Request for info from people diagnosed with hip oa

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I've been involved in a long standing discussion on here that I started about 18 months ago - "Problems Diagnosed as Hip OA CAN be cured in some cases".

I managed to completely resolve what was claimed by many who examined me over the years as a classic case of hip OA. They were very certain of the diagnosis and claimed it couldn't be cured.

The key thing about my case is that I had a twist in my pelvis - that was the real cause of my problems. I'm doing some research for a book I'm writing and I want to test out a few theories. I'm therefore interested in hearing from others that have been diagnosed with hip OA but also have:

- One leg longer than the other (maybe this has been diagnosed, or maybe you just feel one leg is too long, the hip hitched up on one side)

- A twist in your pelvis or torso. You can test for this by lying on your back, feet on the floor, knees bent. Let your knees drop to the floor on one side. Then on the other side. Is one side tighter than the other?

If this applies to you and you wouldn't mind answering a couple of questions (just relating to your symptoms - nothing personal!) then please drop me a line. Or respond here if you don't mind doing it publicly.

Thank you so much smile

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  • Posted

    Susan, thank you for all your hard work building up a wonderful resource. I would be very happy to answer any of your questions re hip OA having also been told I needed a THR and now informed it is tendinopathy due to postural problems. I like David am stiffer dropping my legs to the left and have left sided pain and weakness in my left buttock muscles along with pain ? Tendinopathy in my left medial Lowe leg just above the ankle and right knee pain occasionally. Unfortunately I haven't found suggested postural work alleviates the problem so will be interested to see what helped you! I cannot find your web site. Could you please let me know how to access it. I really admire your determination in following through with all of this AND you fitness!! Still aiming at my first proper pull-up! Thanks Alison
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    • Posted

      Thanks Alison. You'll find a link to the website in my profile. I'll send you a PM too just in case (not allowed to post links here).

      So to clarify:

      Symptoms in LEFT side

      Tight and painful when dropping knees to LEFT

      But nothing to suggest that one leg is longer than the other? If you lie on your back on the floor is one foot lower than the other? (You'd need to get someone else to check that for you).

      The cases that are like mine will have both a long leg and tightness in rotation on one side.

      (That's not to say that if you only have one that muscle imbalance is ruled out - just that my theory doesn't explain it. The model will still probably help you to get your head around your own problem though)

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    • Posted

      Susan, thanks for prompt reply. Left hip/ pelvis higher than right and right hip slightly pulled forward in relation to left so prolly a twisted pelvis. Along with a sway back , protracted right shoulder, forward head and Valois right knee in particular. Hope thT helps. Thanks Alison
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    • Posted

      Awesome! (The info - not your wonky body LOL)

      When I've got my model complete I'll work out what it predicts for you and you can let me know how much - if any - holds true.

      It's interesting because this suggests you've got the same dysfunction as me but opposite hip is symptomatic. Which could well happen. I guess there are lots of variables that determine exactly where the problem will manifest when the entire body is put under unnatural strain. Hopefully we can figure out what some of those variables are!

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  • Posted

    Hi Susan,

    i think i fit your requirements.have the diagnosis from the specialist even though i am only 40..i  believe he is completely wrong..very limited internal left rotation of the hip. lying on back and pull it up and it wants to rotate out to the left externally. lying on back and through the knees to the right and the left knee stops about an inch short of hitting the right knee unless u force it..might be a good guines pig if u need one to try out 

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    • Posted

      That sounds good pat.

      The good news for you - that's exactly how my right hip behaved and it's fine now! Doesn't prove that you'll be fine too, but it does prove that those test results don't necessarily mean what the docs say.

      Limited external rotation and that kicking out on flexion are both 100% explained by my model.

      So we know your more restricted with knees dropping to the right.

      What about a longer leg? Any signs of one hip being hitched up, one leg feeling like it doesn't fit under you? Slight hip flexion on one side when you're standing upright? Lying on your back is one foot lower than the other? These are all indications that a longer leg is possible.

       

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    • Posted

      limited internal rotation on left hip..left leg feels longer..left hip feels rotated out slightly while standing upright..lying on my back with legs flat on ground, left knee does not really want to touch the floor without forcing it..
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    • Posted

      Perfect!

      At first read that sounds EXACTLY the same as me but just the opposite leg. I'll need to go over it all really carefully to be sure - with all these lefts and rights and twisting and tilting it's very easy to get it all mixed up!

      But I think it might just be a case of giving you my program to do - but for the opposite side.

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    • Posted

      Give me a day or two to get organised. I want to recheck again to make sure I haven't missread any of your test results and symptoms. Assuming your dysfunction is the same as mine I already have the corrective exercise worked out but because of your dysfunction you have to be careful how you do them. I might video them to make it clearer.

      I'll need to take my time to get our little research study organised! My head is spinning now trying to keep track of who's rotating where!

      I should say as well that this isn't a reliable way of testing. But it hopefully gets you in the right ball park. I can describe more acurate ways of testing in the book. The corrective exercises should feel good and never hurt. So if it hurts it's not right - don't do it!

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  • Posted

    Hi Susan, I would be more than happy to answer any questions if I can help. I have one leg longer than the other and have had for decades. In 2006 I had a right THR and still have leg length discrepancy despite this being corrected at surgery. This is on a background of congenital hip dislocation. 
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    • Posted

      Thanks flatfluff.

      It would be interesting to know if you have the same pattern of twisting as I did (so does the twisting occur when people really do have a known joint problem). Do you also have a twist in your pelvis - so if you lie on your back, feet flat on floor, knees bent is it tighter on one side than the other if you drop your knees to the floor on each side? If you can't do that with a THR then just standing with feet parallel and bracing your hips then rotate upper body to look behind you on right then left. Is one side tighter.

      If you do have a tight side in rotation which side is it?

      Which leg is longer?

      Which hip has been replaced?

      Do you have any remaining symptoms? Stiffness, soreness, lost rom on either side?

      It would be interesting to see if your known hip joint problem CAUSED any muscle imbalances.

      Thanks again! smile

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