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Is anyone out there aware of any person who has had to have mesh removed due do mesh inguinodynia after inguinal hernia repair with mesh?
6 likes, 596 replies
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manar12476 adele_89294
Posted
Hi Adele,
My wife 35 years old had her inguinal hernia mesh plug removed after 9 years of suffering.
Back in 2008 sh had hernia and visited surgeon Robert Hodge Lockport NY USA, he placed a mesh in her gut and since then her health went down hill.
She became diabetic after one month without any previous history and on top of that sh had infection under th hernia and ended up back in th hospital with drainage tube for two months. All these were clear signs that her body rejecting th mesh but of course Hodge ignored all tht.
After tht sh lived with mild pain in her gut tht come and go based in activity level and start growing worse over th years and for her being stayed home mom sh didnt push her self to th limit until late 2015 when sh started working again sh start to feel th gut pain got so bad tht start to stab her badly until one day after one month from working in backing shop sh came home unable to walk straight n i took her to ER.
They did test everything and found nothing is wrong! They couldnt see th mesh right cuz sh had two artificial discs in her spin tht make it hard to see without reflection so they askd her to go back to her surgeon to recheck th mesh
My wife kept saying its th mesh i feel it hurt so bad but we couldn't find any dr around Western New York that skilled enough to make sense of her symptoms in fact they made her feel tht sh is crazy n its only in her head.
But i know its not cuz sh cant walk right n sh is always in pain.
Next week ,Jan 2016, we went back to the surgeon tht placed th mesh , dr Robert Hodge and he was looking at her like sh is crazy n he said well i can check but its not th mesh i am tellin u. So he agreed to do laproscopic surgery to check th mesh and guss what?he found blood under neath th mesh and a pound of scar tissues and in his report he said th mesh look great and it was ovary cysts!
My wife woke up and sh said,i still feel th pain. We gave it couple weeks and we did, unfortunately th pain came back , we saw th gynecologist and we did sonogram right after his crapping report and th dr CONFIRMS tht sh have no cysts n her symptoms doesnt match cysts symptoms, we took tht report and went back th butcher dr hodge and he said "well its not th mesh i know that so i cant help u anymore " and he litterly kik us out.
My wife cried her eyes out unable to know who will help her or at least explain to us whats going on.
Her primary dr wasnt any help and the problem is no body believed tht sh have pain and look at her as druge seeker!
How painful is that!!!!
Living with pain that progressively gotton worse month after month until jun 2016 sh wasnt able to go anywhere with me,sh wasnt able to do groceries or even drive.
Her primary adviced us to go see a surgeon in Buffalo NY his name is Mark Falvo and we did, he asked for MRI and he didnt even read a word from th reports tht i brought , he didnt care he told us" he symptoms doesnt make sense, i put many meshs a month n never heard any complications!! It just never happen!!"
And after th MRI came out he called n said "well th mesh lokk fine,go see GI dr"
My wife broke down n cried, sh was so depressed telling me tht sh will die with this poison inside of her tht nobody wanna take out.
I got sick of unfit drs tht keep pushing us around n cant keep giving false hope to my wife so they put her down more.
I did a comprehensive online search and found Dr Brian Jacob, a surgeon fron NYC in Manhattan, since we live in upstate NY that was closer than LA since seeing dr Kevin Peterson was our last resort.
Dr Brian Jacob respond to my email right away and asked to see us next week, we did drove for 8 hours to get to New York City for th dr app and omg it was worth it.
Dr Jacob welcomed us personally and he took us to his office to talk,we talked for about 45 min n he reviewed all th paper works,opreative reports and MRIs carefully and asked alot of questions and he said " yes its th mesh,it needs to come out". We start crying cuz finally some answers.
We scheduled th removal surgery in 3 weeks and guess what? Th surgeon found th mesh soild hard as rock and was pinching two nervs. Th dr said "we stopoed using this type of mesh long time ago cuz it get solid hars after couple years when it supposed ti stay soft n flex" and he was surprised tht th original surgeon saw all th symptoms but he chooses to ignore it.
Now its been a week after th mesh removal and my wife start to get her health back n sh feel better but we wont b sure until few weeks after.
Dr Brian Jacob been on touch with us by email and ask about her status everyday. Now i have a piece of paper tht prove my wife wasnt crazy
We pain $15,000 for th surgery tht without traveling expense and first app.
adele_89294 manar12476
Posted
manar12476 adele_89294
Posted
She feel like new woman, its been a week now and sh is off pain meds so sh feel sore from surgery but th stabbing pain and thighs pulling are gone cuz th mesh was solid hard and was pinching nervs.
Sh is still diabetic tho, her pancreas didnt produce any insulin yet and probably wont ever after th mesh permanent damage since 2008.
Dr Jacob asked her to be show case for othets to help figure out th mesh complication symptoms and share that with drs bcuz sh didnt show any physical symptoms tht can b found on any test like MRI, CT scan and X-rays, still that doesn't mean sh is fine like what drs been telling her for years.
I hope u find th way to get th mesh out of u and will help with any needed info
RuinedByMesh manar12476
Posted
Did he remove the mesh laporoscopically or by open surgery?
When he removed the mesh, did he also repair the hernia with a new mesh?
scott79586 manar12476
Posted
manar12476 RuinedByMesh
Posted
Th surgeon who removed th mesh last week did an open surgery and perform full mesh removal and placed her skin to close th hernia instead of mesh.
What surprised me tht before th removal surgery dr Jacob asked for MRI with special focus on soft tissue in her mesh area and he was able to show us before th surgery tht th mesh look solid hard and thts y it hurt! I dont understand why this young dr was able easily to see it before he cut her open while we saw many surgeons n drs told her sh look fine n nothing is wrong after thy cut her open!
Dr Jacob told us tht they stop using this type of mesh long time ago and now drs use either pig skin or ur skin to fix th area. No more mesh
manar12476 scott79586
Posted
manon66212 manar12476
Posted
manon66212 manar12476
Posted
Dr. Jacob sounds like a great doctor, unfortunately, the info on using pig skin or your skin is totally inacurate. Mesh is still used - all the time. You'll have to do reading...
scott79586 manar12476
Posted
anthony46338 manar12476
Posted
I really appreciate you sharing your nightmare with us. I can relate I had Bilateral Inguinal Hernia Dec 2016 and I’m still having complications to the point I’m seeking a specialist in Los Angeles,Ca for mesh removal. I’ve been referred to Pain Management for the meantime. I hope your wife’s recovery goes well.
manon66212 adele_89294
Posted
My sister had her mesh removed in July - was pain free for 2 weeks - pain has returned, just as bad, or worse. She is also suicidal - I don't know what else to do for her!! There is not much known about what happens after removal of surgical mesh for hernia repair. Some of what I've read suggests it could be bacterial infection, but bacteria in clumps so oral antibiotics are useless - could also be biofilm - again antibiotics are useless. Discussing with doctor who removed mesh to discuss next steps, if possible. Found information on a doctor (I believe in Germany) who cleans where the mesh was to get rid of bacteria left behind... will speak to doctor about the possibility - but they would have to reopen her. I know she would do anything at this point...
Pain is much worse after bowel movements - maybe bacteria has moved into her bowels? Not knowing is killing her...
adele_89294 manon66212
Posted
manon66212 adele_89294
Posted
Thanks Adele - something else to look at! Is there some physical way that it could be looked at to find the nerve damage? MRI? Etc. Is it an 'experiment'?
adele_89294 manon66212
Posted
manon66212 adele_89294
Posted
We're in Ottawa - we went to Chatham for the removal. She has had Juvenile Rheumatoid Arthritis since the age of 6 (artificial shoulders, twice, artificial hips, twice, upper spine fused and expecting the remainder of the spine to be fused) and she is on a variety of medications for that, one drug she used to take and finally got herself off of was Dilaudid, unfortunately, she's had to go back on them to somewhat control the pain - it's not doing as much as it should. I think her family doctor is just finally now admitting that there must be a problem - as you are aware, nobody believes the patient - it's only when she had it removed and was pain free for just over a week that he finally believes her. Surgeons told her it was not possible... I'm sure you know the drill - it's always the same story - don't doctors do any research any more?? She does have a good support network, however, nobody can do anything for her - except listen - her and I are very close and I'm doing everything I can - including a lot of research, however, without more help from research, there's not a lot to be done! (even doctors who do believe, like the removal surgeon, don't have a lot of support from the medical community). I will talk to her and her surgeon today tho about the neurectomy and get her to talk to her doctor to set her up for the tests... Thanks so much! I am very nervous - I really don't know how long she can and will take this debilitating pain. She says the arthritis is absolutely nothing compared with this pain.
audrey10034 manon66212
Posted