do exercise without pain?
Thanks
adam31057 Ukroafster
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I still get some nerve pain and the sensation of not having feeling due to the cut nerves in the top part of my leg is taking some getting used to.
The only pain I do get is like a muscle cramping and stitch pain but this is due to the amount of scar tissue which even with extensive physio causes problems
Shar_UK angela10254
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Hi Angela, I'm fairly new to the forum and had mesh removal 12 weeks ago by the same surgeon as Adam and also support Adams's comments in that I cannot fault Professor Sheen, he's been fantastic and I'm extremely grateful that he was prepared to remove this horrific mesh. It's early days and I still have issues with pain and scar tissue, but definitely some significant pain relief. He has spoken highly of both a David Chen in California and a Brian Jacobs in New York and I've had contact with a lady in California whose mesh was removed by David Chen and she also speaks highly of him. There is also quite a lot of support and help on a mainly USA site. It lists surgeons who may help in the States. I believe you will also find a contact number for Bruce Rosenberg , he's a patient advocate who's had an horrendous journey with mesh and I believe very up to speed with potential surgeons who would possibly remove it, he also adds John Galloway Atlanta, Todd Heniford etc. Hope this helps, mesh causes horrendous problems and hope your husband can find some help.
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richard2271 adam31057
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My mesh was not a plug and was completely removed by open method the same as the original operation. I have had physio and chiro but I feel increasingly tight. I can walk and do gentle swimming but I cannot sit for long or stretch as this causes increases in pain.
adam31057 richard2271
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It sounds like your scar tissue is contracting, are you still doing physio? As this needs to be constant and at least once a week. You will need to find a physio who can do ultrasound as part of the physio as this helps break down scar tissues
tom76387 richard2271
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I tried to send you a private message as we had the same surgeon and I think have similar issues. If you respond I can discuss my treatment or investigations I am currently going through and what I think my issues might be.
Thanks
angela10254 adam31057
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angela10254 Shar_UK
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jennifer_26494 adam31057
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richard2271 tom76387
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I have not seen this message
adele_89294 angela10254
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Dr. Kevin C. Petersen, MD, Las Vegas ?? I have heard he will take out mesh. My surgeon mentioned him.
I had mine out and triple neurectomy, three surgeries in all including when mesh was put in. It has been a nightmare. Even in Australia not many surgeons capable or experienced in removing mesh. I had the most qualified surgeon who is a groin pain specialist remove mine and do triple neurectomy. Even after all that it took a few months to start having pain free days. I was starting to feel better and was on a new physiotherapy program, then I discovered new femoral type hernias. I can't tell now if the pain is from my last surgery or new femoral hernia. I think it's a combination. I am devestated, but just have to try and keep positive for my kids and myself.
I am now 9 months since last op and seeing some relief, unfortunately being diagnosed with femoral hernias has changed all that, what bad luck. This means another surgery on my right groin which is destroyed from previous operations. I am hoping they will not do the left side because it is asymptomatic at present.
They say femoral hernias have the highest chance of strangulation requiring emergency surgery. I am booked in for elective surgery on the 31st of July.
Have you had much luck finding information to help your husband?